Valiant_Skylark Report post Posted February 28, 2006 Zemanski Thanks for pointing out that "red ears", if they blister like mine (and itch like hell), can be very painful, distracting and make one downright miserable. I'm so glad I know "why" now. I'd have hated to go my whole life without having a way of controlling the pain and discomfort. My skin reactions have been pretty severe at certain times of my life and I'm glad my GP sent me to a specialist as these reactions DID impact on MY life... BIg Time. I had to change degree courses and jobs because of them, for example. On a more personal level, it's not, for example, too "cool" to have to dunk one's head in a sink full of icy water (to take the pain of the blistering away) after an evening meal out, when one would rather be "getting to know" the boyfriend!!! I guess what I'm trying to say is that if your child has a very adverse reaction like mine, it may be worth taking the red ears seriously and get help to see what may be causing them. If the red ears are merely "decorative" and your child has no other symptoms that cause you (or him/her) any concern then just use them as "mood indicators" or whatever and be done with? One caveat. I do think the point that there may be more "damage" being done "inside" than might at first appear is a "possible". I got more and more extensive symptoms as time went on, some of which reversed when eventually off casein. Re gagging with mashed potato: Our OTs suggested having a supply of ice cubes which could be given out and chewed up prior to the problem food being attempted. The idea is that the ice cube will desensitise the mouth and make throwing up less likely. We gave this a go and eldest son can now eat more foods than he could before (eg boiled spuds) but mash is still left on the plate. Worth a try though? Finally, as it's Shrove Tuesday... We tried out the following receipe for GF/CF pancakes/crepes and they were fab: 125g/4oz Doves GF flour pinch salt 1 large egg 300ml/10fl oz rice milk sunflower oil for frying Just bung it all together and whisk by hand. Fry like any other pancake. Top with whatever you like. Yum! VS xx Quote Share this post Link to post Share on other sites
Flora Report post Posted February 28, 2006 You should not take it personally. If you know yourself how hard you are trying to help your child what anyone says should not bother you. I meant only to evoke some feelings in those who were teetering on trying the diet but felt it too hard. So again I apologise if you feel wronged. I really am very blown away with the changes in my son so I guess I am like a born again GFCF convert. My son is very little and I guess I have so much more control over him right now that I will have in the future. Much Love xxx Ok, I know already that I'm going to regret this. I know that I should go away and bang some pans about in the kitchen or something instead of typing this, but I'm not going to. I'm sure you really genuinely believe that you meant no offensive, that what you said wasn't personal; and I'm also pleased for you that you are delighted with the results of this diet. However, first of all what you said WAS personal. You specifically directed it to those on this thread who had voiced reservations about trying out illimination diets for whatever the reason. Do you have any idea how hard it is for people to admit that? I myself am fully aware that at least one of my children MIGHT benefit from illiminating certain things from their diet; I'm also aware that I felt comfortable and secure enough on this forum to admit that I didn't feel ready for it yet. You say you meant no offense, however in your original post you specifically stated that you were aware that it would probably cause offense. It's worked for your family. Fab, I'm pleased for your child that the diet has made their life better, and yours. But there are specific forums for people who want to congratulate each other on achieving something that at times appears as daunting as climbing Mount Everest to me. I don't want to row with you (although I'm certain it probably appears that I do) , but I would never ever ever critisise someone for NOT doing something that I myself have done. There are many interventions that I have tried with my boys and have had huge success with; I would share my experience but NEVER would I suggest that someone was lazy, or can't be bothered, just because they don't for whatever reason feel able or want to do the same as me. I love this forum; it has been an absolute god send in so many ways for me and I came accross it at a time when I couldn't have been more in need. I do not come here to be patronised and lectured. I come here to give and recieve advice, and sometimes to have a laugh. I'm sorry to everyone that I felt strongly enough about this to post such a response, I know how much this forum is prided in not being argumentative; but I do feel strongly about this. Not the diet, but the principle of the whole issue in this thread. Lauren Quote Share this post Link to post Share on other sites
on the edge Report post Posted February 28, 2006 I love this forum; it has been an absolute god send in so many ways for me and I came accross it at a time when I couldn't have been more in need. I do not come here to be patronised and lectured. I come here to give and recieve advice, and sometimes to have a laugh. Lauren You seem to be taking this very personally as you obviously feel very bad about not doing the diet..and that is indeed up to you - But should everyone not talk about it so you dont feel any worse about your decision. We are all working to the same goals - and there are still many areas I have to work on with my son. I am not out of the woods yet- as it is not all about diet is it. I still do not think what I said was offensive - just knew that people like you would get all knarked off about it. And I think that my input on this particular thread is done - as I am getting tired of my own voice blabbing on about the same subject.. So good luck with everything..and thanks for your congratulations - I will take them at face value- coz I deserve them for working so hard at my particular problem Quote Share this post Link to post Share on other sites
Flora Report post Posted February 28, 2006 (edited) Lauren You seem to be taking this very personally as you obviously feel very bad about not doing the diet..and that is indeed up to you - But should everyone not talk about it so you dont feel any worse about your decision. We are all working to the same goals - and there are still many areas I have to work on with my son. I am not out of the woods yet- as it is not all about diet is it. I still do not think what I said was offensive - just knew that people like you would get all knarked off about it. And I think that my input on this particular thread is done - as I am getting tired of my own voice blabbing on about the same subject.. So good luck with everything..and thanks for your congratulations - I will take them at face value- coz I deserve them for working so hard at my particular problem No, I don't feel bad about not doing the diet. I have nothing to feel bad about. I welcome discussion about anything, I just don't want to be insulted and patronised. My beef wasn't with the subject, it was with your smug comments about people being lazy and 'can't be bothered' etc. As for people like me 'getting all knarked off about it'..... well by that I suppose you mean the NONE SMUG variety of people. Maybe I have taken this one badly. It's actually not like me at all to react so strongly to such cr*p. But I think we have enough out in the real world to deal with without having to read similar rubbish on what is supposed to be a support forum. Now I'm well and trully done with this thread. Edited February 28, 2006 by Lauren Quote Share this post Link to post Share on other sites
redberry Report post Posted February 28, 2006 erm..... I am a relative newbie. I am a mother that is not quite teetering on the edge but seriously thinking about th gf/cf diet, for my boy. I do oftern look for the way of least resistance...some people would interpret that as lazy and thats fine with me I certainly wasn't offended or made to feel patronised or any other negative thing reading this thread. Im interested in it. I have grown to love this forum, not just for the feel good fuzziness but the edginess too. The support is tremendous and the laughs fab <'> Please don't stop people feeling that they can't have their say (ofcourse it must be with in the guide lines for this forum). redberry Quote Share this post Link to post Share on other sites
Flora Report post Posted February 28, 2006 redberry, I wouldn't dream of ever trying to stop someone from having their say. Sorry if it came accross like that. I really don't want to make anyone feel uncomfortable and if that's what I've done then again I'm trully sorry. I guess I may be sensitive; but I still stand by what I said. Lauren Quote Share this post Link to post Share on other sites
bid Report post Posted February 28, 2006 Guys <'> One of the greatest things about our forum is the fact that for the most part we are all supportive, understanding and tolerant of each other. We all know that some things can be very emotive in our lives with ASCs, which is why we try to be respectful of each other's choices. Let's take a deep breath, here <'> Bid <'> Quote Share this post Link to post Share on other sites
av16 Report post Posted February 28, 2006 My son (8) is always really hot and sweaty- really sweaty and always has been, I can't say I've noticed his ears being red but I'll look out for them now. At school they noticed how hot he gets and when they see he's starting to lose it they send him out to get an ice pack and quite often it calms him down.. Quote Share this post Link to post Share on other sites
call me jaded Report post Posted March 1, 2006 Night sweats, by any chance, av16? Quote Share this post Link to post Share on other sites
av16 Report post Posted March 1, 2006 Night sweats, by any chance, av16? Yes, he always has damp hair when asleep and as he has spent so much time in our bed I know it makes me feel uncomfortable so I don't know how he copes. He never likes to wear too many clothes and never has anything on his feet at home and doesn't seem to feel the cold other than when he gets up in the morning. Me and his sisters are always cold & he can't understand it. Quote Share this post Link to post Share on other sites
Stephanie Report post Posted March 3, 2006 Gosh did I provoke that ...? Ha ha! My boy has such a fear of trying new foods it is unreal, he is limited to about 10 things and I only just got him eating bread so that he could have sandwiches at school. He doesn't seem to suffer anything apart from the odd red ear. I am hoping that his food/eating will get better as he gets older, in which case I will give the diet a go. Someone in here needs a Horlicks (is that gluten free? ha) Quote Share this post Link to post Share on other sites
on the edge Report post Posted March 3, 2006 Gosh did I provoke that ...? Ha ha! My boy has such a fear of trying new foods it is unreal, he is limited to about 10 things and I only just got him eating bread so that he could have sandwiches at school. He doesn't seem to suffer anything apart from the odd red ear. I am hoping that his food/eating will get better as he gets older, in which case I will give the diet a go. Someone in here needs a Horlicks (is that gluten free? ha) Thought you might find this funny too "When some children start sliding into autism they modify their diet, becoming picky eaters. They limit the foods they eat and consume them to excess. The foods they crave are the very foods causing the mischief and their menu often reads: milk, bread, pasta, chicken nuggets, and yoghurts. This is usually in sharp contrast to the normal diet they enjoyed from birth. In addition these children can also display many physical problems such as: ? Breaking wind frequently Red face and/or ears Pale skin/pasty face Giggling/screaming for no apparent reason Eats non-foods e.g. earth, sand, paper, soap Excessive sweating, especially at night Craving/dislike for certain foods Inability to control body temperature Dark shadows under the eyes Allergy in the family (Asthma, Eczema, Hay fever, Migraine) Gut disorders in the family Allergy in the family (Asthma, Eczema, Hay fever, Migraine) Inability to control body temperature Craving/dislike for certain foods Bloating Swollen tummy Diarrhea Constipation you can read the rest of this here http://www.autismmedical.com/symptoms/?selected_menu=0 Quote Share this post Link to post Share on other sites
lancelot Report post Posted March 3, 2006 Interesting list, OTE, thanks for that. Comparing my own son © against it, though, I can only pick out two or three things that fit him (thought there were more, but did yuo realise the same ones are listed more than once?). He's certainly pale with dark rings round the eyes, but then he lies awake half the night worrying, so no surprises there. He never had a 'normal' diet! Even resisted breast milk for the first few days, and was appallingly difficult to wean, well before he'd had a 'diet' at all. He eats the same things all year round, yet on holiday from school he's an utterly different child from his school persona -- relaxed, chatty, far fewer stims and mannerisms, more open to change. On balance, I doubt that the main problem is diet in his case -- if I feel guilty over anything, it's over my decision not to home-ed him. But I'm following all the info in this thread with interest, L Quote Share this post Link to post Share on other sites
on the edge Report post Posted March 3, 2006 I appreciate it is not for everyone - but worth looking into if there are relevant issues of course. I was interested that you mentioned home-ed as this is something that I have done a (very) little research on and it seems like a good option. Is it too late to change your child to change to home ed. My son is only little and I was thinking of giving him a chance at mainstream and bringing him out if he hates it too. I have seen on the forum that a lot of kids struggle with mainstream education...Of course I imagine it is fairly hard to set up-I dont know??!!! Quote Share this post Link to post Share on other sites
lancelot Report post Posted March 3, 2006 Hi OTE, No doubt home ed would suit him if he had a different mother -- but he's kind of stuck with the one he's got, and we're too alike to be good for each other. But if it comes to it, of course I would (doubt he'd learn much, and i suspect I'd crack up myself, but hey...) Hats off to those who manage it! Quote Share this post Link to post Share on other sites
on the edge Report post Posted March 3, 2006 Hi OTE, No doubt home ed would suit him if he had a different mother -- but he's kind of stuck with the one he's got, and we're too alike to be good for each other. But if it comes to it, of course I would (doubt he'd learn much, and i suspect I'd crack up myself, but hey...) Hats off to those who manage it! I would have never considered it if I hadn't read an article about it in a Sunday paper which made it sound so nice. It talked about home ed networks and group lessons etc...(probably a little harder to get ASD appropriate groups I suppose) Not something I know anything about yet. I kind of imagine it as fab days out to museums etc - but that is in my fairytale world of non-tantrums! You are right though - it would be v hard. I have also found that nursery has made a big difference to my son- he came home and said thank you when I gave him a drink and took his coat off himself after a few sessions at his local nursery.. I had tried for ages to get him to do that !!! Quote Share this post Link to post Share on other sites
Stephanie Report post Posted March 4, 2006 Yeah not so much funny, as interesting ... being newly dx, have not studied the food intolerance thing too much, although I know a couple of people that have tried the diet. Our Nutritionalist has never mentioned anything about changing the foods he eats or taking him off things, she is concentrating more on introducing new foods into his diet (which hasn't gone great, well he tried one new thing - bread!). Couldn't relate to many things on the list you gave, but certainly can relate to him liking bread, yoghurt and McDonalds chicken nuggets (no other brand mind). He likes a few other things, but nothing savoury. The only things I have ever seen him have an adverse reaction to is a smarties lolly that I bought him in a moment of madness ... he went completely do-lally for a couple of hours. Needless to see we have steered clear of anything similar ever since. Thanks. Quote Share this post Link to post Share on other sites
Melissa Report post Posted July 14, 2020 My grandson gets red hot ears. He always says “Look Nana, feel my ears they’re hot. That means it’s time for bed.” He is usual tired when this happens. Quote Share this post Link to post Share on other sites