Bagpuss Report post Posted April 26, 2006 (edited) Hi, I'm a newbie to this forum, just found it online, and wanted to say a big HI to everyone! Our youngest daughter (5) was diagnosed with Autism in November. When she was 3 she was diagnosed with Duchenne Muscular Dystrophy. Feel the need to find other people who know what we are going through, to share laughs with, and to learn more! Today we went to a meeting re Early Bird Plus, and are due to start course next week. Sounds promising Edited February 9, 2007 by Bagpuss Quote Share this post Link to post Share on other sites
jayjay Report post Posted April 26, 2006 Hi and welcome to the forum Debs jayne xx Quote Share this post Link to post Share on other sites
hev Report post Posted April 26, 2006 hello,you will find a lot of helpful advice here,look foward to getting to know you better,what is early bird? Quote Share this post Link to post Share on other sites
big mamma Report post Posted April 26, 2006 Welcome Debs <'> Quote Share this post Link to post Share on other sites
baddad Report post Posted April 26, 2006 Hi Debs, and welcome <'> If you got the DX in November you'll probably find early-bird very useful. They do tend to talk in generalities at EB, but take what fits and the best of the rest, and you will get a lot from it... The forum has TONS of useful stuff, so take your time and have a good rummage around, and anything you don't find - just ask! L&P BD Quote Share this post Link to post Share on other sites
lisann Report post Posted April 26, 2006 Hi Deb's welcome to the forum but be warned once you start you can't stop!!!! LOL We are a likable lot and I'm sure there will be plenty of laughs Lisa x Quote Share this post Link to post Share on other sites
CarerQuie Report post Posted April 26, 2006 Welcome,Debs.You've come to the right place for help,support and info.xx Quote Share this post Link to post Share on other sites
phasmid Report post Posted April 26, 2006 Hi and welcome. Have a good look around the forum, as BD (baddad) has said, there's lots of info on here. Quote Share this post Link to post Share on other sites
OPooh Report post Posted April 26, 2006 Hi welcome to the forum Quote Share this post Link to post Share on other sites
annie Report post Posted April 26, 2006 Hi Debs, Welcome to the forum . Look forward to chatting to you. Annie xx Quote Share this post Link to post Share on other sites
bid Report post Posted April 26, 2006 Welcome to the forum I love your user-name, BTW!! Bid Quote Share this post Link to post Share on other sites
mel Report post Posted April 26, 2006 welcome to the forum bagpuss <'> but be warned, its addictive Quote Share this post Link to post Share on other sites
pingu Report post Posted April 26, 2006 <'> Welcome Bagpuss <'> I will also enjoy chatting, if ever you need help with anythis this is the place to come. shaz Quote Share this post Link to post Share on other sites
pingu Report post Posted April 26, 2006 if ever you need help with anythis this is the place to come. i meant anything shaz Quote Share this post Link to post Share on other sites
Steve_colour-se7en Report post Posted April 26, 2006 Welcome to the forum, you will hopefully benifit much from your Early Bird course, as your childs Diagnosis is quite recent. Baddad states you should indeed find it very useful which I am sure you shall, generalities are often made in reference on the course. However the picture will soon become somewhat clearer as time passes you will then see for yourself, that children on the spectrum are infact as much alike as they are different . Steve.. Quote Share this post Link to post Share on other sites
Guest hallyscomet Report post Posted April 27, 2006 Welcome Debs, they are a lovely bunch here as you will find. <'> Its great to talk to people who understand. Hailey Quote Share this post Link to post Share on other sites
LKS Report post Posted April 27, 2006 Hello Debs <'> Quote Share this post Link to post Share on other sites
Flora Report post Posted April 27, 2006 Hi debs and welcome to the forum. I'm pleased for you that you've found this forum. I hope you don't mind me asking, what is Duchenne Muscular Dystrophy? How does it affect your daughter? Look forward to chatting. Lauren x Quote Share this post Link to post Share on other sites
lindy-lou Report post Posted April 27, 2006 hi,welcome on board,hope you find loads of support and information you need here Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted April 27, 2006 Thanks for the warm welcome Lauren, Jessica doesn't produce a protein which keeps your muscles healthy. The muscle eventually dies, and muscle weakness occurs. It tends to affect boys, rather than girls, but unfortunately Jess is one of the rare ones. Children tend to lose the ability to walk between ages of 8 - 12, and it affects other muscles, ie. arms, chest, heart. Life expectancy is now 30's, although it used to be teens. Girls tend to fair better than boys, so we don't know how Jess will be. At the mo she uses a wheelchair for long distances, days out etc. She tends to fall quite abit and loses her balance etc. We've been advised that there is a link between DMD and Autism, but don't know if thats been proven. This forum looks sooo busy, will need at least another 6 months to catch up with everything Plus I'm a complete techo phobe.....PC's are baffling to me Thanks again everyone Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted April 27, 2006 Hev, forgot to add, the Early Bird Plus is a course for parents for children diagnosed between 4 and 8. Those given a later diagnosis . There is an Early Bird course for those diagnosed younger. The main difference being that a member of staff from school are also invited to the Early Bird Plus course to work in conjunction with the parents. It's a 2 1/2 session once a week, plus two home visits, and we start our's next week and it finishes July. Hope to learn more about Autism, behaviour, communication, etc etc and hopefully meet other families. Take care, Debs Quote Share this post Link to post Share on other sites
TheNeil Report post Posted April 27, 2006 Hi Debs, I'm a newbie here myself although in a different ASD boat Just out of interest, what part of Cleveland are you from (if you don't mind me asking)? I originally hail from the sunny shores of Redcar myself - maybe it's something they put in the water up there (only joking) Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted April 27, 2006 Hi, We're in Guisborough......although spend most of our time in Redcar! Our daughter goes to school there, and we tend to go there for shopping etc. Great in the summer for the beach Quote Share this post Link to post Share on other sites
TheNeil Report post Posted April 27, 2006 Great in the summer for the beach Shame about the tourists though - they really do clutter the place up Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted April 27, 2006 LOL Not to mention the ICI looming in the distance with smoke billowing out Never mind eh......the lemon top ice creams make up for it Quote Share this post Link to post Share on other sites
TheNeil Report post Posted April 27, 2006 Never mind eh......the lemon top ice creams make up for it Lemon tops... [drools, gets in car, drives to Pacito's on sea front...] (Of course no-one else will have the faintest idea what any of that means) Quote Share this post Link to post Share on other sites