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ASD 12 year old and school BCG immunisation programme


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#1 jennifer8


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Posted 27 March 2013 - 04:45 PM

Hi, this is my first post and I am looking for advice on the safety of the TB jab for my twelve year old autistic son. His autistic history is pretty classic. He was a very healthy infant hitting all milestones up until a year old. I stopped fully breast feeding at 11 months and switched to formula, an ear infection / glue ear followed. The doctor gave him antibiotics and within the space of 3 months everything changed. Severe stomach problems, loss of existing language, less eye contact, repetitive movements of head and hands, Extreme sensitivity to certain sounds. Spinning round and round for ages.

I did not give him MMR as I did not think his system could cope but he took a bad reaction to his HIB jab at four years old. However, we turned things around and he has made huge progress.

Having done years and years of various interventions, diet changes, Johanson sound therapy, speech therapy, cranial massage, Fastforword, physical exercises, he is now on the milder end of the spectrum.

Yesterday I got a letter home from school informing me of the Schools BCG Immunisation programme and I am in a panic. What could happen? Could this cause any kind of regress? When he has been stressed in the recent past he has started blinking and not been able to stop. When he realises he can't stop, it gets worse, like a tic. I am afraid that if he takes a reaction to the jab something new [ or the blinking ] might start up and not stop.

Can anyone give me any advice, please. My own doctors have been totally useless in the past. All our interventions have been through our own efforts. So I can't ask my docs for advice.

#2 caci



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Posted 27 March 2013 - 06:36 PM

No specific advise, but in our area, kids are not routinely offered BGC.

Those considered high risk, can have the BCG at their GP, but none given at schools.

It might be worth finding out if your son is considered high risk for TB, and base your decission around that.

#3 jennifer8


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Posted 27 March 2013 - 09:12 PM

Thanks for reply. He wouldn't be considered at risk for TB. I have to give the school an answer on whether he can be part of their immunisation programme by tomorrow. I think I can't take the risk of getting it done, considering how he reacted in the past.

#4 Sally44



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Posted 31 March 2013 - 12:14 PM

My son has only had one injection. He was about 2 at the time. ASD behaviour had already started so I cannot blame it on the jab. But he is hypersensitive to touch so the nurse and I had to pin him down to give him the injection. Our GP has advised not to try to give him vaccinations, not because of the fear of him regressing. But his anxiety and the fact that we would have to pin him down or put him under to give him an injection.

The whole point of a vaccination programme is that if the majority of the population are covered, it is less likely to take hold. But there is always the risk. But would your son stay still for an injection? I know mine wouldn't.

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