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Help! ASD/ADHD? Sound familiar?

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Ok bit of a long winded post so I will start off by apologising! I know no one here is able to offer a diagnosis but I'm keen to know if any of these this sounds like ADHD/ASD


Ok, so here's the story. Our son is now 5 (6 in April) from the age of 18months when he started a couple of mornings at nursery he was really hard to settle-had crying at the door for maybe 6months until we moved) then he started at another nursery and was pretty much the same when I left him until he moved into preschool where he had his good days and bad days. Towards the end of preschool he had a really bad day where he couldn't control his emotions and had a major tantrum lashed out at a staff member and bit her - he'd never bitten anyone before. Whilst I was concerned I did wonder if it was because he knew he was going to school soon and so so we decided to see how the holidays went and how he settled in. It was difficult doe times good days and bad days. Then he started reception.


When we attended the settling in parents evening the teacher expressed some concerns to which we were pleased that it wasn't just us and someone else had noticed - hard to settle in, doesn't like change, difficulty handling emotions, tantrums, lots of fidgeting on the carpet, over affectionate to peers, easily distracted, sometimes distracting the group, doesn't appear to hear when called and difficulty pronouncing some sounds. Her advice was that we put in a referral for the school nurse to pop in to see him and to try and organise speech and language therapy and a hearing test. The school nurse visited and had a chat and attempted the hearing test but he didn't want to do it so I arranged this myself and the results were fine. We attended a speech and language appointment where they highlighted a couple of sounds he struggled with which he picked up at a later stage and was signed off at the follow up review. I had also expressed my concerns about his behaviours to the gp who organised a referral to the paediatrician.


We attended the appointment with the paediatrician (me and my son) and was asked a number of questions and the paediatrician said that some of the answers sounded like Asd characteristics but didn't have any concerns socially so ruled that out but did wonder about ADHD but as some of the characteristics could be age related said that he couldn't diagnose until he was 6. He said that they would put us in touch with the local support team who would assist us further (this was in June 2015). Months passed and we heard nothing he started year one and had to be peeled off me at the school gates every morning from September until January when he finally settled down. He appears to be doing well at school a recent parents evening we were told he is at the right level for writing and maths and is above for reading, socially he is happy and plays with friends but despite being bright, as at home he can be very emotional, take things to heart, speak very loudly, speaks over people, is fidgety, leans over the table talking to people (I say talk-he talks very loud-in people's faces) etc. After not hearing anything from the LST and my continuing concerns that there is something (although can't quite put my finger on it) I returned to the gp who couldn't understand what had happened and had written directly the the LST for support. They have since been in touch and after I provided a list of characteristics/traits he displays she then forwArded said list to CAHMS who said there was nothing that they could do but advised that we needed to go back to paediatrics however seeing as we have been previously they advised we go direct to midlands psychology. I visited the GP this week who had also took a copy of these notes and put them together with a referral which we are now waiting on.


...I know no diagnosis is quick and these things take time but I just feel like some days we have real bad days and think yes there's definitely something and then other days he is the most kind sweetest helpful kid I think maybe it's just me, maybe I've done something wrong. The paediatric was sure he wasn't in the spectrum because he is OK socially...(apart from in some social situations - see list below) so please can anyone read the list below of a few things we have noticed and tell me in not going crazy. Sorry again for the long post


* generally wakes any time from 5-6:30 - very loud and energetic from the get go until bedtime

* tantrums-now starting to get angry when having a tantrum may throw and object if in hand or slam objects down on the time or might fetch something I.e a play sword like he wants to hit us with it. Angry voice, grits teeth, red faced and clenched fists

* difficulty taking him to places that are busy e.g parks zoo farm etc as he runs off refuses to look at things tantrums about not being able to get a drink (not because he isn't allowed but doesn't understand it's because we aren't near a kiosk/shop despite trying to explain) tantrums because he wants a particular swing (and rather than find something else has been known to stand in front of the person on it grunting and waiting for them to leave it - as I was feeding baby at the time) shouts and screams at me

* obsessed with his tablet and would happily spend ALL day watching minecraft videos if i let him (I don't he is now limited to an hour a day on either PlayStation/hudl or half an hour combined - losing time for bad behaviour).

*sensory issues - socks don't feel right pulls at seems on the toes sometimes takes shoes off repeatedly because socks feel wrong, clothes feel 'funny' and prefers "softness" (fleece lined clothing-has fleece PJ bottoms and gets upset if they're in the wash). Gags when eating (occasionally- goes through phases) can be a fussy eater. Hates the Hoover as its "too loud" and "hurts his ears" (has hated it since a baby) now takes himself off to the bedroom when I do it if he's at home. Scared of loud sounds/bangs (downstairs outside) drills etc goes through phases of disliking brushing teeth

*anxious-anxiety over meeting people, new places, changes in routine, school trips, thinking people are going to break in "are the doors locked" going in the car "do you know the way home? ..are you sure" convinced we are getting lost, riding his bike (scared with stabilisers wants us to hold him/the bike)

*blinks quite a lot

*difficulty having two way conversation doesn't always seem to listen, wants conversation his way and can be bossy

*interrupts conversation all the time

*Gags (and wretches) some mealtimes says his tummy hurts and complains he's full after eating very little

*had developed a fear of going for a poor (sorry tmi) crowds and screams at needing to wipe which Makes him gag says it's too smelly but has now overcome this by supplying him with a can of air freshener - he does two sprays everytime he goes before he wipes

*enjoys writing notes - likes taking a notebook to school makes plans sometimes comes home and takes a register/writes lists.

*anger outbursts - example we went to a children's party before Xmas there were 4 nunchucks (ninjago party) Bobby placed his down to make something so someone else took it so he proceeded to grow into hulk filling with anger raced across the hall,swiftly followed by me, he rugby tackles the other child I moved him a way and he screamed at me shouting me

To let him go (as I had to restrain him stopping him running after him again) and began punching me.

*constantly wants to be in front of people when walking especially walking to school/from school - if someone overtakes he will overtake them again wanting to be ahead squeezing past people/objects to get there.

*oblivious to where he was walking (I.e to school or when shopping) I have to physically move him because despite telling him watch the lady and mind out of the way for the man/pushchair/wheelchair whatever he still continues to bump into people

*can be very kind/affectionate sometimes too much wanting to cuddle/hold hands with friends or kids them and they don't want to/look uncomfortable

*has an obsession with a hulk figure and gets frustrated and upset if the arms aren't in the same position on both sides

*usually avoids eye contact (unless he's shouting at me for something)

*avoids cuddles unless he initiates it (he might feel tired or unwell and ask for one but fights to get away if we try and give him one)

*has a chair which he constantly rocks on

*occasionally runs off and thinks it's fun laughing and smiling about it.

*has favourite things-biggest minecraft and superheroes) forever talking about something related - had his first swim lesson and told the adult in the pool that he watches minecraft videos on YouTube and spoke about them?

* latest discovery - has found the audio description button and likes watching to with it on


Thank you for reading

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This sounds a lot like my son and we are on the to getting him diagnosed with aspergers best but of advise I could give is don't give up keep on at the gps they will eventually listen my boys 10 now only just getting somewhere

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Go back to get another Speech & Language person to assess social and communication skills - preferably a school observation. That's what supported the diagnosis of our 7y old. The diagnosis doesn't change much but it helped me feel bolder about demanding help - without the fear of being labelled paranoid/poor parent/interfering etc etc

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See if you can get some advice from your local branch of the national autistic society. Also check out sensory integration disorder or sensory processing disorder. There is also the autism helpline

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