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Paula

Might as well talk to a brick wall.

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:(

 

Ive been to the gp this morning.Shes a lovely dr and has known my son all his life but im pig sick of her today.

 

So has not to distress my son i took in a letter id written explaineing his bolwel problems and saying we needed help.I also said that in my opinion laxatives did the job in the short term but we needed a more thourough investigation and could he be refered.I told her his stomach was distorted and he had seveare anal leakage.Plus he was terrified of toilets and all things surrounding it.

 

Her answer............................. A bottle of senna......................and a *****ng star chart :(:(

 

She didnt even examine his stomach.

 

To say im pissed of is putting it mildley.She knows that this has been going on for years.I also said can we have help surley theres some group that could help us im desperate.Againe no go she ignored the question.

 

I will give him the senna i will try a reward system.But ive done all this before.

 

Then i think ill see another dr and insist on a referal even if ive to ###### pay.I just think she thinks oh its Paula and her son same old moan againe.I dont think it helped the fact i was in there last week saying i was depressed and stuff.Ill be classed as a nutty mother with nothing better to do thats how i feel.

 

Why is nothing ever straight forward..

Edited by Paula

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Oh Paula I don't know what to say. I was kind of hoping so much that they'd start to get him sorted on this.

 

It's absolutely disgusting that she didn't even examine his stomach - that takes a minute of their time and can reveal so much as to how much he's blocked.

 

I would make another appointment and insist they examine him - can you get someone else to go with you - I know very often I've felt like the GP thinks I have Munchaussens (not sure if I've spelt that right!!!) - and you come out from there holding back the tears because they totally dismiss everything you say. If it's something I need to have taken seriously I get my hubbie or mam to come with me and get them to do the talking - so that it doesn't always sound like a paranoid mother (although it's absolutely terrible that we are made to feel like that).

 

Take care,

Jb

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I know i should have insisted he was examined.But she just ignored me and tried to reason with My son.

 

She explained hed get ill if he didnt go to the toilet.She then tried to find out why he wouldnt go to the toilet.He just clammed up and gave one word answers or talked gibberish and out of context.

 

I said to her you see what im up against i cant get any sence out of him.

 

She wrote the prescription and said goodbye.

 

When we got outside my son i dont do what drs tell me ........................ So it looks like his heals and anal passage are dug in and firmly closed............... :( Laugh i could bloomeing scream.But im trying to see the funny side of this ongoing toilet saga.

 

She even suggested he shower more often and it was important to maintaine cleanliness !!!!!!!!!!! I just smirked and thought yea sure thats a whole new set of agro.he hates showering and doesnt give a toss if he smells.

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What a silly cow! Yeah go and see someone else and make a point of telling her that you have done!!!

 

People just don't understand do they?

 

Good luck with getting him sorted out.

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Your GP isn't likely to be an expert on Bowel Disordersand Bowel disorders can't really be diagnosed by anything that a Doctor can examine during a normal GP appointment, this is because bowel disorders are internal and only a superficial external examination could be undertaken at a GP appointment. In that sense I agree with your doctor.

 

Where I disagree with her is in saying that hit can be dealt with by laxatives and star chart, as you could reasonably argue that you are past that point.

 

The proper way to deal with this would be to refer you to a Gastro-enterologist for examination/tests to be done, and that is what you should insist on, perhaps by seeing another doctor if necessary.

 

Simon

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mossgrove

 

Dont worry im gonna see another dr and ask for a referal.

 

Its just you get so so fed up with trying to sort things out when everything is a battle ground and youre fed up to the back teeth yourself.

 

I tried telling her star charts,ect werent no good and weve done the movicol,senna and some type of supositry years ago.Ive also asked in the past to see a bowel specialist or whatever they call themselves to be met with a stern " we dont refer children to see theses people"

 

Ill get my strenth back over the easter break and see someone else at the practice on Tuesday.

 

 

I often say if my last ###### name were windsor or blaire my son would be seen and sorted imediatly but im just Paula from the local council estate so no ###### gives a toss if youre kids suffer.I do feal like crying.Maybe i should break down next time at the gps and just show them the real face of all this instead of the mask we wear to enable us to cope.

 

Cant win though then id be classed as hysterical.

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Paula it might be easier if you went initially without your son then you can really let them know your worries and concerns, sorry it did,nt go well today >:D<<'> .......agree with mossgrove :D

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Beleive me ive gone many a time without my son also.Thinking itll be easier if hes not there.But then the drs say we cant do anything without seing him.Or on occasions theyll say well ask him how he feals about it !!!!!!!!!!!!!!!!!!

 

To be realy frank my son doesnt actually give a toss if hes got anal leakage or a bloated stomach or never went to the loo ever againe.So of course when the dozey GP says and what do you think **** my son answers im fine.

 

Can i just let out a cyber scream ARGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGG and a ###### yer stupid ###### dr i hate yer guts.

 

There feel better now if only i could say that to her face but id then be booted of the register i bet.

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Your GP isn't likely to be an expert on Bowel Disordersand Bowel disorders can't really be diagnosed by anything that a Doctor can examine during a normal GP appointment, this is because bowel disorders are internal and only a superficial external examination could be undertaken at a GP appointment. In that sense I agree with your doctor.

 

Where I disagree with her is in saying that hit can be dealt with by laxatives and star chart, as you could reasonably argue that you are past that point.

 

The proper way to deal with this would be to refer you to a Gastro-enterologist for examination/tests to be done, and that is what you should insist on, perhaps by seeing another doctor if necessary.

 

Simon

 

I know the GP can't diagnose from external examinations but they can definitely see whether there is a problem in that area and how bad it is and whether they need to refer to someone else and also what strength of medication they need to give to try and shift it now.

 

My daughter had this done regularly when she was little by both the Paed. Consultant and GP - all they do is feel the stomach - the Paed consultant actually had me feel it once too - to try and show me just how far up she was blocked and also showed me a diagram of the small intestine to explain exactly how bunged up she was.

 

Jb

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:blink:

 

I dont bloomeing bleieve this.

 

My son has gone up to the toilet un promted although i was hovering outseide the loo and hes had a poo.He even ###### gone and used a moist wipe and wiped his own bloomeing backside.

 

 

I dont know whether to laugh,cry scream kick the door down yell im just gobsmacked.Utterly gobsmacked.Instead i gave him a hug and said you see nothing happend to you did it when you did these things youre safe and ok.Ive given him 20p.

 

 

Is it a fluke is it a one of coz he thinks itll get me and the dr of his back.Chuff knows.Im just so so happy.

 

Please please god and the forces that be please ill live on gruel forever and be skint all my life if this continues.If it does it will be a miricle.Im hopeing they happen.

 

 

I feal a bit of a fraude but i "swear down" as my Nt daughter says that hes never ever done this in all his nappie free life which is 9 years.

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The Disability Rights Commission are very interested in health inequalities:

 

In launching this investigation we have published our comprehensive evidence paper which is the foundation for this project. It pulls together for the first time existing evidence on the overall reasons for health inequality which particularly affect people with learning disabilities or mental health problems and detailed evidence about the health of, and services received by, these groups of disabled people.

 

Some key findings from this evidence are -

* People with learning disabilities or long term mental health problems generally have worse physical health than other people.

* Psychiatric drugs can increase the risk of other illnesses.

* Major reviews of people with learning disabilities confirm increased risk of early death, with preventable mortality reported as being four times higher than in the general population.

* Mortality rates for people with schizophrenia or manic depression are higher than those of the general population even when 'unnatural deaths' (suicide) are discounted.

 

See another doctor and ask them to put their reasons for not referring him in writing.

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:o ..................golly gosh crack open the bubbly!!..................Paula I hope it,s the start of things to come..........if you see what I mean,fingers crossed..........best thing is to keep him on the lax then he might go again in the morning.....keep things moving,movin on up...........movin on out.........movin on up..........nothin can stop it :dance:

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If 35% of GPS are not up the job 65% of them are. So why is it that I have so far seen 0%? How is it that only 25% of people with mental health problems get to see an "appropriate person" meaning that 75% of people with mental health probs do not get to see an appropriate person.

How is it that mental health is the "Cinderella of the NHS"

How is it that ASDs get to be classified in the area of mental health when it is primarily a communication and information processing disorder.

The answer is simple

DISCRIMINATION

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Paula the following is from the All Party Parliamentary Group on Autism 22nd October 2003 Meeting with Dr Stephen Ladyman MP, Parliamentary Under-Secretary of State for Community Care, Department of Health

 

This was a very important meeting - word from Dr Ladyman - spokesperson for the present day Government.

 

 

I would also like to say something about bowel disorders. I have asked my officials to look into this more closely. To be frank, the Department of Health response to this issue has always been very much based on medical advice, which concludes that many disabled children experience bowel problems and this is not a particular problem for people with autism. In my view it is clear from the literature available that more people with autism have bowel disorders compared to the rest of the population. If this group of people with autism received better support and treatment for their bowel problems, we could seriously improve their quality of life.

 

I would be inclined to give this to your GP.

 

Hope it helps

 

Oracle

Edited by oracle

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And there's more!!! This was written by NAS in the Manifesto progress report 2004

 

In October 2003, Dr Stephen Ladyman MP, Minister for Community Care attended an APPGA meeting where he stated, In my view it is clear from the literature available that more people with autism have bowel disorders compared to the rest of the population. If this group of people with autism received better support and treatment for their bowel problems, we could seriously improve their quality of life.

 

In response to a recent parliamentary question on this issue Lord Warner, the Parliamentary Under-Secretary of State at the Department of Health stated,

 

Last year an issue of 'Autism' included a paper on autism and chronic gastrointestinal symptoms, showing a prevalence of 24% in those with autism and at least one chronic gastrointestinal symptom. This is consistent with previous studies, which suggest that there may be a distinct phenotypic subgroup of specific inflammatory gastrointestinal pathology in those meeting the criteria for autism.

 

Oracle

Edited by oracle

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