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Reflux Problem

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My son has had this problem for sometime now. Have tried giving him some stuff out of boots the chemist but it is horrible tasting.

 

Does anyone else have this problem? Thought I start a thread on this.

 

Elaine

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My son had a severe reflux problem from being a baby, 'projectile vomiting' included. Suprised my washing machine and Vax lasted. He grew out of it when he was about 4. He was on medication provided by consultant (had a Barium test to see how bad it was)

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My son was a projectile baby as well. I remember having to buy 2 dozen of those muslin squares, they were constantly in the wash.

 

I don't think hubby or me had any tops or jackets at the time that didn't have a stain on them :sick:

 

I remember we were told to put him on to SMA white as it normally stays down better. They told us to start weaning him early which seemed to do the trick.

 

Annie

>:D<<'>

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My NT son was my projectile baby. He once made a direct hit on a womans hat who was sitting four rows infront of us on a bus :o I was visiting a friend and my son came home dressed as a daughter. We could go through 30 changes of clothes per day. I could often be heard saying that I could write the book on puke :sick: Sorry.

 

He is now 26 years old and he can still vomit at will. The smell of a can of tuna fish never fails to have an effect. He has been known to get off public transport to throw up because of a smell.

 

Did I say that he was NT? :wacko:

 

Carole

Edited by carole

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Alex has been known to spend a whole flight to Melbourne Australia in the toilets because he cannot stand the smell of aeroplane food.

 

On our flight to Cyprus in July he managed a whole flight in his plane seat, with the help of Vick - the plane stank of it :whistle:

 

Annie.

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Both my kids had reflux as babies. Tyler went blue when he was 2 weeks old because he 'refluxed' in his sleep, Emma just screamed for about 6 hours straight at the same age. I had powdered gaviscon on prescription for both of them and used to collect it in a huge carrier bag from the pharmacy - must have looked well dodgy!

 

Did the trick though and neither of them needed it after they stopped having milk in bottles.

 

Apparently it can be hereditary, hubby has a weak oesophagus (had to spell check that first!!!). :wacko:

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Just a thought that it might be worth investigating. My friends little girl had severe reflux and she, the mum, persisted till she was referred and the little one had a probe investigation, (24hrs with a piece of litmus paper in her stomach basically) and docs were horrified at acidity of her stomach and extent of reflux, also had hiatus hernia. Was put on omeprazole to stop acid production in stomach. Eventually reflux so bad that some of the acid was being aspirated into her chest and she ended up with pneumonia! had surgery to correct hernia and "wrap" bit round the base of her oesophagus to stop reflux. Pleased to say that now after some trials and tribulations she is recovering. So I think the moral to my long tale is that if you think your small person needs further investigation you will need to push for it. This little lass was really quite a poorly child but because she was so young (has only now just turned 4) she did not have the language to sat anything and it was only her mum who knew there was something not quite right with her. Yes, mum's do generally know what's best!! Hope all goes well for you whatever you decide, love Kat

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My little one had quite bad reflux and serious projectile vomiting as a baby too and infant gaviscon definitely helped. He got some other thickening agent for his food too but I forget what its called! He still has a really sensitive gag reflex now and chokes/vomits really easily.

 

Lynne

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Hi can relate to this thread.My son ASD/AS was a very sickly baby and brought back half of what he ate.He was,nt projectile just burped and it all came back.He was very difficult to wean and hated lumps.His food was pureed till he was 3!.Today he is very sensitive and will wretch and gag at the drop of a hat , he is very fearful of this and avoids smells :sick: .

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My eldest was given a dx of hiatus hernia and we were told if the problem had not solved itself by the age of three he may need an op. He stopped just short of his third birthday. It's not un-common for a baby to be born with a hiatus hernia. They call it a sticky valve and in most cases they heal themselves.

 

Carole

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Hi

 

I am definately going to take this further this time. I am alot stronger now and will push alot more now than in the past!

 

He is going to see the school dr in October so I will mention it to them. He is at a specialist autistic school so hopefully they might be a bit more understanding than the local GP. My wee cherub freaked at the drs the last time and tried to kick him - em not good!

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It needs sorting as I know of ASD children who have developed fears of eating through reflux/sickness problems, sorting it before its a problem which hopefully it won't be is always best. Good luck and stay strong :thumbs:

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Yes my daughter had severe silent reflux as a baby - this is where the acid from the stomach travels up and down the esophagus (sp?) without actually being sick with it. She had a barium meal at 5 weeks old and was on all sorts of medication from then until nearly 18 months old, this included gaviscon (which she couldnt tolerate), omeprazole (acid blocker), domperidone (to clear the stomach quicker), ranitidine (to reduce acid), it was basically a matter of trying to work out a combination of medication that worked for her.

 

It was hard work and Im sure is part of her sensitory and speech problems now at age nearly 4. She is a very fussy eater and refuses to try most things new, she cant tolerate diverst textures like jelly with lumps of fruit in, cereal and milk, yoghurt with lumps, mash with peas, they all make her gag and vomit, not nice at all!

 

She is also tactile defensive, avoids things like finger painting, cooking etc, she is slowly getting better as we do lots of texture play, but I remember she refused to eat or touch anything covered with breadcrumbs until nearly 3 years old :D Im sure its all part and parcel of the same things.....

 

Do get it checked out reflux is like having a really bad case of hearburn permanently, not nice at all!

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My eldest son (ASD) had severe reflux. Ended up on three different medications which he took until his 2nd birthday

 

Interesting seeing that other kids with ASD have had reflux. Wasn't aware of any link though maybe it's jsut that reflux is a common problem so a proportion of kids are likely to have it? Saying it H and I have always said that DS seemed to be born not 'properly cooked' and developmentally immature and reflux and his ASD problems are all part and parcel of this

 

Liz x

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Hi,

have been meaning to add to this thread, and finally remembered.

My eldest son had the projectile vomiting thing as a baby, and really bad colic.Then I had my youngest son and he began projectile vomiting at 5 weeks and I thought, 'Oh,no! not other one !'

But after a few days of this (so bad it was spurting through the sides of his moses basket :sick: ) I took him off to the doctor's and he was off to hospital with pyloric stenosis and had an operation to correct this.

The doctors couldn't believe that my elder son hadn't had the same condition (it runs in families, and usually occurs in first born sons) I wonder now if the eldest had this condition and it corrected itself ?

It's odd that my eldest isn't as asd as my youngest, and I do wonder....

pyloric stenosis has something to with peptides and nitrous oxide ( I think, am no medic !)

Am rambling now, my point is, if you have a baby who begins projectile vomiting at around four weeks, seek help, it's a potentially fatal condition. I was also told by the first consultant we saw, that projectile vomiting can be caused by over-feeding (felt like bad mother). The second consultant who did the op told me that the constant feeds I had been giving him had kept him alive.

No wonder I kept 'forgetting' to reply to this thread, it was an awful time.

 

wac

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I too had a hard time with my youngest (NT) who was born with a hiatus hernia and wsa constantly vomiting blood all over the place, he was finally operated on at age 2 3/4. BUT that took changing GPs and then still changing 3 peadiatricians, none of them were really listening and kept putting me off. Till one day I burst into tears in the doc's office and to calm me down he relented to finally doing some proper tests and ofcourse then they finally realised I ahd been right all along. They then put him on loads of medication till he finally had his operation.

He still produces too much acid now (at 8), but can no longer throw up which is a big help.

The whole thing has made him a fussy eater and he doesn't care if he doesn't eat for a long time as he got so used to being hungry as before he could never keep anything in.

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Hi to all :)

 

It is my daughter now nearly 14 who had reflux problem since she was born (she is not ASD well may be not??? :huh: ) and this was due to multiple allergies some so severe that I had to put myself on diet to continue breastfeeding her it went better with a very strict diet but would start again if I started to be lax with her diet this went better age 10 and started again when she developed Grave desease at age 12 and before she was diagnosed and treated with carbemazole. At the moment she is fine.

I have myself an ayatus hernia and cannot have any big meals at once last year they thought I had an ulcer and I had a gastroscopy that how I found out (I had been very ill because of hypothyroidism untreated for many months and all my muscle had gone) it may be a good idea to investigate as ASD children often have low muscle tone it is a possibility.

 

Best wishes.

 

Malika.

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Hi

 

Got an appointment for tomorrow to discuss my son's problem with a community doctor attached to his asd school. She sounds "down to earth" and was pretty shocked that this has not been investigated further.

 

Will see how it goes tomorrow and let you know

 

Forbsay

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Hi there

 

My son projectile vomitted frequently (almost daily!) when he was a just a week old to about the age of 2.5. I kept a diary of how often he was sick and marched down to my GP and insisted something wasn't right because both he and my Health Visitor kept telling this was normal! I guess, I was reassured in a way that Robert seemed okay in that as soon as he had vomitted he was neither up nor down. Robert was given a barium ? solution to drink whilst being x-rayed. He was unbelievably distressed and had to be held down by 5 people. I ended up crying because he was screaming for me and I just hated watching him being so distressed. Don't want to put you off ? even thought he was very distressed, I'm glad I kept onto my GP and that Robert got checked out. I was relieved to know that there was nothing seriously wrong with him. He's not been emotionally scarred by the experience! Apparently boys are more likely to suffer from colic and reflux problems than girls. It can be caused by a weak stomach muscle, which can strengthen (without an operation) the older the child becomes. Definitely needs looked into though for your little one's sake and you'll be able to rest easy after investigation.

 

Just a thought, but might also be worth keeping a diary for a week and noting down what's being consumed. That was something I was asked about.

 

Keep on at your GP and don't take no for an answer!

 

Regards

 

Caroline.

 

NB Thanks for the advice that you've given me!!!

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Hi

 

Went to community doctor and she was very impressed with him :wub: . I was so proud of him (em had tears in my eyes with pride)

 

We are going to hosp for more investigation so we shall see what happens.

 

Caroline - I will take a note of what he is eating and see if there is any connection.

 

Forbsay

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my two both had reflux and projectile as babies, now only 6 year old does, alot in car and if he has a cough we no hell be very sick was under alder hey for this as couldnt keep anything down for 2 years said in end he was allergic to cows milk. but grew out of that he drinks milk by the gallons now. a

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My dd had vomiting and colic from being a newborn. I was fobbed off, being told she would grow out of it. After numerous visits to health visitor\GP and not getting anywhere I put her on to soya milk at about 6 months old and it was like I had a different child. She can still not tolerate dairy products at the age of 14 and has recently become intolerant to soya which is a bit of a nightmare.

Edited by LindaB

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Hi, my daughter had gastric reflux from a baby (and projectile vomiting) and was prescribed 'Cissapride' (not sure if that's how you spell it!) when she was little by the Paed. Consult. who has looked after her since birth (also put her on a milk free diet also until age 4yrs - as he suspected lactose intolerance) - and had various barium x-rays of the oesophogus and bowel.

 

Recently prescribed omeprazole although had to take her off it as the side effects were quite bad for her - next step is a camera down (which she kind of freaked out at because she thought it would be a 'camera' like my kodak digital!!) as the barium came back with redness and soreness showing at the gullet. The only thing is that she had all these tests done before we had diagnosis of AS (only diagnosed last Nov'05) and since diagnosis the Paed. involved since birth has basically washed his hands of her - so don't quite know where we go from here.

 

Have noticed that it seems worse if she's eaten certain foods/not eaten enough and also levels of anxieties.

Edited by jb1964

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I read something a while ago that suggested that the reason ASD have sleep disturbance was because of reflux.

 

I've had it during all four pregnancies at different stages.

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Gosh it is nearly a year ago that i started this thread.

 

We have know been given tablets and medicine for his reflux problem. The school dr came out with a huge name. He is on hospital waiting list but that could take 6 months for him to be seen.

 

He still has reflux problem but he is not going it as much!

 

Forbsay

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