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jools

bowel and bladder problems

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G (age 8) gets constipated on a fairly regular basis.

i'm happy with his diet......eats all the right things.

he is under a consultant at the hospital (although i have only ever seen the registrar)

he has been on lactulose for approx 2 1/2 rs and if he doesn't take it he has great difficulty going.

he is also on senna if i feel he needs it.

i feel that his problem with going to the toilet is more than constipation.

he has dyspraxia and low muscle tone and i wonder if the muscles in his bowel are not strong enough to get his poo out......but when i mention this to the hospital i get a blank look.

 

now his bladder.......he is dry through the day and can hang on if he absolutely has to (at school) but when we are out can wee all day.

he is very wet at night.

still wearing pullups which are down to his knees on a morning if he hasn't leaked out or split them from being so heavy through the night.

his last drink, about 1hr b4 bed, is a small cup of milk

 

he has finally been given an appt for the enuresis clinic at the beginning of october but the nurse is already saying they won't do anything because he has bowel problems.

basically he will have to stay wet

 

i'm at my wits end.

he really doesn't want to wear them but i haven't got the strength to take him out of them and put up with wet beds, all night, everynight!

and he can't put up with the lack of sleep if he doesn't wear them.

it just has a knock on effect for his behaviour during the day

 

anyone else had a similar problem or can anyone offer any advice to help in either of these situations?

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About 11 years ago, when Auriel was initially given a dx of Dyspraxia, I remember reading about 'bladder Dyspraxia'.

 

It might be worth contacting the Dyspraxia Foundation...

 

Good luck,

 

Bid :wacko:

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Hi, does he wake when he wets at night? sorry if you've put this already. There are sheets called Kylie (yes really) sheets that are waterproof but have a cloth covering so you just whip them off when wet and saves washing all the bedding. I use one for my NT daughter, her bum was too big for pullups and too expensive for the big size night time ones, and she didn't want to be wearing nappies. She still wets every night but the washing is less and she thinks she is a big girl not to wear pullups. I also lift her and she does wee but does go back to sleep. i don't really agree with lifting as it doesn't teach anything but she is 6 and the washing gets you down! I made the Kylies but they can be bought.

E.R.I.C has a helpline and they are helpful, they also have a knowledge of special needs. I was of the understanding that you could go to an enuresis clinic even if you had bowel problems. perhaps your GP could clarify the situation for you? E.R.I.C have an alarm you can get to help with the wee and there are some drugs that can be used in the short term. Perhaps if you get help with the night time wetting you and he would have more energy to tackle the bowel problems? Hope all goes well and this might have helped a bit, Love Kat

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Jools

 

Coming from a long line of pee bladders, I found that if I put a waterproof cover on the bed and left out lots of old towels and a change of pyjamas, pants, whatever, that most of mine would just learn to cover the wet patch with a towel, change wet bottoms and crawl back to bed - all for me to sort out in the morning.

 

In our family dry at night didn't come till well beyond eight - but all four are there now!!!

 

Good luck!

 

Barefoot

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Hi Jools - ok - if you feel G's problem is more than constipation what do you mean?

Do you think it is more than physical in origin? That's what I was wondering reading your post, do you think it is more to do with emotional/psychological issues, is your son scared of having a poo, for example becaue it hurt him in the past or because of something else negative he associates with pooing (eg he feels he is letting go part of himself along with his faeces - bit freudian but can be an issue apparently!) There are lots of emotional issues associated with defecating which may be overlooked by GP's etc and if this is the case treatment may need to focus around this sort of thing rather than the purely medical/laxative route.

Lactulose is a mild faecal softener not a stimulant and can lose some of its effect after prolonged use, it also has the side effect of producing excess wind.

I understand exactly what you mean when you say you don't think your sons bowel muscles are strong enough to get his poo out and I don't know why your getting blank looks about this, basically if your son does not have great anal sphincter tone than this is a consequence of this. i think I've read autisitc children are prone to this problem (though my experiance comes more from adult nursing). A diet higher in roughage may help (but I know you've already said your happy with his diet), in adults a laxative such as Fybogel helps but I don't know if it is appropriate for children. Stimulant laxatives such as Bisacodyl will help to stimulate the bowel to push faeces out but again I don't think they are routinely prescribed for children. Senna is a gentle natural softnener and stimulant and perhaps you should use this more often than 'when you think he needs it' so that it has an ongoing effect.

Having bowel problems can impact on the bladder therefore causing bladder problems (incontinence, frequency) so maybe that's what the enuresis clinic are on about, however I don't think this is a good enough reason for them to think that they cannot help your son without seeing the full picture.

Please don't worry about using the pull ups until you get further help. I understand it's not ideal but I would go along with whatever is the least stressfull at the moment, increased stress will only add to the problems, whatever their cause.

Has your son not had any help with the nocturnal enuresis before, ie buzzer alarm in the night? If not than I feel he should have - sorry if you've already tried all this or I'm making presumptions in any way - obviously I don't know the full story but this subject is one I'm quite involved in with my work and it seems to me you've not had much useful help with it so far, this makes me naffed off because we have enough to deal with without all this too.

Hope all this is of some help if there's anything you want me to clarify please let me know - luv Witsend.

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thanks for the replies

 

he doesn't wake if his pullups are wet.....only if he leaks out of them and his bed gets wet.

i don't think iexplained myself proerply when i said i think its more than constipation.

i probably should have said i think its more than diet causing his problems.

he has lots of fibre, tons of fruit each day and the hospital are fine with what he eats.

i firmly believe he has a problem getting it out......and i don't 'think' its psychological.

we have an appt for his bowel in oct and i will be mentioning this again.

in the mean time i'll give him senna more often to see if it helps.

i've learnt more from this post than the hospital ;)

 

he hasn't had any help for his enuresis and if they still say they can't help until his bowel is sorted than i will be pushing for an alarm.......surely that can't harm!

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Hi jools

 

My son was in pull ups until he was about 5/6 yr old due to soiling more than wetting himself and still soiling now. Do push for some answers from the doctors etc as it must be hard for your son at age 8 still having problems with his toiletting when they can be a target for bullying. My son is 9 and still soils himself but can be very good then have some bad days, he's on fleet enemas daily to clean him out. It can work sometimes but might not the next day, without it he can soil, with it he can soil so never know whats going to happen. It's more psychological ive been told more than less now from the consultant who I will see next year. I was told it is an overflow or something when the child is constipated and ends up getting incontinence.......... :unsure::unsure: but he has had a few ops on his bowels since birth as they was not formed properly. Dont know much about dyspraxia...Sorry, do go for the alarm as that wont hurt at all I cant tell you that much as other members have already given you great advice... :thumbs: Let us know how you get on as I understand what your going through as I have to take wet wipes/pants wherever I go just incase he gets messy... :sick:

 

Try these links

http://www.aboutincontinence.org/causes.html

 

http://www.aboutincontinence.org/Children.html

 

 

 

 

Take care

Amanda

Edited by Amanda32

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Reading your post was like reading a description of my son - he is nearly 7 will not poo on the toilet, can hold it in for England!!! - we recently went 14 days without one!! He soils his pants and will only poo in a nappy - even today he wet himself for the first time for ages.

 

He is still in nappies at night - which are soaked in the morning - I like you can not face the prospect of sleepless nights and wet beds so I keep on with the nappies. I am told that it is a very slow process especially with boys - but we keep working at it.

 

My son was also on laxatives for years and we decided to try and make changes to his diet to try and help with the constipation rather than pumping him full of medication. We have recently changed him to a wheat free diet and have seen some improvment in the constipation - we are considering dairy free as dairy intolerance is frequently linked to gut problems.

 

Good Luck !!!!

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Jool-was just wondering if anyones suggested Movicol paediatric (a newer laxative) which seems to be quite a good one?

Amanda the 'overflow' associated with faceal incontinence is due to the constipated stool forming a solid mass in the bowel and faces get 'backed up' to such an extent that the softer faces 'escape' past the constipated stool and overflow out sometimes, this often makes it difficult for people to understand how you can be constipated whilst being incontinent of what can seem like diahorrea!

I suppose jools you are a bit stuck (no pun intended) until you see specialist in October and then hopefully you can get to the bottom of what's wrong (oops another pun :lol: ) with your sons bowel which will in turn help the staff dealing with his bladder problems. At least you don't have to much longer to wait - Best wishes - keep smiling - witsend.

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Jools - just to let you know we have tried Movical (sorry poor spelling) - it works by "bulking out the poo" (lovely) seems to be quite effective - but is VERY VERY messy if you have to clear up any accidents (consistancy of wet cement!!!!) - we are now, however trying more natual methods (diet change, supplements)

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My little one is only 2 but suffers badly from constipation due to poor muscle tone - has done since he was newborn and got to the point where he was bleeding/making himself sick everytime he needed to go which was about once a week though he spent a large part of every day trying to go.

 

We were put on lactulose and senna etc but the only thing that made a difference was movicol. He was on it daily, but now only needs it maybe once a week to keep things regular. Its different made our lives easier.

 

Lynne x

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hi i am 18 and i still have accedents some times

Edited by microsoft_admin

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My son was sevearley constipated and had anal leakage constantley.

 

He couldnt push the poo out and so it would build up then leak out and then his stomach was all bloated.

 

We were prescribed a suppositary that guaranteed hed go to the toilet for a poo within 20 minutes.It forced the bowel to contract there by forceing the poo out.I cant remember what it was called though and it was pescribed by a peadiatricain.To ensure he couldnt clench his anal muscles and try to prevent the poo comeing out we we were also given some sort of cream that meant he couldnt do this either.

 

The combination of these drugs meant he got into a routine of useing the loo every day or every two days.We only used them for about 2 weeks.My son also has poor muscle tone around his middle.

 

He still hates useing the loo for a poo and will only go at most once a week then her blocks the toilet.

 

 

As for the bed wetting.Hes now 12 but only stopped wetting the bed and soileing it when he was 9 or ten.We used every piece of bedding everynight.And he wouldnt wake if hed wet the bed.Id to check him everynight then change the sheets.Hes now dry.

 

 

I found that id to cut out white bread,fizzy drinks and virtualy all processed foods from his diet and that this made pooing easier for him as it formed something easier to pass.When these foods are introduced he has constant runny type gleuy poos that he cannot pass and causes a right mess.

Edited by Paula

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well i still use nappies but only because i have server phobia of toilets (pm me if you whant the long story behind that)

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Jools - why not go back to your GP and ask him/her to get you an appointment with the consultant before October? It seems an awful time to wait for some help.

 

My other favourite way of getting help is to call the health visitor at the hospital child development centre where my son is seen. When it came to wetting and bowel problems she was brilliant - she organised free industrial strength (!) pullups and got me lots of help and advice from a range of different people.

 

My son was finally dry and able to use the toilet properly by the time he was seven, although we still have accidents. He doesn't get constipated - he has permanently runny stools - but there doesn't seem to be any medical reason for it that has so far been found.

 

It seems to me that lots of children with ASD/AS have problems in this area.

 

Funnily enough, the one thing that has seemed to help considerably is something my son latched onto on his own - he has a bio yoghurt every day, the type with bifidus (Danone Activa, both in proper yoghurts and drink yoghurts). This seems to have done wonders for his digestive system and we encourage him to have them.

Edited by jomica

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Hi everyone >:D<<'> :D

 

Just an update I have managed to get an appointment in sept for my son to see the consultant that deals with his bowels. We were due to see him in february but he has been busy, they did say first of all to get in touch with the local GP but they dont know or give advice what I need Id rather see the one that did the operations on him to be honest. He has gone backwards like i mentioned before and he goes to playscheme now few times a week. I picked him up today and he was in a right mess all up his back, the play leaders had to tell me. It still worries me though that the other children are noticing so what problems is he going to have in the next year. To be honest im going to ask the consultant if it's possible for my son to have a manometry done again which measures the strength in his back passage, that was done quite a few years ago and wondering if they can just do this again. My husband seems to think that they wont as it costs money but I would like to know if it is psychological or a medical problem. He does say he cant feel it coming out but surely he can feel it on his bum and the smell. He still as fleet enemas daily but with or without is the same to be honest which he's had regular for the last maybe 5 years. Can someone tell me what senna is?

 

Many thanks

Amandaxxxx >:D<<'>

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Evening everyone hope you are all in good health. >:D<<'>

Just an update (yet again).....sorry

We took our son to see the consultant today and told him and the registra our concerns about my sons bowel problems. I asked if any other children with the same problem eventually got clean roughly but all the registra said was usually a percentage of kids are clean by now and my son may well be one of the ones that might not get full control so no answers there. To be honest doctors etc cant give you answers to things like when am I going to be cured etc?....

 

The consultant said he can have another manometry done so got to wait for that just to put my mind at rest to see what control he has got. Apparently he soils his pants because over the overflow that leaks out but when he has dirty pants he probably feels embarrassed to tell anyone. The consultant then said our only option was the ACE procedure (Antegrade Continence Enema) which is permanent. I knew about this few years back but not in detail. It replaces the enemas that I do in the back passage. He would have to have a small operation in the right said of his stomach via a catherter tunnel and the large bowel. Done on a daily basis to keep it empty preventing constipation and soiling. Im still reading up on it at present so cant tell you much and probably getting it all wrong. It supposed to be a success in the long term and he will be able to carry on as normal but just have to have washout through this everyday. I have about 6 mths to think about it if things dont get better so im hoping that things are better but doesn't seem that way.

 

Im waiting to hear from a person that may give us some advice about this and the operation he had and what he was born with so im going to get whatever help I can get to make things better for him. See how it goes for now.

 

 

All the best and lots of >:D<<'> >:D<<'> >:D<<'>

Take care

Amanda

Edited by Amanda32

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Hi Amanda/Jools

 

My DS has had similar problems for years - constipation (not going for 3-4 wks at a time, then leaking constantly). We finally took him to hospital last year (2-3 weeks) where they re-trained him - he was 9. When they x-rayed him they couldn't believe he felt no pain, he was so impacted - you could see the intestine swollen and pushed out of place. They put him on Movicol (the adult version - and when he slips back I use this also at home). The problem is, he still does not know if he needs to go. Each day I ask him and he says he doesn't need to. Some days I insist he tries (other times bribery is needed) but invariably once he sits down, we have a small measure of success.

 

He used also wet during the day, but this has stopped. Again, the hospital felt he did not recognise the sensation. We now have his SNA reminding him to go to the toilet 3 times a day & we do the same at home. I think he would not go at all if not reminded. He still wets at night, and is seeing the hospital again soon - they could do nothing about this previously until the soiling was solved.

 

Good Luck

 

A

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I am so pleased to find these forums. My 13 year old son who has dsypraxia and mild aspergers has had bowel problems ever since we tried to get him out of nappies and onto the toilet. For years he refused to sit on the toilet and would maintain he didn't need to go while so obviously desperate. He would then go in a nappy while asleep. We went through years of wet and soiled beds, sometimes he would hide his poo and stuff soiled clothes under his bed. Eventually we started to see a paed and psychologist, using senna for over 3 years, which just gave him stomach cramps, the psychologist was a waste of time as my son ignored him. We have tried cutting dairy out of his diet but at 13 it is hard to control everything he eats and it doesn't seem to make much difference. He has been seeing a psychotherapist for over a year now and while he started going on the toilet regularly and stopped wetting the bed for a while, as soon as we stop worrying about it and prompting him to use the toilet he is constipated again and soiling his bed 4 days in a row now. He is always so unconcerned about it. Is happy to lie in the bed, doesn't want to shower himself off and has nothing to say when challenged about why he is leaving a bed full of poo and not even mentioning it. His lack of concern is so infuriating. He takes tablets to increase the water in his bowel, and occasionally picasulphate, which he hates as he blames that on his "accidents".

 

His father (we are separated) and me are at our wits end. We both end up shouting at him and losing it big time which then makes me feel terrible - I almost hit him this morning after discovering another soiled bed and him just shrugging his shoulders at me when I confronted him. There was no time to shower him as he was already late for school and doesn't care anyway, it would have meant arguments and reluctance as he hates showers anyway.

 

I have read a few posts here where wheat and gluten might be a part of this. Has anyone experienced success with diets? We get a lot of vegetables in him and have increased his fruit intake, but like most kids he wants to eat the foods we would rather he didn't (pizza, mcdonalds) which we do occasionally let him have, especially when he is going on the toilet regularly and not soiling.

 

I was left shaking with emotion this morning. I fear for him as I can't let him go for sleep overs and the idea of a school trip fills me with dread. He stayed with my Dad last year for a week and soiled the bed. I can't inflict this on anyone else.

 

This is a bit of a rant, but I need all the support and advice I can get. Shouting at him and showing my disgust at this continual soiling is not helping anyone. But when I have gone for months of understanding comments and saying it is not a problem as i strip the sheets and look under the bed for soiled clothes hasn't helped either.

 

I honestly don't know where to turn next. I am not sure the psychotherapy is of any benefit. They say it is a long process and could take years. He sees them 3 times a week, which is wearing in itself as it disrupts our working life and his free time.

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>:D<<'> >:D<<'> >:D<<'> >:D<<'> >:D<<'>

 

My son is 12 hell be 13 in january. We have had years of problems with his bowels.Constant anal leakage,refuseing to go,crapping the bed ect ect .hes been on supositryes,creams,senna the lot all to no availe.

 

 

 

But this past 12 months have seen an enormous breakthrough.

 

 

You ask about diet and i think it does play a part.

 

here is what we did.In simplified terms.

 

 

We cut out of his diet compleatly white bread.Replaced it with whole grane and granery.We cut out all processed packaged foods,all fizzy drinks,all biscuites,all cakes and buns.WE didnt cut out milk but changed to fully skimmed.I also switched to organic meats.All food in the house is made from scratch even the soups.I only give him natural fruite juices the one im useing at the moment is organic and containes no gluton.

 

This regeme took months to implement.But ti has made dramatic improvements.His bellies no longer bloated through constantly holding on to his poo.he looks healthier and fitter and he goes regular and passes the stool easier there for he doesnt get scared to go. Theres no more anal leakage,no more soiling or soiled beds.

 

Its not easy to implement and its something the whole family has had to imbrace to make it easier so the denied foods arent in the house but its been well worth it.

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My six year old was on lactulose for about a year, then senna and finally went on to paediatric movicol. I take him to see a consultant about every six months, but end up seeing a different one each time. My son also says that he can't feel it coming, doesn't go for about 4 days even on movivcal, then he has leakages. I went through the frustration and shouting phase, but stopped that a long time ago when I realised he really had no control- but even now he says to me " I've had an accident - don't shout at me mummy"

 

I did suspect dairy intolerence as he was intolerant to baby formula and was severly sick until I put him on soya formula. Then I gradually introduced yoghurt and cows milk at the age of one, with no reocurrance of vomiting so I thought he was OK. Then I realised he was autistic and by the time he was about 3 he developed severe constipation. I put him back on dairy free products for about 9 months, but it did not make a difference. I increased his roughage and that did not help either. When I suggested gluten intolerance, the consultant just dismissed the idea. Now I think that he may be dairy and gluten intolerant, so I'm just about to get a urine analysis done at Sunderland before embarking on a complete combined gluten and dairy free diet. I'm hoping that this will help his bowel condition and may help reduce his other, less worring autistic symptoms.

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>:D<<'> >:D<<'> >:D<<'> >:D<<'> >:D<<'>

 

My son is 12 hell be 13 in january. We have had years of problems with his bowels.Constant anal leakage,refuseing to go,crapping the bed ect ect .hes been on supositryes,creams,senna the lot all to no availe.

But this past 12 months have seen an enormous breakthrough.

You ask about diet and i think it does play a part.

 

here is what we did.In simplified terms.

We cut out of his diet compleatly white bread.Replaced it with whole grane and granery.We cut out all processed packaged foods,all fizzy drinks,all biscuites,all cakes and buns.WE didnt cut out milk but changed to fully skimmed.I also switched to organic meats.All food in the house is made from scratch even the soups.I only give him natural fruite juices the one im useing at the moment is organic and containes no gluton.

 

This regeme took months to implement.But ti has made dramatic improvements.His bellies no longer bloated through constantly holding on to his poo.he looks healthier and fitter and he goes regular and passes the stool easier there for he doesnt get scared to go. Theres no more anal leakage,no more soiling or soiled beds.

 

Its not easy to implement and its something the whole family has had to imbrace to make it easier so the denied foods arent in the house but its been well worth it.

thanks for your reply.

I try to stick with wholemeal and seeded bread but sometimes relent and let him have french bread but rarely. I cook organic meat wherever possible (I am veggie myself) although his love of sausages is a concern organic or not, I think they must be quite unhealthy. He loves carrots, green beans, peas and sweetcorn which I give him at every opportunity. He has occasional fizzy drinks, and has a sweet tooth which is hard to find healthy options for. He drinks still fruit drinks and I manage to get a couple of glasses of water down him wherever possible. I am insisting on him eating more fruit . He will only eat melon, apples and pineapple. I can sometimes get dried apricots down him, but I think your approach is the right way to go. I have to stop relenting and letting him have occasional pizzas, crisps, sweets and mcdonalds. I can't control what he eats at school though. He eats very little in general and has always taken hours to eat a meal - ever since he was born. He put on very little weight from birth and only when we cut out all dairy until he was 3 yrs old did he put on significent weight. mind you, with his bowels as loaded as they are it;s no wonder he has little appetite. He is a skinny tall boy, with no signs of bloating, it is always a total shock to me when he does finally go to the loo and blocks the toilet - where it all comes from!!

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Ive also started to make my own soups.This is a way of getting much needed vegtables of all varieties into my son because hell eat soup.But never ever out of a tin.

 

I chop onions,potatoes,leaks,parsnips and brocalli and pour hot water over it i then add one knor stock cube.Boile it all up and blend to a mooth consistency.I also add a tin of unsalted,unsweetened sweetcron.he absolutley cant get enough of it.

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Ive also started to make my own soups.This is a way of getting much needed vegtables of all varieties into my son because hell eat soup.But never ever out of a tin.

 

I chop onions,potatoes,leaks,parsnips and brocalli and pour hot water over it i then add one knor stock cube.Boile it all up and blend to a mooth consistency.I also add a tin of unsalted,unsweetened sweetcron.he absolutley cant get enough of it.

 

Thanks for this, what about cheese? Have you cut that out as well? my son loves cheese and I wonder whether that isn't doing him any good.

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Yes ive also cut cheese out of his diet it was something he ate a lot of before but not any more.

 

Youre probably thinking what does he eat.

 

 

Well he has two slices of Burgen bread toasted every morning spread with butter thinly.(this bread is made of linseed and seeds and can be found at most supermarkets)

 

 

Packed lunch for school is................. One whole meal tcake with either chicken,tuna,or prawns inside.One organic yogurt............then some dilute juice made with Rock organic squashes or he takes and inocent smoothie.

 

 

For his tea hed normally have......homemade soup,wholemeal pitts..............or grilled chicken in a wholemeal tortia wrap.............bannana pulped in a glass of fully skimmed milk...........

 

He has sausages once a week.againe i buy high quality ones with 85% meat content..check the labels...Home made onion gravy and mash potatoe............

 

He also has smoked haddock and enjoys a small fried fish from the chippy as a treat once a month.

 

 

 

I know this diet seams very very limited but its the only way to solve his bowel problems..

 

He gets loads of nutriants through the homemade vegtable soups i think,he looks well,is gaineing weight and the teachers have said he is so much calmer at school not half as hyped up as he used to be.So i think ive got it right.

Edited by Paula

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Hi everyone... >:D<<'>

 

Took my son to have his manometry test done it was the same nurse that did it 5 years ago. She did the test and said that he should have 50% control to be normal strength and it came out as about 40-45 so maybe better but not full control yet. The test results are being sent to the consultant so shortly we should get to see him to see what he has to say about it. See how it goes but all I was told to help him do is squeezing his bum in everyday and see how that helps but he really finds it difficult to understand what to do.

 

Take care

Amanda >:D<<'> >:D<<'>

Edited by Amanda32

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Yes ive also cut cheese out of his diet it was something he ate a lot of before but not any more.

 

Youre probably thinking what does he eat.

Well he has two slices of Burgen bread toasted every morning spread with butter thinly.(this bread is made of linseed and seeds and can be found at most supermarkets)

Packed lunch for school is................. One whole meal tcake with either chicken,tuna,or prawns inside.One organic yogurt............then some dilute juice made with Rock organic squashes or he takes and inocent smoothie.

For his tea hed normally have......homemade soup,wholemeal pitts..............or grilled chicken in a wholemeal tortia wrap.............bannana pulped in a glass of fully skimmed milk...........

 

He has sausages once a week.againe i buy high quality ones with 85% meat content..check the labels...Home made onion gravy and mash potatoe............

 

He also has smoked haddock and enjoys a small fried fish from the chippy as a treat once a month.

I know this diet seams very very limited but its the only way to solve his bowel problems..

 

He gets loads of nutriants through the homemade vegtable soups i think,he looks well,is gaineing weight and the teachers have said he is so much calmer at school not half as hyped up as he used to be.So i think ive got it right.

 

I made the soup on Thursday evening. I was so sure he would take one small taste and refuse to eat it, but he did eat it - hurrrah - one small step. I explained that we are going to have to cut some fave foods from his diet and he seemed very understanding. Ten minutes later asking if he could have a mcdonalds!

It seems my son's diet is quite similar (now that I am cutting out the cheese and occasional fast food). He eats only wholemeal breads as I said, also tuna, salmon, ham, cucumber, carrots, houmus, homemade chicken nuggets, cous cous, rice.

 

He has spent the weekend with his Dad and soiled his bed every night, big time. His Dad dug the movicol from the cupboard (we have never used it) and started him on it on saturday. This morning - another soiled bed. (he says he is unaware of going in his sleep and never gets "the urge"). He is back with me for the next two days. Thank god I got the washing machine fixed this weekend!!

thanks for all your help and advice.

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