Guest flutter Report post Posted September 22, 2005 daughter just diagnosed,in the last week autistic specrtum disorder she is 11 she has always been different ( we have always asked her how the weather is on her planet:) ) i ahve bene led to believe that girls show different signs, and the fact that seh was "as good as gold" at skool, no-one accepted my point of view. Quote Share this post Link to post Share on other sites
raelien Report post Posted September 22, 2005 I put older than six - coz we only got a provisional diagnosis - our appointment is soon - but weve been on the waiting list for years. I have been begging for assistance since Col was 3 coz I knew he was special Quote Share this post Link to post Share on other sites
Viper Report post Posted September 22, 2005 I have two on the spectrum. One is 14 and was DX'ed at 9 the other is 5 and still awaiting final DX. With the eldest we knew she was different but didn't know what it was, we sought help when she was 7 and got a DX at 9. The other, we knew much earlier, having been through it before and we sought help for him at around 2 but are stll waiting. Viper. Quote Share this post Link to post Share on other sites
LizK Report post Posted September 22, 2005 Not sure how to answer this one as DS (nearly 4) has not got a formal diagnosis yet. I had concerns when he was a baby become more apparent during the second year of his life especially regarding speech and socialisation. Saw a paaediatrician when he was 2.5yrs old who said the most likely diagnosis was AS/mild ASD but that he was too young for a formal diagnosis and there was the possiblilty that he could either mature out of it to a degree (end up in that grey aea Tony Attwood describes) or that he could have a primary language disorder causing some of his other difficulties. Last saw the paediatrician a couple of months ago he still wasn't sure whether DS woould fit all the criteria for ASD but thinks his needs will be ASD-related. He also threw DAMP into the diagnostic pot for good measure! Sometimes it is frustrating not having a definite label but as we are getting a variety of help based upon DSs needs there seems little point at the moment so will have to be patient. Liz x Quote Share this post Link to post Share on other sites
mrs q Report post Posted September 23, 2005 I knew at 18 months that my child was not NT so sat back and let the professional take over...finally getting a confirmed, diagnois for O at 4 years 8months. So when it came to T started at 18 months and pushed and pushed and pushed....fianlly he was dianosed at 2y 5m. Still pushed to get proper care now.... Quote Share this post Link to post Share on other sites
Hectorshouse Report post Posted October 1, 2005 T was not dx'd until age 9, all his problems before were put down to his chronic glue ear from 6months to 6 years, the death of his father at age 4, poor parenting from me (I was called a refrigerator mother by one of his SENCO's ... witch! ... I prefer microwave mom ...quick to heat up but doesnt usually last long, but show me a mum who doesn't have a short fuse when you've had no sleep for weeks, a child rampaging with extreme rage all through the house and self harming, and then everyone saying its your fault!!!) Early intervention would've helped T and us as a family, without the knowledge and now the understanding of ASD that I have gained since dx we would still be living in a war zone. What we have now is a different way of seeing and understanding T, empathy for his problems and now a greater understanding of myself and my AS, which wasn't dx'd until recently. HHxx Quote Share this post Link to post Share on other sites
madmooch Report post Posted October 1, 2005 My son was dx at 2yr 2mnths, but i was voicing concerns to anyone who would listen ( HV, Dr etc.) from when he was a baby and i kept getting "he's just a bit slow he'll catch up in the finish i kept getting Oh no not her again looks But my HV was very good and did refer him when he was 18mnths. Clare Quote Share this post Link to post Share on other sites
Lucas Report post Posted October 1, 2005 I overheard that I was Autistic at the age of ten, my mom objected to it and the diagnosis was officially AS when I was about 11, despite the speech-delay I had. I don't know if I wanted my mom to do more or less, she doesn't seem to have cared all that much and has been in denial. She keeps citing all these non-verbal people she sees in her work as evidence that I am 'mild', yet refuses to accept my offer to meet them myself. She knows I've met all kinds of Autistic people they have names for among other developmental disabilities and she can't work out why my opinions about my Autism haven't changed one bit. No matter how much I explain it to her, it will never sink in. Quote Share this post Link to post Share on other sites
madmooch Report post Posted October 1, 2005 Lucas, I have in-laws like that They keep saying "he's only four, he'll grow out of it " I've given up trying to explain now, either they're too thick or they're in denial. Quote Share this post Link to post Share on other sites
niki Report post Posted October 5, 2005 my son was 5.1/2 i had suspicions from 2 years i had to fight to get him seen Quote Share this post Link to post Share on other sites
Tez Report post Posted October 6, 2005 Diagnosed with Semantic Pragmatic Language disorder at 5 but despite continuing concerns of more severe problems was not dx with AS. Dyspraxia, Sensory Integration Dysfunction and Prosopagnosia until the age of 12. Consultant's comment on diagnosis was, "My God, I'm so sorry, how did we miss this one his disability is so severe it should have been picked up years ago." Quote Share this post Link to post Share on other sites
alibaly Report post Posted October 11, 2005 Well my son was autistic from the time he was in the womb, things just felt different. Within minutes of his birth I expressed concern but was told I was imaging things, to me his eyes just did not look right, had another paed come and look at him and was told the same thing. By the time he was 12 months old I was telling people he was autistic , I'd known for months what was wrong but kept it to myself as I knew people would just pooh pooh me. When he was 15 months old I told my HV, she was a friend and said, "if thats what you think then it must true." Thereafter followed 3 years of hell on earth to try and get a diagnosis but I now understand that our doctors just didn't have the exposure to autism to be able to make a diagnosis. I wish they'd told me that though instead of trying to hide it, call me an over concerned mother and suggest I get a job One even told me, "I have a friend in Birmingham, his son is autistic and your son is nothing like him, he's not autisitc in any way at all." and of course my sons good eye contact was another thing they beat me over the head with..........######! I told them I could understnd there attitude if I was going into their office and saying, "I think my son is autistic, please make it not be true." Instead I was telling them of my concerns and asking them to agree with me just so I knew what we could do next. I could weep even now, that bit still hurts. Anyway one day my husband had enough and kicked up a big fuss, well truth be told he'd had enough of me going on and on as he didn't want it all to be true. Within days a letter was on it way to Lorna Wing and within 3 months we saw her and Judith Gould. The diagnosis was Classic Kanners Autism at the more profound end of the scale, she said it was so obvious she knew within one minute of us walking into Elliot House The visit was funded by my husbands employers who had been told by the station doctor that I was quite ill with the stress of it all and that something had to be done. My husband, lovely man that he is knew deep down inside that something was amiss he just wasn't ready for the diagnosis, he tells me that when we went for the diagnosis he really did think we'd get told our son was tongue tied or something. I know this paras a bit jumbled but just as a write one thing something else comes to mind. Anyway here we are, my son is 14 and a half now and has come on in leaps and bounds, he'll always require round the clock care but he has a life of great quality. He manages his day, he is very independent all things considered and never stops talking. He can manage sentences of to 8 words and now strings loads of sentences together, he can even fight with his brothers and sisters, thats not bad at all for a boy who didn't speak at all until he was 9 and a quarter. Quote Share this post Link to post Share on other sites
jewels Report post Posted October 24, 2005 always thought my son's behaviour was a little quirky and ecsentric and some of the things he said would be considered rude but just accepted that he was a terror and tried to tell him off. He was born 9 days late and weighed 9lb 2oz (im 5'1) big but healthy but after nearly every mth with chest, ear or throat infections, he was seen by yet another Dr. but he was a locum and noticed my son has a murmur and was sent for tests. He had a hole in the pumping chamber and narrowed arteries and had to have open heart surgery when he was 4yrs old. This was an awful time and Liam was very distressed by the fact he couldn't move out of his bed as he was attached to all the drips and machines, so we thought it was that he was scared and angry of. He loved nursery but used to run off or hide or scream when it was time to go home, he was clumsy and funny and would watch TV all day, all evening and would get up at 2, 3, 4am to watch his beloved fox kids, we ended up getting rid of SKY and he soon got the message. It was in p.4 at his other school that decided he needed "checked out" as his teacher was unable to control his odd behaviour and i was told he was totally unteachable. He talks in character voices especially shrek and donkey but he was using these voices in class as well. Also when he was told to write a story based on a book they had read, Liam would write a totally different story out of his head, but when the class is supposed to do any kind of written work, Liam would just doodle of have a wander or do 2 lines and stop. When he got rewards and certificates he would shout, clap, spin round, sing etc... His teacher cracked up a week or so before end of term and told my son that he was lucky it was near the end of term or he would have expelled him, Liam was devastated and didnt want to go back to school, it could take me over an hour to try get him ready as he just didnt want to go. Anyway, we changed his school after term as it was obvious that they could not cope with him and found another school 5 mins away and he is like a different boy, so much happier and can't wait to go in the mornings (well some mornings anyway) We saw his teacher last week who told us a few things that Liam has difficulty with (any kind of change, if something is not right, if teacher forgot to do weather chart in morning etc..) His teacher also said that he would be having a support teacher and an educational psycologist (whatever that is) I had went to my GP about 8 mths ago about his behaviour but he was no good and told my son "your getting too big to make those noises so start behaving". Afterwards, as i was taking him back to school he turned and sighed so i asked wots wrong, he said " I dont know if i can do it" i asked him what and he replied " live without shrek and donkey for the rest of my life" and burst into tears. Poor wee sausage We saw a school nurse in may who made an assement and refered us to childrens communication clinic, she was the 1st person to see him. Got that through28th sept. to go on the 30th sept We went there no knowing what to expect and left there 3.5 hrs later with an Aspergers diagnosis and a few leaflets They were the 2nd people we've seen. Then his teacher (who gave us more info on AS than the "Docs" Waiting to speak to education psycologist so hopefully know better soon Apart from that i have only this forum to get info from "real people" (who really know what it's like) Take care Julie xxx Quote Share this post Link to post Share on other sites
Malika Report post Posted October 25, 2005 Hi to all I DX my son at 5 but by the time I got the prfessional interested his formal DX was made when he was 7 Since he was 3 something was definitly not right he could not develope speech in sentence properly but after all the mess in the family life I thought it would get better, at 4 he had speech therapy at 5 he was monitored by the school but nothing was done, at 6 he was put on the SEN list for school action and refered to the mental health unit at 7 he was DX with ASD and put on action plus by the school. Malika. Quote Share this post Link to post Share on other sites
baileyj Report post Posted October 25, 2005 Maxs problems became evident at Playgroup at 2.5, he didn't settle in like the other children or learn or communicate. I didn't know how behind he was until I was at playgroup with him, and could really see the differences, what I thought was normal, clearly wasn't. Playgroup leader and I talked about it, and thought Autism. HV Referred us straight away to Paied at CDC, started assessment when Max was 2.10, dx at 3.2. Early DX good, in that got speeach therapy, portage, OT etc etc, but, as Max not of school age, its been really hard to get support in playgroup, then nursery. Lots of assessments, panels with money people, you doing all yourself. Then all through nursery last year lots more assessments and statementing. Now Max started Reception in same school as nursery its fantastic and its taken alot of pressure off. We are really lucky Maxs mainstream school are very supportive, very experienced in SEN, and a small village school. Jo Quote Share this post Link to post Share on other sites
madme Report post Posted October 25, 2005 Son dx adhd, ODD, Dypspraxia and asd tendencies aged 6 years 3 months. 6 months earlier private assessment had suggested that had developmental dyspraxia. Referred as part of statementing process to specialist centre and 2 years later, so 8 was dx as ADHD, Aspergers and dyspraxia ie they removed the ODD diagnosis. Daughter is 4 and on a 2 year waiting list for an asd assessment following referral by paediatrician at age 2 for supsicions of dyspraxia. That was ruledout but at follow up paed thought she had some social comm issues and so recommended assessment. So if she does get a dx she will be at least 6 or nearly 7. If the waiting list is so long then no chance. Local HV useless and just told me my son was clever and to forget about asking for a referral. I really feel for those who have children who have to wait so long who really need access to SALT Quote Share this post Link to post Share on other sites
smiley Report post Posted October 25, 2005 M was finally diagnosed at 6 (AS), but it was one hell of a battle. o - 1yr; i didn't have many concerns, just a 'feeling' that all wasn't right. But M was born at 30 weeks - emergency section, so i and the HV put it down to prematurity. 1 - 2yrs; I was begiining to worry - he didn't react the same way as other children - again, i counldn't put my finger on it....but i was getting concerned. HV said - "He's just like your brother" - yup, She was MY and my brother's HV!!!! so needless to say - not too helpful. 2 - 3yrs; Major problems at pre-school. They dragged in same old HV......"just like his uncle.." I asked for more help - not provided 3 -4yrs; I finally left my abusive partner - horrible time for me and M . And the reason for his behaviour according to the HV..... 4 -5ys; School...School Action immediately - School Action Plus within a term.....at this point i began to shout/scream/throw a paddy... 5 - 6yrs; Finally getting assessed - Diagnosis at 6yrs 6mnths..... 6yrs plus..........hmmmm, where's the cavalry??? Quote Share this post Link to post Share on other sites
stressed out mum Report post Posted October 25, 2005 I think that my son was diagnosed at ten although all the psyc said was that it's time we gave him a label! He had always been slow walking, talking etc when I picked him up from playgroup he would quite often run into the road and throw his coat off but I thought he was just being naughty. When he was at infant school I was told by the head that he was the worst behaved child in the school which was when I took him to GP and was referred for help. School got even worse and the head more or less bullied him and I was met at the school gate daily by his teacher and told what he had been up to that day. All this happening in front of the other parents We also found that he was blamed by the other children for things which he hadn't done, and also punished for them because the other children were believed over my son. It wasn't until he changed schools that anyone gave him any help rather than finding fault all of the time. The time that is lost when a child is not diagnosed early is criminal not to mention the bitterness it causes . Quote Share this post Link to post Share on other sites
jewels Report post Posted October 25, 2005 I agree with the biterness statement as i think the teachers could see that there was something wrong when he was in p.3 when he was 7 but nothing was done, we battled all through p.4 with him getting into so much trouble and getting bullied and blamed but because he was regarded as a "problem" they wouldn't take him or me seriously. It was only 3 wks ago when he was 9 yrs 6mths that we eventually had an "explanation" and was given the diagnosis as Aspergers. P.S still waiting on ed pysc getting in touch Just take each day as it comes Julie <'> Quote Share this post Link to post Share on other sites
DiabolicalSpoon Report post Posted October 27, 2005 I don't have any kids to be diagnosed, but I wasn't until I was 13, 5 years ago. Quote Share this post Link to post Share on other sites
lisann Report post Posted October 28, 2005 Hi all Char was 3 when he got a dx but we had concerns from 12 months. Lisa x Quote Share this post Link to post Share on other sites
Clarkie Report post Posted October 29, 2005 (edited) oh, how I wish it had been sooner. Problems overlooked and discounted by teachers, health visitor, school nurse and ed psych throughout primary school. Clarkie Edited March 17, 2006 by Clarkie Quote Share this post Link to post Share on other sites
oxgirl Report post Posted June 8, 2007 I had suspicions very early on but it wasn't until he was 2.5 to 3 that I started to get very worried indeed. Couldn't find anyone to talk to about it though and when he was very little people used to just brush me off. Had significant probs at nursery at 4, and the process was begun then, but it wasn't until he start in reception class, and all hell broke loose, that people started to really sit up and listen and a diagnosis and statement were both forthcoming. All in all, though, we didn't have to wait as long and fight as hard as many people do. ~ Mel ~ Quote Share this post Link to post Share on other sites
di30 Report post Posted June 8, 2007 Hi My son was 12 in January and he is due for his diagnosis by hopefully this month. (ASD - Aspergers syndrome). When he was 4 the school he was attending then were concerned about him being a lot different to other children of the same age group and with our permission and their support they referred him to a Child psychologist, she only seen him the once and said he was just immature and will grow out of it !!!!! (yet what did she expect at that age) ??? We then moved house when my son was 5, he attending the new local school who didn't help in any way and they just said the same, he will grow out of it ! It was only when he was 11 we raised these issues and was pointed to the right direction from a friend who was in the same situation that we are finally dealing with it, so he has been under the child paediatric (physician) since last August, and in Jan 2007 she referred him to CAMHS who will deal with the d/x as informed, so hopefully this will be anytime in the near future. Cheers. Quote Share this post Link to post Share on other sites
Wicce Report post Posted June 8, 2007 My son was diagnosed just before he turned three. He was already attending a children and families centre and they picked up on it, although they weren't allowed to suggest it to me, they had to wait until I said something (surely this must delay early intervention???). Once I did bring the idea up they were incredibly supportive. Not long after that we went to the Sick Kids and got our diagnoses, and then a special needs placement in a nursery, and on to a language and communication unit attached to mainstream primary school. We've been very, very lucky. Quote Share this post Link to post Share on other sites
lynda4 Report post Posted June 8, 2007 I voted for ds2, who was diagnosed officially at age 9. I knew he had a problem from birth but it took me all that time to get a diagnosis as no-one knew anything about Aspergers then (he's 22 now). I was going to vote for the other 2 of my children who have a diagnosis but it wouldn't let me. DS3 was diagnosed with AD/HD and some autistic traits when he was 11 and dd was diagnosed as being on the spectrum aged 4, though we had a good idea by the time she was 2 1/2. Quote Share this post Link to post Share on other sites
madme Report post Posted June 8, 2007 Well as predicated in my reply in October 05 DD =6 was dx Aspergers recently. We were lucky - another family waited 4 years for diagnosis. Gosh its weird to re-read my comments two years ago re daughter. Quote Share this post Link to post Share on other sites
caren Report post Posted June 9, 2007 K dx was 3 years old Quote Share this post Link to post Share on other sites
Deedee Report post Posted June 9, 2007 M was finally Dx at 6 although I knew at 2 that he had some form of autism Gettin anyone to listen was a different story,much the same as everyone elses on here sadly..BUT things do seem to be looking up now for younger kids by the look of it so many now have a diagnosis early and it does often help make a difference I treated M as if he was and did all the early intervention stuff I could (most people round here thought I was nuts INCLUDING the school ) I even have a letter from the Headmaster for M's statement assess stating 'Mrs X states that M has autism but there is no evidence submitted to back up this 'theory' ' LOL did I wave my Dx at him when we finally got it!!!!!!!! Quote Share this post Link to post Share on other sites
wilson Report post Posted June 9, 2007 Hello, Harry was diagnosed at seven. My friend's child is thirteen and still undiagnosed and my sister's daughter was not diagnosed until after she left school. Quote Share this post Link to post Share on other sites
bikergal Report post Posted June 11, 2007 Dd1 got her first label at 11, but didn't get 'proper' diagnosis of ASD until she was 12. Quote Share this post Link to post Share on other sites
Pippin Report post Posted June 12, 2007 I remember taking P for his MMR at 15 months and saying to my husband "well, we wont be able to blame MMR cos he's autistic already". He was referred for speech and language delay at 2 but even then people were saying that when he eventually learned to talk he'd be "normal". We, of course, knew otherwise. His ASD diagnosis was at age 6 but he was well "in the system" by then and its made no difference to his SEN provision. I do think it makes him easier to explain to others though.....one word is easier than a full paragraph. Quote Share this post Link to post Share on other sites
LizC Report post Posted June 13, 2007 Hi Matthew was dx at 5 with asperger syndrome and at almost 7 with ADHD. we also suspected something though right fomr an early age. still I see Matthew's dx as an early one and fortunate to get one at such a young age as most As children don't get a dx till later. I recognised the symptoms as my grandad was AS and have friends with AS. Quote Share this post Link to post Share on other sites
Shnoing Report post Posted June 15, 2007 Our son was 2 when diagosed but we only went to the diagnostic centre because my wife had had some lectures concerning autism at university. The two of us are (still) undiagnosed although both of us are well over 6 . Quote Share this post Link to post Share on other sites
Vix Report post Posted June 15, 2007 I had concerns about DS2 from about the age of 15 months. He didn't respond to us at all and was in his own world (we could have left him alone for hours and he wouldn't have noticed!) I kept asking friends and family what they thought and they thought he was fine, but I knew deep down he wasn't. DH finally admitted that there was definitely something wrong there, that he seemed "detached" He was nearly 2, had no speech at all (apart from saying Oh Dear a few times) and didn't understand anything we said to him, so I phoned the HV to ask about the 2 year check. They sent the questionnaire out and arranged to see him. I had to tick no to everything on the questionnaire, he couldn't do anything. They referred him straight away to the paediatrician. She saw him the same month, when he was a month off his 2nd birthday and said he had a social communication problem. She recommended a special needs playgroup, which he started when he was 2yrs 5 months, and then when he was 2.5 he saw the paed again and the diagnosis was Social Communication Problem on the Autistic Spectrum. I had loads of help fromt the playgroup, the paed and the Earlybird course. When I read about what some people go through with getting their child diagnosed it makes me feel very lucky that I was helped so much. I was really amazed at how quick they handled it, referring him and diagnosing him and everything. I suppose it was very obvious with him really though. He's 5 now and has only just started talking and understanding more and is doing fab at his special school. Vicky xx Quote Share this post Link to post Share on other sites
SallyAspie Report post Posted June 18, 2007 No kids yet so I can't check one of the boxes but I was dxed last year at age 30 (after a clinical psychologist told me I couldn't have AS due to the fact that I was working). Quote Share this post Link to post Share on other sites
Dummie Report post Posted June 18, 2007 My DS Aidan was diagnosed last week. He is nearly 2.5yrs old. I had concerns when he was around 12mths old but no body would listen to me. We moved to another county 4mths ago and our HV picked up immediately that something wasn't right. Below were some of the earlier concerns. 1) he was absolutely silent. No crying. No babbling. 2) no pointing, waving etc 3) no eye contact 4) hand leading 5) will sit in the same spot playing with the same toy pressing the same button for over 45mins 6) didn't interact with us 7) seemed like he was in his own little world and had cut off the outside world 8) not seeming to understand what we were saying 9) ignored us most of the time so seemed 'deaf' at times 10) would become so obsorbed with particular toys that it was very hard getting his attention He is making progress and he now shouts, screams, babbles (no talking yet). I've been working very hard on getting him to be more vocal and it's definitely paying off. I'm now working on eye contact and he's picked it up really quickly. He still hand leads but because we've worked on the vocals and eye contact he will do those as well. He's also pointing (a funny kind of point) and will wave now. We practice all these things ALOT! With the progress he's made so far with me I'm very hopeful that now we've got the right people in the loop he'll come along leaps and bounds. Quote Share this post Link to post Share on other sites
shortie Report post Posted June 18, 2007 Dummie, i thought i was reading about my DD there!!She was just the same at 2.5yrs!!Concerns were raised by me when i started her in playgroup at this age,she had always been differant but i couldn't put my finger on the problem,then i remembered what my friends cousin was like at her age(severe autism) and a light bulb came on!!so i raised it with playgroup leader and she sgreed there was a problem!this was October 14th 2005(age 2.8yrs),she was dx April 11th 2006(age 3.2yrs) and shes come on leaps and bounds!At dx she only said 3 words,she now says whole sentences,will still do taking me by the hand but 99% of the time will ask for what she wants eg. milk please! hasn't mastered "i want" or "can i" as yet but we're getting there!!She attends a nursery at special needs school and is starting reception in sept and they are wonderful!!She's mastered Makaton(far better than me) and also uses pecs which i highly recommend!! So with early intervention things really can improve!! Quote Share this post Link to post Share on other sites
Faithnomore Report post Posted June 19, 2007 My DS Aidan was diagnosed last week. He is nearly 2.5yrs old. I had concerns when he was around 12mths old but no body would listen to me. We moved to another county 4mths ago and our HV picked up immediately that something wasn't right. Below were some of the earlier concerns. 1) he was absolutely silent. No crying. No babbling. 2) no pointing, waving etc 3) no eye contact 4) hand leading 5) will sit in the same spot playing with the same toy pressing the same button for over 45mins 6) didn't interact with us 7) seemed like he was in his own little world and had cut off the outside world 8) not seeming to understand what we were saying 9) ignored us most of the time so seemed 'deaf' at times 10) would become so obsorbed with particular toys that it was very hard getting his attention He is making progress and he now shouts, screams, babbles (no talking yet). I've been working very hard on getting him to be more vocal and it's definitely paying off. I'm now working on eye contact and he's picked it up really quickly. He still hand leads but because we've worked on the vocals and eye contact he will do those as well. He's also pointing (a funny kind of point) and will wave now. We practice all these things ALOT! With the progress he's made so far with me I'm very hopeful that now we've got the right people in the loop he'll come along leaps and bounds. Dummie from MSE? I've followed your thread on there, nice to see you on here(nikki on mse). AJ was 11 when he finally got his diagnosis of mild autism. We knew by the age of 2 something wasn't right, and with hindsight it was evident from birth. He was dx with ADHD aged 7 but I knew they were still missing something and that wasn't the full picture. Another 4 years of trying to tell this to CAHMS and finally we got there. Quote Share this post Link to post Share on other sites
Dummie Report post Posted June 19, 2007 she was dx April 11th 2006(age 3.2yrs) and shes come on leaps and bounds!At dx she only said 3 words,she now says whole sentences, She attends a nursery at special needs school and is starting reception in sept and they are wonderful!!She's mastered Makaton(far better than me) and also uses pecs which i highly recommend!! So with early intervention things really can improve!! Shortie - can you tell me what made you decide to enroll in a special nursery rather than mainstream? Also, with early intervention - what did this include? I'm feeling defeated at the moment because we saw the SALT today who said there won't be any 1-1 sessions (posted in another thread). Thank you. Quote Share this post Link to post Share on other sites