Some Professionals know nothing!

[Steve_colour-se7en]

Hello everyone,

 

While using other forums I have found that a great many professionals out there still don't understand, for instance here are just a few unbelievable replys by these so called professionals when seen by a person with AS.

 

"why would you want to be diagnosed with that for?"

 

"Asperger's can be like Depression, sometimes you just 'think' you have it.."

 

"Asperger's is only a kid's thing, it's a pretty meaningless thing to diagnose an adult with."

 

"You don't have Asperger's Syndrome, you make eye contact."

 

"Asperger's Syndrome? What's that?"

 

With remarks like these it is no wonder it is a constant uphill battle to create and promote awareness, it's unbelievable that comments like these are made, the sad thing is these are made by so called professionals - who I may add seem to know more and more about less and less, untill eventually they will know sod all.

 

 

Steve..

 

 

I think the boy means well but he is distinctly inclined to be inattentive......

Tutor of Winston Churchill to Lord Randolph Churchill,

Winston's father

[OPooh]

I've heard alsorts of tosh on the road to get "professionals" to listen to me that he has it - and that's with a degree in psychology.

 

The best is when his teacher said that I "condition" him to say he's being bullied(different school than he's at now) because he gets attention from me asking "did you have a good day at school?"

[phasmid]

OPooh, didn't you realise you're not supposed to show an interest in what happens at school! Of course by asking him what sort of day he has had you run the risk of him telling you about it....Doh!

[asereht]

The best is when his teacher said that I "condition" him to say he's being bullied(different school than he's at now) because he gets attention from me asking "did you have a good day at school?"

 

 

 

When my son was 10 ( he's 15 now)and in primary school I was told by his teacher that I was asking too much about his day and that when he comes home with any complaints I shouldn't be listening to him moaning and telling tales!!

 

Needless to say I didn't follow that piece of advice.

 

T

[Paula]

Worst bit of tosh i was ever told was when my As son was haveing so called speech therapy.

 

The speech therapist would come to our house as at the time he wouldnt leave the house without a meltdown taking place.

 

 

She told me that no wonder my son had communication difficulties what did i expect when i spoke with a broad yorkshire accent !!!!!!!!!!!!!!!!!!!!!11

 

 

Im assumeing then french children dont speak because they dont understand french,or geordies,scots, or the welsh

 

I chucked her out and said she was talking tripe.I never bothered with speech therapy againe.My son communicates just fine in his own aspie way and with a brill yorkshire accent eeee by gum !!!!!!!

[Jill]

"Asperger's is only a kid's thing, it's a pretty meaningless thing to diagnose an adult with."

 

"You don't have Asperger's Syndrome, you make eye contact."

 

 

I, for perhaps the first time in my life, am speechless.

 

She told me that no wonder my son had communication difficulties what did i expect when i spoke with a broad yorkshire accent !!!!!!!!!!!!!!!!!!!!!11

 

 

Now I am ROFL

 

I think that has to be about the funniest thing that I have ever heard. From this assessment one assumes that all Geordie children are completely silent (no offense to the Geordie's, it's an accent that I love to hear but cannot understand )

 

I must thank you tho Paula, this makes it ALL so much clearer. Obviously my son says very little because

 

Im a Derbyshire lass thru & thru. We're int middle of nobbut humps n hollers wi' ferrets in trews n flat caps on t'head me duck.

[darky]

there is ignorance out there for sure!! my sons senco said "i think the local consultant should set up an office here, seeing as theres so many children here dx with aspergers syndrome,,,,the parents take the child to the consultant and the consultant says T.....C.......d school, oh it must be aspergers" she really is the pits!!

[Tez]

The best is when his teacher said that I "condition" him to say he's being bullied(different school than he's at now) because he gets attention from me asking "did you have a good day at school?"

 

Must be something they teach them at training school. A's teacher at infant school told me this as well. I was told if he started to say anything negative about school I was to tell him I wasn't going to listen, I was only to respond and pay attention to positive comments.

 

We removed A from the school and shortly after that it was closed down. Frightening though that this level of ignorance still exists 10 years on.

[DaisyProudfoot]

From this assessment one assumes that all Geordie children are completely silent (no offense to the Geordie's, it's an accent that I love to hear but cannot understand )

 

How man Jill, divn't fash yasel man, yee divn't fash me wi taakin' leek that. It's canny knaain' yer leek us aal leek

 

Daisy

[microsoft_admin]

profeshinals know plenty but they dont know how to think in the mind set of an asd person

[OPooh]

Must be something they teach them at training school. A's teacher at infant school told me this as well. I was told if he started to say anything negative about school I was to tell him I wasn't going to listen, I was only to respond and pay attention to positive comments.

 

Yes it's out of date stuff called behaviourism. Mine was at infant school too

[slt101]

The speech therapist would come to our house as at the time he wouldnt leave the house without a meltdown taking place.

She told me that no wonder my son had communication difficulties what did i expect when i spoke with a broad yorkshire accent !!!!!!!!!!!!!!!!!!!!!11

 

Paula, this is disgraceful and as a SLT I am embarrassed. I can not imagine why any qualified SLT would say something like this unless it was said in jest.

[Zemanski]

always wondered why Com sounded like he went to Eton from the first word he uttered - I'm irish, Nemo's american, he learned to speak in scotland and has lived in Yorkshire since the age of 3!

 

obviously far too confused to speak proper english like what the rest of us do

 

Zemanski

[Ian Jordan]

As a professional (optician) my training in ASD and all other special needs is detailed below

 

none!

 

and currently standard courses have not changed

 

So don't be surprised if your optician has little knowledge

 

(I am running a post grad diploma course next year which will incorporate a VERY basic introduction to many special needs - incuding ASD - you cannot expect experts - but some knowledge is essential for all professionals)

[Paula]

I was gobsmaked when the speech terapist said it were me accent that caused him not to speak.

 

But beleive me she didnt say it in jest.She was a right stuck up snotty sod and i think it was kinda also meant as a put down.

 

I pointed out to her before chucking her out that if that was the case how come my daughter who was 4 at the time could hold a conversation like an adult and was speaking in sentances from an early age.Surely shed have not spoken either and just screamed because i spoke broadley.

 

 

She was a right sill cow.God did it feel good to say get lost go on get out me house.She was even that daft she asked if i wanted another appointment making.I said do i hell as like its a waste of ###### time.

 

 

Speech therapy works for some but i knew my son was capable of speaking and speech therapy with someone who aint a clue wouldnt help.

 

I bought a dog.That worked ###### wonders hed speak to the dog and through the dog in third person to me.It was amazeing.Unfortuatly he wouldnt take the dog for walks coz he hated leaving the house so we had to eventually get rid of it.But i replaced the dog then with a soft toy who againe he spoke through if that makes sence.

 

Hes a good if slightly odd little talker now.But sometimes he still only speaks through the same soft toy hes had all these years and i have to also speak through toy else im ignored.

 

 

Gods i feel daft at times communicating with a soft toy but it gets results.

[madmooch]

always wondered why Com sounded like he went to Eton from the first word he uttered - I'm irish, Nemo's american, he learned to speak in scotland and has lived in Yorkshire since the age of 3!

 

obviously far too confused to speak proper english like what the rest of us do

 

Zemanski

H speaks posh aswell and were mackems, I dont know where that comes from i think it's part of his autism, coming out with posh accents

My daughter NT says Marmmy(mammy) I havent a clue where she's picked that up

 

 

Clare

[OPooh]

As a professional (optician) my training in ASD and all other special needs is detailed below

 

none!

 

and currently standard courses have not changed

 

So don't be surprised if your optician has little knowledge

 

(I am running a post grad diploma course next year which will incorporate a VERY basic introduction to many special needs - incuding ASD - you cannot expect experts - but some knowledge is essential for all professionals)

 

But I would expect different types of profs to have different levels of knowledge - and his teacher I expect a bit more than someone like his dentist iyswim.

[ksasnic]

Blow me down with a feather.... what a bunch of totally moronic people they are (I cannot call them specialists) We had an appointment with the ADD clinic today and well the consultant said when I was saying that I was wanting a second opinion for Nicks Aspergers dx due to the fact that the so called specialist in my mind was next to useless.. and if he was supposed to be the one able to dx then why did he leave it to the speech and language person ? who also only seemed interested with what the school had to say about it !!! forget what he is like at home and out and about- that didn't seem to matter !! anyway the upshot was this consultant said that if they gave out dx to everyone who wanted one then in years to come we would have a lot of kids coming back saying why did you give me a dx when I am not aspergic ? hmm -(would they be there in the first place if there was no doubt???) I also said that the spectrum was a lot of things and yes Nick wouldn't be up near the autistic end but he would def be on that line at the high functioning end somewhere - its still enough to cause him problems though and then he said but we can't give a dx to everyone or we'd all have a dx's.. I said that then there are a lot slipping through the net then who need help but because they are not gauged to be near the consultants line at the time then they are deemed to be normal despite them so not being so... he refused to comment further..

 

Anyway I will post the upshot of the blasted meeting in another thread..

[lisa]

H speaks posh aswell and were mackems, I dont know where that comes from i think it's part of his autism, coming out with posh accents

My daughter NT says Marmmy(mammy) I havent a clue where she's picked that up

 

My two AS are both "posh" too. My 8 yr old calls her dad "father" and me "mother". They're both always coming out with long words or unusual sayings too. In the supermarket my son asked if we could buy some "pastry goods" He wanted apple pies!!!

 

Lisa

[Paula]

ksanic

 

God they make yer sick dont they.You wouldnt be there if ther wasnt a problem.God almightly.

 

 

Thing is and ive said this before there arent that many people so called self appointed proffesionals who actually know anything about autism/Aspergers and the subtle ins and outs of how this disorder presents itself.If the person doesnt fit the no eye contact,rocking ,untoucheable none verbal typical steriotype they only portray on tv drams then theres no way yure child can be on the spectrum.

 

 

 

Ive never had a diagnosis for my son.It was like banging yer head against a brick wall.No one was ever prepared to say yep hes Aspie.All i ever got was well hes not right but we cant say for certaine,or we need to give it a few more years ect ect ect................

 

In the end i wrote a letter of complaint to the health authority saying that my peadiatricain was a waste of time and that all hed done over the years was drag and parade my son around and go over the same old same old every time i went.Why couldnt he just say he aint a clue how to diagnose and refer me to someone who could.

 

 

That made them sit up specially when i insisted i had copies of all his medical records sent to me.Yes id to pay but so what.

 

Suddenly i received a letter form the peadiatricain saying in his opinion he was aspergers but he didnt want to label him.

 

I said right thats all i need.I said i aint comeing back to see yer no more or any other so clled specialist againe whats the point ultimatley im on me own with this.

 

I then concentrated on getting him special help in school and gaineing him a place in a specialist school.

 

All the teachers at his school said after speding time with him regulary that he was aspergers.I know he is,my son knws hes different.

 

For some a diagnosis is important and it opens some doors to other forms of help.But in the long run it changes nothing the behaviou is still the same you have to cope with.

 

It was being like let out of a nightmare no lolnger being involved with the gps,drs and hospitals.I could concentrate on doing the best for my son without and lets face it outside interfearence from at times people who havent a clue and make it ten times worse.

 

I hate the drs and the hospitals as you can tell.

 

 

 

 

Can i just also say that even without a diagnosis i receive dla and carers allowance.he is statemented for special education and got a place in a special school.

 

I think its important not to get too hung up about chaseing a diagnosis because it just wears you out.It did me.

 

Plus i didnt want my son as he cgot older and more aware to think i was looking for a way to put him right and that i wasnt happy with what id got.Because i wouldnt change him for the world.

 

Its ignorant peoples attitudes that need to change towards all forms of hidden disabilities.

Edited January 26, 2006 by Paula

[Jill]

How man Jill, divn't fash yasel man, yee divn't fash me wi taakin' leek that. It's canny knaain' yer leek us aal leek

 

Daisy

 

 

Daisy - I hope that means that you did not take umbridge at my comments

 

Paula - it sounds to me like to you are doing exceptionally well without the help of some of these so-called professionals anyway!

[madmooch]

My two AS are both "posh" too. My 8 yr old calls her dad "father" and me "mother". They're both always coming out with long words or unusual sayings too. In the supermarket my son asked if we could buy some "pastry goods" He wanted apple pies!!!

 

Lisa

My daughter also says Yar for yes

 

I think they've been took over by ALIENS

 

Clare

[ksasnic]

Crazy thing is - all I want to know is what are my sons problems so I can help him... i don't care about labels as much as other people do, I mean if a pot is a pot you say so if my son is aspergers then he's aspergers.. it won't in effect make me treat him any other way but it will make me be able to help him more effectively. Theses drs all they are concerned with is the I don't want to label them... or as I said to Nicks consultant this morning its all about the f word - he looked at me oddly then I said funding... it seems to be a case of we can only dx xamount with the condition as we only have enough money in the pot for that many plus our spare change for that extra neccessary dx.. and everyone after that we'll try and string out till the next funding year...- he wouldn't comment until I said we both know its the case but unfortunately one of us cant admit it ! this got a smile from him...it always has and always will be about money... if the moneys not there for the support then no dx..

grrrrrr

[microsoft_admin]

profeshinals are just silly