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      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team

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  1. Last week
  2. editing post

    Hello and welcome to the forum. If you message me with a Web link I can delete or edit your post for you.
  3. editing post

    I would like to know how to remove or edit my posts. I tried to edit once - didnt work out and now the 'edit' button is not under my post anymore.
  4. Fiddle toys - school not impressed

    Hi Peaches! We would really love to give you an assist on this matter. One tool that is being increasingly recommended by occupational therapists to include in your child’s routine is sensory toys. These toys come in many shapes and sizes including, spinners, chew toys, cubes, rings, and hand toys. Sensory items work to engage a child’s preferred sense in a way that is enjoyable and makes sense to him/her. They may help children with autism focus, calm down in stressful situations, or relax. As a child is able to process a sense better, toys that highlight other senses or a variation of a sense may be introduced. The ultimate goal of sensory toys is to decrease a child’s fear and discomfort around his/her senses through a natural way of learning: play. This may trickle down into other skills such as improved communication due to lowered levels of anxiety or frustration. As mentioned above, consistency is key as with any intervention, and involvement from the child’s parent or caregiver can be greatly beneficial to the child’s progress. Here's a link for a complete guide in regards on how to choose the best sensory toys, it's scientific-based effects for improvement and nourishment. Best Sensory Toys for Kids with Sensory Processing Issues and Autism
  5. Sensory Toys

    Hi Lisa, I can't help myself to just give you a link just to buy for sensory toys. I will build it up by giving you a guide to choosing the best sensory toys for children with Autism. You can find a detailed guide to with the best gifts and sensory toys here: Best Sensory Toys for Kids with Sensory Processing Issues and Autism and Gifts For An Autistic Child – The Ultimate Guide Hope this helps! Best, Autism Parenting Magazine
  6. What to do??

    Hi, I am a stepmother of an 18 year old young man diagnosed with PDD-NOS back when he was about 4/5 years old. I speak on behalf of his father and myself as a team as the mother has taken herself out of the picture quite a while back. I have been in his life since he was 8. We have had all sorts of problems with him including severe aggression (much improved now with behavioural therapies we used) but the lying and stealing remain a big problem. I am not the stereotypical evil stepmother. I have worked hard to help him with his problems in the absence of a decent mother. I have done my best and am now exhausted and sick of the sight of him to be honest. He is now considered an 'adult' though still at school - he used to be in a special school but we moved and he had to attend a mainstream in order to follow his course in metal work. He has coped fine with being in mainstream and the school were doubtful but he is doing well and its ok. At home is the problem. We cannot stop him stealing and lying. He has a problem with impulse control and no therapies have helped that, if left to his own devices he would just eat ALL the time. We discovered he was coming downstairs in the night and drinking gallons of milk, eating margarine from the tub, eating cookies, bread, whatever he could find. He often steals food. I once made a large batch of gluten free cookies (i am gluten intolerant) and he raided the box and all was left was 2 from the 30 cookies I made. We now have to lock up the kitchen at night as despite speaking to him and other sanctions he just keeps doing it. Same with stealing money, or anything else he desires including my underwear and when he used to visit his mother hers too. He seems to have a compulsion to wear womens things. We see this as a stealing problem though, he goes into our bedroom and raids my drawers etc for my things, then often cuts them in specific places and has then disposed of them by throwing them somewhere in the neighbourhood. Charming . We now have to lock our bedroom too as nothing would stop him. He is aparently normal intelligence, has had regular check ups with the psychologist and counselling/therapy. He never improves or seems to give a damn about our rights. It is beginning to feel that there is something more than the PDD-NOS they diagnosed him with. He seems narcissistic or sociopathic. He has NO conscience. He actually gets annoyed with us because we have caught him stealing or lying. He has now lost the use of the internet in our home (only thing he cares about is computers etc) as we have changed the password and have made it quite clear that he will not get access until he changes his behaviour. We have been very clear about what we expect and what we wont accept but he thinks that he should just get it back in a couple of days. We had been warning for quite some time that we would do this. He had many chances but here we are..recently I found a key of ours he had stolen in order to get to his laptop. We feel like prisoners in our own home with all the keys. I have fibromyalgia and rheumatiod arthritis and struggle with the stairs and chronic pain and getting to the top of the stairs only to realise that the key is downstairs and vice versa is driving me mad. His father had a nasty accident on his bike recent and was in hospital with concussion and bruising, lacerations etc, was lucky not to lose his eye. What did Stepson do? took advantage of the situation where i was distracted caring for his father and emptied out my purse (i accidently left it downstairs) We have tried all the suggestions over the years, followed all the advice and have done what the experts say to do, nothing changes it. My question is: is this really the effects of being on the AS ? or is he just an ar***ole? His mother was an extremely nasty piece of work, manipulative, bullying and aggressive, always expecting to get her way etc. It feels like dealing with her at times. Any thoughts?
  7. Earlier
  8. Tinitus woes, can you advise please?

    Na, Dr had a go at me for going to Boots and Spectsavers.
  9. Arghhhh can't cope

    After almost six months someone called and he's been allocated a worker they're coming out next week.
  10. Tinitus woes, can you advise please?

    No advice just didn't want your post to go unanswered Could a hearing testing place say boots advise on tinatus .
  11. Hello everyone, I am currently conducting a dissertation project on; Sex Differences in Loneliness and Friendship Style in Adults with High-Functioning Autism. The aim of my dissertation is to investigate whether males and females with ASD display different friendship styles and experience different levels of loneliness as a result of their biological sex. I am hoping to find individuals who meet the following criteria; Are between 18 to 69 years of age Have a valid diagnosis of ASD Are NOT diagnosed with any other learning/developmental conditions/disabilities If you wish to participate in my study, please follow the link below which will take you to an online questionnaire. The questionnaire will take 10-15 mins to complete and is fully anonymous. https://ulsterhealth.eu.qualtrics.com/jfe/form/SV_3CwklGerhu0adYV My dissertation has been approved by the Ulster University Ethics Committee. If you have any queries regarding my study, please feel free to message me here or via my uni email: mccloskey-b6@ulster.ac.uk You can also contact my dissertation supervisor Dr Stephen Gallagher via email: sm.gallagher@ulster.ac.uk
  12. Arghhhh can't cope

    Still waiting for help I phoned at Xmas saying our son needed either shared lives or supported living we still haven't had an assessment still haven't been assigned a case worker.Unbelievable but he was referred to a specialist autism service who refused him he's a diagnosis of autism ffs it baggers believe and was passed back to adult services.I've rung them again chasing it.He's as I type locked in his room ,not speaking,he's broken things,he comes out when I go out say to walk the dog.I'm so fed up but with all this ,what triggered him this time well he insists we took his blasted Pringles we didn't he ate them but refuses to accept this.I'm annoyed because he's taken things out of my purse and destroyed my weekly bus ticket it had four days left on it.He's smashed his head set for his Xbox and ripped of all his bedding.I'm trying to just think sod you and carry on as normal kind of hurt yourself with your actions you won't get to me but its hard.I'm fivety next year and to be blunt it would be great if he was out by then.Is it wrong to want normality,peace for me and my husband to have a nice home life instead of his .I love him he's our son I hate the fact he's autistic I wish I'd never heard of it,certain aspects of his behaviour never alter the kick offs over nothing,the total disregard for anyone else,the me me attitude,he can be so hurtful and he's so stone cold cold and emotionless .
  13. You might want to try the autscape conference at the end of August? http://www.autscape.org/2018/registration/fees
  14. Autscape call for proposals 2018

    http://www.autscape.org/2018/registration/fees
  15. AUTSCAPE 2018: EXPLORING INCLUSIONTuesday 28 August – Friday 31 August 2018Tonbridge, Kent, UKhttp://www.autscape.org/Please distribute widely. Forward this text or send the link:http://www.autscape.org/2018/proposals/cfpC A L L F O R P R O P O S A L SWe are now accepting proposals for all types of presentations forAutscape 2018.PLEASE SUBMIT YOUR PROPOSAL BY 16 APRIL 2018.Please use the proposal submission form if at all possible. If you havedifficulty using the form, please e-mail programme@autscape.org. Emailsubmissions are not accepted unless exceptional access requirements apply.The form and all the information below can be found on the Autscape website:http://www.autscape.org/2018/proposals/___ Contents ___* About Autscape* Theme* What we are looking for* Examples* What do we expect from you?* What can you expect from us?* How to submit your proposal___ About Autscape ___Autscape is an autistic conference. It is run by and for autisticpeople. The environment and content of the event are centred aroundautistic people's needs, interests and sensitivities.___ Theme ___The theme for this year's Autscape is 'Exploring Inclusion'.This is a broad theme that encompasses exploration of autism andinclusion from within every possible context. We invite proposers tointerpret the theme freely and creatively.Possible example topics include (but are *not* limited to):- exploring the inclusion of autistics within various social environments (schools and universities, workplaces, leisure, sports and hobbies clubs, religious establishments, etc.);- exploring how the autistic community can better accommodate autistics who have additional conditions/disabilities;- applying the concept of autistic space to various additional social environments, in order to allow better inclusion of autistics in those environments;- developing the concept of autistic space to allow better inclusion of various types of autistics within the autistic community;- exploring how the autistic community could better accommodate autistics who belong to additional minority groups.Presentations which seek to develop this theme will be given priority;however, any suitable topic, even if it is not directly related toautism, will be considered.___ What we are looking for ___We are looking for quality proposals by qualified presenters, but'qualifications' don't have to be formal.We wish to explore a broad range of perspectives on being autistic, boththeoretical and practical. Many different types of input are welcome:traditional lectures, creative expression, physical activity,interactive workshops and more.Although many of the autistic people who are attracted to Autscape arehighly verbal, others may have difficulty with an event centred aroundlanguage. Therefore, we are also seeking workshops which are notprimarily focused on the spoken word.Selected proposals are likely to have these features:- The topic is relevant to Autscape. Although non-autistic people are welcome to attend, the vast majority of participants are autistic and the programme is for us, not about us. All presentations must be positive in their support for autistic people and our right to be autistic. There should be something about each presentation that makes it something you would find at Autscape, in autistic space, and not just anywhere.- The presenter is qualified. This does not mean you need to have a long list of academic qualifications. It does mean that you should know what you are talking about and be able to demonstrate some expertise in it. Experience of presenting or teaching your activity is an asset. There should be a reason that we want you, not just anyone, to present about it.- The presentation is structured, informative and relevant. It keeps the participants engaged. There is evidence that the presenter has taken care to prepare this topic for this audience. It is worth the participants paying their often very limited money for.The sort of thing that may be selected:- Lectures and workshops in the traditional style about topics that are of interest to autistic people and preferably fit with the theme.- Physical activities such as yoga, martial arts, or other movement or exercise which have been specifically adapted for autistic participants.- Creative activities such as art, music or drama presented in a way that is relevant to, and adapted for, autistic participants.- Practical activities that can help autistic people live better, for example, coping with sensory issues or using communication aids.The sort of thing that is unlikely to be selected:- Lectures about one's personal experience of being (growing up) autistic. We all have personal experience of autism. If your presentation is primarily based on your personal experience, think carefully how it can help attendees find new understanding of their own situation. Please let us know what you're hoping those present will gain from your presentation.- Discussions on a topic of interest where the participants provide most of the material. These are an important part of Autscape, but don't require the sort of expertise and preparation we expect for presentations.- Workshops about curing or preventing autism, unless it is from an advocacy standpoint.- Undeveloped ideas or topics. If you haven't had time to thoroughly think through your proposal, it may be better to wait until next year. If you are sure of what you want to present, but are having difficulty describing it in words, we may be able to help.Note: if your proposal is not selected for the main Autscape programme,you may still offer it as a participant-led activity. There will be anopportunity to submit these in advance so they can be timetabled, butyou may also book them at Autscape itself.___ Examples ___For examples of what has been presented as part of the Autscape mainprogramme in the past, see the presentations from previous years at:http://www.autscape.org/2017/programme/presentations___ What do we expect from you? ___Reliability: you need to be able to assure us that except for unforeseencircumstances you will be there to present as agreed.Presentation materials: please send copies of any handouts and computerpresentations (for example, PowerPoint) by the date requested (to beconfirmed, about two weeks before Autscape). These will be madeavailable for download and printing by Autscape participants. Inaddition we can print a limited number of pages for handouts. You retainthe copyright to your material.Your details and presentation summary: the summary and bio you submitwith your proposal will be published on our website. You may correct,modify or update them once after your proposal is accepted (except forany errors that are our fault).Permission to record: as a reasonable adjustment for people withprocessing difficulties, some audience members will audio record yourpresentation for personal use. This is *not* optional. We may also seekyour permission to video or otherwise record your presentation. Theserecordings may be made available to others by Autscape. This *is*optional. Denying permission will not prejudice decision makers againstyour presentation, and permission can be withdrawn at any time prior todistribution. If you have any questions, please let us know so we candiscuss it.___ What can you expect from us? ___Accommodation: you will receive one day's attendance at Autscape free ofcharge. Presenters will be accommodated on-site for the day of theirpresentation including the night before or after. Only one such placecan be offered for each presentation, regardless of the number ofpresenters. Whenever you are not presenting you can enjoy the event,including other workshops and the setting, just as any other participant.Audience: a rare opportunity to be heard by a significant number ofautistic people. A chance to have some influence and get some feedbackfrom the people who matter most in the field of autism.Respect and consideration: we will do our best to meet any special needsor requirements you may have, as long as you communicate them to us withsufficient notice.___ How to submit your proposal ___To submit your proposal, please use the form here:http://www.autscape.org/proposals/proposalformIf you have difficulty accessing or completing the form, please email:programme@autscape.orgWe do not accept submissions by email unless you have exceptionalreasons for being unable to access the form (for example, learningdifficulties or technical limitations).Due to a high level of competition in recent years, late submissionswill not normally be considered. If you think you will have any problemswith the form, the deadline, or any other aspect of submitting aproposal, please contact us *before* the deadline. Submissions by othermeans or after the deadline should not be considered accepted until orunless they have been acknowledged by the Programme Coordinator.The board will decide which presentations to accept for Autscape andwill inform everybody who has made a proposal of their decision by 16May 2018.Remember, ALL PROPOSALS MUST BE RECEIVED BY 16 APRIL 2018.AUTSCAPE 2018: EXPLORING INCLUSIONTuesday 28 August – Friday 31 August 2018Tonbridge, Kent, UKhttp://www.autscape.org/Please distribute widely. Forward this text or send the link:http://www.autscape.org/2018/proposals/cfpC A L L F O R P R O P O S A L SWe are now accepting proposals for all types of presentations forAutscape 2018.PLEASE SUBMIT YOUR PROPOSAL BY 16 APRIL 2018.Please use the proposal submission form if at all possible. If you havedifficulty using the form, please e-mail programme@autscape.org. Emailsubmissions are not accepted unless exceptional access requirements apply.The form and all the information below can be found on the Autscape website:http://www.autscape.org/2018/proposals/___ Contents ___* About Autscape* Theme* What we are looking for* Examples* What do we expect from you?* What can you expect from us?* How to submit your proposal___ About Autscape ___Autscape is an autistic conference. It is run by and for autisticpeople. The environment and content of the event are centred aroundautistic people's needs, interests and sensitivities.___ Theme ___The theme for this year's Autscape is 'Exploring Inclusion'.This is a broad theme that encompasses exploration of autism andinclusion from within every possible context. We invite proposers tointerpret the theme freely and creatively.Possible example topics include (but are *not* limited to):- exploring the inclusion of autistics within various social environments (schools and universities, workplaces, leisure, sports and hobbies clubs, religious establishments, etc.);- exploring how the autistic community can better accommodate autistics who have additional conditions/disabilities;- applying the concept of autistic space to various additional social environments, in order to allow better inclusion of autistics in those environments;- developing the concept of autistic space to allow better inclusion of various types of autistics within the autistic community;- exploring how the autistic community could better accommodate autistics who belong to additional minority groups.Presentations which seek to develop this theme will be given priority;however, any suitable topic, even if it is not directly related toautism, will be considered.___ What we are looking for ___We are looking for quality proposals by qualified presenters, but'qualifications' don't have to be formal.We wish to explore a broad range of perspectives on being autistic, boththeoretical and practical. Many different types of input are welcome:traditional lectures, creative expression, physical activity,interactive workshops and more.Although many of the autistic people who are attracted to Autscape arehighly verbal, others may have difficulty with an event centred aroundlanguage. Therefore, we are also seeking workshops which are notprimarily focused on the spoken word.Selected proposals are likely to have these features:- The topic is relevant to Autscape. Although non-autistic people are welcome to attend, the vast majority of participants are autistic and the programme is for us, not about us. All presentations must be positive in their support for autistic people and our right to be autistic. There should be something about each presentation that makes it something you would find at Autscape, in autistic space, and not just anywhere.- The presenter is qualified. This does not mean you need to have a long list of academic qualifications. It does mean that you should know what you are talking about and be able to demonstrate some expertise in it. Experience of presenting or teaching your activity is an asset. There should be a reason that we want you, not just anyone, to present about it.- The presentation is structured, informative and relevant. It keeps the participants engaged. There is evidence that the presenter has taken care to prepare this topic for this audience. It is worth the participants paying their often very limited money for.The sort of thing that may be selected:- Lectures and workshops in the traditional style about topics that are of interest to autistic people and preferably fit with the theme.- Physical activities such as yoga, martial arts, or other movement or exercise which have been specifically adapted for autistic participants.- Creative activities such as art, music or drama presented in a way that is relevant to, and adapted for, autistic participants.- Practical activities that can help autistic people live better, for example, coping with sensory issues or using communication aids.The sort of thing that is unlikely to be selected:- Lectures about one's personal experience of being (growing up) autistic. We all have personal experience of autism. If your presentation is primarily based on your personal experience, think carefully how it can help attendees find new understanding of their own situation. Please let us know what you're hoping those present will gain from your presentation.- Discussions on a topic of interest where the participants provide most of the material. These are an important part of Autscape, but don't require the sort of expertise and preparation we expect for presentations.- Workshops about curing or preventing autism, unless it is from an advocacy standpoint.- Undeveloped ideas or topics. If you haven't had time to thoroughly think through your proposal, it may be better to wait until next year. If you are sure of what you want to present, but are having difficulty describing it in words, we may be able to help.Note: if your proposal is not selected for the main Autscape programme,you may still offer it as a participant-led activity. There will be anopportunity to submit these in advance so they can be timetabled, butyou may also book them at Autscape itself.___ Examples ___For examples of what has been presented as part of the Autscape mainprogramme in the past, see the presentations from previous years at:http://www.autscape.org/2017/programme/presentations___ What do we expect from you? ___Reliability: you need to be able to assure us that except for unforeseencircumstances you will be there to present as agreed.Presentation materials: please send copies of any handouts and computerpresentations (for example, PowerPoint) by the date requested (to beconfirmed, about two weeks before Autscape). These will be madeavailable for download and printing by Autscape participants. Inaddition we can print a limited number of pages for handouts. You retainthe copyright to your material.Your details and presentation summary: the summary and bio you submitwith your proposal will be published on our website. You may correct,modify or update them once after your proposal is accepted (except forany errors that are our fault).Permission to record: as a reasonable adjustment for people withprocessing difficulties, some audience members will audio record yourpresentation for personal use. This is *not* optional. We may also seekyour permission to video or otherwise record your presentation. Theserecordings may be made available to others by Autscape. This *is*optional. Denying permission will not prejudice decision makers againstyour presentation, and permission can be withdrawn at any time prior todistribution. If you have any questions, please let us know so we candiscuss it.___ What can you expect from us? ___Accommodation: you will receive one day's attendance at Autscape free ofcharge. Presenters will be accommodated on-site for the day of theirpresentation including the night before or after. Only one such placecan be offered for each presentation, regardless of the number ofpresenters. Whenever you are not presenting you can enjoy the event,including other workshops and the setting, just as any other participant.Audience: a rare opportunity to be heard by a significant number ofautistic people. A chance to have some influence and get some feedbackfrom the people who matter most in the field of autism.Respect and consideration: we will do our best to meet any special needsor requirements you may have, as long as you communicate them to us withsufficient notice.___ How to submit your proposal ___To submit your proposal, please use the form here:http://www.autscape.org/proposals/proposalformIf you have difficulty accessing or completing the form, please email:programme@autscape.orgWe do not accept submissions by email unless you have exceptionalreasons for being unable to access the form (for example, learningdifficulties or technical limitations).Due to a high level of competition in recent years, late submissionswill not normally be considered. If you think you will have any problemswith the form, the deadline, or any other aspect of submitting aproposal, please contact us *before* the deadline. Submissions by othermeans or after the deadline should not be considered accepted until orunless they have been acknowledged by the Programme Coordinator.The board will decide which presentations to accept for Autscape andwill inform everybody who has made a proposal of their decision by 16May 2018.Remember, ALL PROPOSALS MUST BE RECEIVED BY 16 APRIL 2018.
  16. On the face of it, a very similar premise to the BBC's Employable Me series. Still, raising awareness is all to the good (so long as they don't assume that Aspies only want to do software testing). Catch up here: https://www.my5.tv/the-special-needs-employment-agency/season-1
  17. An alleged computer hacker will find out later if he has successfully challenged a ruling that he can be extradited to the US. Lauri Love, 32, from Stradishall (nr Newmarket), Suffolk, is suspected of hacking into FBI, US Central Bank and Nasa systems. Speaking on the BBC's Today programme earlier his father said his son was "very distressed" and "afraid". Two judges sitting at the High Court in London are expected to give their decision on Mr Love's appeal later. Lord Chief Justice Lord Burnett and Mr Justice Ouseley heard argument on his behalf during a hearing in November that extradition would not be in the "interests of justice" for a number of reasons. These included the "high risk" that Mr Love, who suffers [sic] from Asperger syndrome, would kill himself. Lauri Love: Hacking suspect awaits extradition appeal decision
  18. BBC Project - Aspergers and Employment

    This report The graduate employment gap: Expectations versus reality may be of interest: Link I wonder if the aforementioned Ben is contributing to the lower average salaries of law graduates?
  19. Dear Parents, We would like to invite you to take part in a new research study entitled “Passport to Life: Investigating the need for life skills training among young people with autism" organized by Medway School of Pharmacy, at the University of Kent. The aim of this study is to investigate the views and experiences of parents/carers in relation to life skills training that is available to young people with Autism Spectrum Disorders (ASDs). This is an online survey and is aimed at: Parents/carers of young people with Autism Spectrum Disorders (ASDs) in the age groups 11-18 years without intellectual disability The survey can be found at: https://kent.onlinesurveys.ac.uk/passport-to-life-parents-carers The survey will take around 15 minutes to complete and is completely anonymous
  20. hello I`m belong to Estas, autism self-help group of south korea The self-help group ESTAS, which is going to visit the UK, consists of seven males with autistic disorder or autistic tendency from the early 20s to the early 30s and a translator. Most of the group members are college students or college graduates. Some have doctoral degrees and some have professional jobs. Unlike other conventional self-help groups, ESTAS does not have a supervisor position to control other members. Instead, we have a coordinator to conduct meetings efficiently and to represent the agreed opinion of the group. The current arbitrator is Lee Won-moo and he has participated in the national deliberations on the Convention on the Rights of Persons with Disabilities held in Geneva, Switzerland. (He is not participating in this expedition because of his personal circumstances.) Our organization is being operated with donations of some members without external fund such as other organizations or companies. As a result, financial difficulties often arise when we pursue some activities. Sometimes, we experience difficulties in some activities due to unfavorable prejudices and perceptions of the society against the people with developmental disabilities. Despite such difficulties, ESTAS has been trying to improve the quality of life of the members as well as develop their potentialities. Members regularly attend conferences and publish columns in media. In addition, we ask broadcasting stations to correct false information about autism. We are moving toward a better society constantly planning activities that could not have been done if it were not for ESTAS. We have been actively communicating and debating with people with developmental disabilities, such as autistic disorder, to find answers. Among them, there are a debate with Birsen Basar who has served as a public relations representative in the Autism Association of the Netherlands since 2014, and a meeting with officers of the People First Korea. Through these experiences, we realized that solidarity with youths around the world, who have the same perception on the issue, is important. At the same time, it became an occasion to think about how to protect socially marginalized people like us and to help change society. We decided to have this expedition to UK to find answers to the questions about solidarity with young people with disabilities and the possibilities of social change. Starting with this visit to UK, we would like to develop a blueprint by building friendship with international organizations in the future.
  21. I don't like Facebook...

    I did like using Twitter before. Social media has rendered a lot of forums inactive, though. I guess that's what happens with life in general: I see that things move on.
  22. I don't like Facebook...

    Nope i dont know what you mean at all. Actually i have said this once, so i dont 'keep saying'. If you dont like facebook, dont use it since it's not essential to everyday life. Find a different way of communicating on social media, twitter for example.
  23. I don't like Facebook...

    So you keep saying. It would be nice if you knew the facts of what went on and why. You know?
  24. Perfect in school? But not at home

    Hello Have you considered pursuing an alternative diagnosis for 'sensory integration disorder' or 'sensory processing disorder' since those are the symptoms that stand out both at school and at home?
  25. I've had this for weeks now and would like some advice. I've always had problems with my ears (white noise) since I was 7yrs but only recently has this got worse. I have exzema in my ears which produce far too much wax. I blame myself for these problems because every time they itched I scratched them and used cotton buds. I had my ears shringed last Christmas because they completely blocked up, after that I used Earol spray from boots one evening and oil drops with a dropper the following evening. Occasionally my left ear rang but now very often, but now my right ear is constantly making a high pitched noise which I find hard to bear. I went to SpectSavers and they put a camera in my ear, they said one ear was full of wax (despite using the Earol).while there was some yellow residue in my left, they wern't sure if it was a infection or residue from olive oil left over. I have made an appointment with my Dr but I have to wait weeks because the receptionists wouldn't make it any earlier. One evening while watching TV, I could hear it above the sound, so I went to the walk in surgery.and on examination said the back of my ear on the left looked red and swollen. I've been given a spray with steroid in, and have since got one for my ringing right ear. I use it three times a day. I'm fed up because it's not too bad during the day, it's when I try and relax during the evening it seems to get worse. Also my ear itches which I daren't touch in case it makes it worse. My left ear is behaving itself since using the spray, it's just my problematic right ear now. I wouldn't be in this situation if I hadn't of scratched, or used cotton buds, so I blame myself that I've cause e-reversable damage to my hearing, I'm hoping this will go back to white noise but it's highly unlikely. I used to love meditation, but that's been taken away now. Can you advise me please?
  26. My fiancé has a 19 year old boy who has Aspergers. I should rephrase that. On every site that lists the symptoms of Aspergers and the topic is behaviour, he displays 80% of the signs. On every site that lists the symptoms of Aspergers and the topic is Aspergers Syndrome Muscle Strength & Prevalence Of Hypotonia he displays 100% of the signs. On every site that lists the symptoms of Aspergers and the topic is Sensory Processing Disorder, he displays 90% of the signs. What I have found very little information on is the way he acts with his mom and to an extent with me. I will list these things in point form. He regularly calls down to his mom from his bedroom, in a very child like manner, mommy come give me a hug. Often if he is on the couch watching TV, he puts his arms out and says, both in avery child like manner, mommy come and lay with me. If is mom is sitting on a chair he literally crawls on top of her and hugs her, if he was 5 years old it may look normal, but at 6 ft tall 180 pounds to me if looks, well, wrong. He regularly approaches his mom from behind and puts his face beside hers and holds her, (in my opinion) the way a couple in love do. He regularly stands in front of his mom when he is talking to her and rubs his hands up and down her arms (in my opinion) the way a couple in love do. After meals he kisses his moms cheek and thanks her for dinner in a very babyish like voice and while doing so rubs his cheek against hers. I could go on and list more habits like this but I think you get the general idea. And again, all of the above habits "look like" he is acting like a child and the way he talks "sound like" a child. Me? At a theatre when he and I went to see that clown movie It, numerous times during the movie, at the scary parts, I would feel his hands wrapping around my arms and he put his face close to my chest. It felt real, sorry to say, creepy. To further this point to be clear, the only thing I care about when it comes to people is how people treat me and how people treat others. Gay, lesbian, Trans, red, blue, green, aliens with three heads, Ewoks, to me it makes no difference. But. In the theater that night had anyone looked, it would have looked like an man in his late fifties with his young gay lover in some sort of embrace. Maybe it shouldn't bother me as I know the truth, but it did. He tries to hug me but always in, again, a creepy loose arm feely kind of way. I back off when it happens and he always complains I won't hug him. Hugging I have no problem with, guy hugs, the way I hug my son or my brother or a buddy. Manly as it were. I have tried to hug him like that a few times and he backs away. Last time his mom's brother was here, (his uncle,) he said to him, wanna see how mom and I cuddle n the couch? He crawled in top of her and nestled his face in her chest, "like a baby". His uncle got creeped out, I saw it in his eyes and hi body language . Soon after he said to me,,,,and this is a man who never swares, "what the F&$K was that? Most importantly, I want to help this teen, get him to counselling, get him to therapy for Hypotonia. After getting him diagnosed of course. I am not a specialist or a doctor or anything like that, just someone who observes, a lot. . His mom is aware a lot of his behaviours and his immaturity is not normal, but has never come out and talked about it. Recently on Facebook there was a meme about Sheldon (Big Bang Theory) possibly having Aspergers. It was a list of ten reasons why he has it. After reading it his mom said, that sounds just like "the boys name". The more I understand about all this the easier it will be to talk to his mom and hopefully get him diagnosed. Maybe he doesn't have Aspergers. I could be way off. If anyone has experienced such things or knows anything about this baby like behaviour, or where I can read about it, please let me know. Thank you for your time
  27. I've created this thread to make it easier to advertise autscape every year. Below are details for this years conference. AUTSCAPE 2018: EXPLORING INCLUSIONTuesday 28 August – Friday 31 August 2018Tonbridge, Kent, UKhttp://www.autscape.org/Please distribute widely. Forward this text or send the link:http://www.autscape.org/2018/proposals/cfpC A L L F O R P R O P O S A L SWe are now accepting proposals for all types of presentations forAutscape 2018.PLEASE SUBMIT YOUR PROPOSAL BY 16 APRIL 2018.Please use the proposal submission form if at all possible. If you havedifficulty using the form, please e-mail programme@autscape.org. Emailsubmissions are not accepted unless exceptional access requirements apply.The form and all the information below can be found on the Autscape website:http://www.autscape.org/2018/proposals/___ Contents ___* About Autscape* Theme* What we are looking for* Examples* What do we expect from you?* What can you expect from us?* How to submit your proposal___ About Autscape ___Autscape is an autistic conference. It is run by and for autisticpeople. The environment and content of the event are centred aroundautistic people's needs, interests and sensitivities.___ Theme ___The theme for this year's Autscape is 'Exploring Inclusion'.This is a broad theme that encompasses exploration of autism andinclusion from within every possible context. We invite proposers tointerpret the theme freely and creatively.Possible example topics include (but are *not* limited to):- exploring the inclusion of autistics within various social environments (schools and universities, workplaces, leisure, sports and hobbies clubs, religious establishments, etc.);- exploring how the autistic community can better accommodate autistics who have additional conditions/disabilities;- applying the concept of autistic space to various additional social environments, in order to allow better inclusion of autistics in those environments;- developing the concept of autistic space to allow better inclusion of various types of autistics within the autistic community;- exploring how the autistic community could better accommodate autistics who belong to additional minority groups.Presentations which seek to develop this theme will be given priority;however, any suitable topic, even if it is not directly related toautism, will be considered.___ What we are looking for ___We are looking for quality proposals by qualified presenters, but'qualifications' don't have to be formal.We wish to explore a broad range of perspectives on being autistic, boththeoretical and practical. Many different types of input are welcome:traditional lectures, creative expression, physical activity,interactive workshops and more.Although many of the autistic people who are attracted to Autscape arehighly verbal, others may have difficulty with an event centred aroundlanguage. Therefore, we are also seeking workshops which are notprimarily focused on the spoken word.Selected proposals are likely to have these features:- The topic is relevant to Autscape. Although non-autistic people are welcome to attend, the vast majority of participants are autistic and the programme is for us, not about us. All presentations must be positive in their support for autistic people and our right to be autistic. There should be something about each presentation that makes it something you would find at Autscape, in autistic space, and not just anywhere.- The presenter is qualified. This does not mean you need to have a long list of academic qualifications. It does mean that you should know what you are talking about and be able to demonstrate some expertise in it. Experience of presenting or teaching your activity is an asset. There should be a reason that we want you, not just anyone, to present about it.- The presentation is structured, informative and relevant. It keeps the participants engaged. There is evidence that the presenter has taken care to prepare this topic for this audience. It is worth the participants paying their often very limited money for.The sort of thing that may be selected:- Lectures and workshops in the traditional style about topics that are of interest to autistic people and preferably fit with the theme.- Physical activities such as yoga, martial arts, or other movement or exercise which have been specifically adapted for autistic participants.- Creative activities such as art, music or drama presented in a way that is relevant to, and adapted for, autistic participants.- Practical activities that can help autistic people live better, for example, coping with sensory issues or using communication aids.The sort of thing that is unlikely to be selected:- Lectures about one's personal experience of being (growing up) autistic. We all have personal experience of autism. If your presentation is primarily based on your personal experience, think carefully how it can help attendees find new understanding of their own situation. Please let us know what you're hoping those present will gain from your presentation.- Discussions on a topic of interest where the participants provide most of the material. These are an important part of Autscape, but don't require the sort of expertise and preparation we expect for presentations.- Workshops about curing or preventing autism, unless it is from an advocacy standpoint.- Undeveloped ideas or topics. If you haven't had time to thoroughly think through your proposal, it may be better to wait until next year. If you are sure of what you want to present, but are having difficulty describing it in words, we may be able to help.Note: if your proposal is not selected for the main Autscape programme,you may still offer it as a participant-led activity. There will be anopportunity to submit these in advance so they can be timetabled, butyou may also book them at Autscape itself.___ Examples ___For examples of what has been presented as part of the Autscape mainprogramme in the past, see the presentations from previous years at:http://www.autscape.org/2017/programme/presentations___ What do we expect from you? ___Reliability: you need to be able to assure us that except for unforeseencircumstances you will be there to present as agreed.Presentation materials: please send copies of any handouts and computerpresentations (for example, PowerPoint) by the date requested (to beconfirmed, about two weeks before Autscape). These will be madeavailable for download and printing by Autscape participants. Inaddition we can print a limited number of pages for handouts. You retainthe copyright to your material.Your details and presentation summary: the summary and bio you submitwith your proposal will be published on our website. You may correct,modify or update them once after your proposal is accepted (except forany errors that are our fault).Permission to record: as a reasonable adjustment for people withprocessing difficulties, some audience members will audio record yourpresentation for personal use. This is *not* optional. We may also seekyour permission to video or otherwise record your presentation. Theserecordings may be made available to others by Autscape. This *is*optional. Denying permission will not prejudice decision makers againstyour presentation, and permission can be withdrawn at any time prior todistribution. If you have any questions, please let us know so we candiscuss it.___ What can you expect from us? ___Accommodation: you will receive one day's attendance at Autscape free ofcharge. Presenters will be accommodated on-site for the day of theirpresentation including the night before or after. Only one such placecan be offered for each presentation, regardless of the number ofpresenters. Whenever you are not presenting you can enjoy the event,including other workshops and the setting, just as any other participant.Audience: a rare opportunity to be heard by a significant number ofautistic people. A chance to have some influence and get some feedbackfrom the people who matter most in the field of autism.Respect and consideration: we will do our best to meet any special needsor requirements you may have, as long as you communicate them to us withsufficient notice.___ How to submit your proposal ___To submit your proposal, please use the form here:http://www.autscape.org/proposals/proposalformIf you have difficulty accessing or completing the form, please email:programme@autscape.orgWe do not accept submissions by email unless you have exceptionalreasons for being unable to access the form (for example, learningdifficulties or technical limitations).Due to a high level of competition in recent years, late submissionswill not normally be considered. If you think you will have any problemswith the form, the deadline, or any other aspect of submitting aproposal, please contact us *before* the deadline. Submissions by othermeans or after the deadline should not be considered accepted until orunless they have been acknowledged by the Programme Coordinator.The board will decide which presentations to accept for Autscape andwill inform everybody who has made a proposal of their decision by 16May 2018.Remember, ALL PROPOSALS MUST BE RECEIVED BY 16 APRIL 2018.
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