Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team

All Activity

This stream auto-updates     

  1. Today
  2. Equality

    28 years ago, there was still a formal apartheid, or women mightn't drive cars, vote, etc just 99 years ago because were deemed as less-worth (whoever said they're idiots because the society accepted a harassment and depressions of any of their rights), and before there was even a slavery (people had given as many rights as animals). I'm happy that we've got over and it's not normal to depress the human rights of women, or Africans. Now it's not normal just because each one knows that someone defends the rights and there are still fewer people trying to brainwash the rest, still fewer people see any chance to break it. Meantime, in the society, it's absolutely normal to call aspies and people of other disorders "morons" (harass, humiliate you). We are still living in a society were anyone deemed as disabled can lose rights for information, privacy, or any other rights and be permanently harassed because none minds. It can go worse. Actually, I know a story wherein the public accepts even the non-acceptable arguments as reasonable and says like "a-ha, so then that's ok", without any proofs (just like "someone said"). On the other hand, the weight of your word isn't equal. I can see the growth in the suicide rate among the young with disorders (because they don't wait for a happy end and perhaps, some of them take too many things personally...) and because of what? I can see many more and see that is the time to take an action...
  3. Yesterday
  4. should we stop artificial inteligence?

    It looks that you would take a job from a lot of aspies working on AI.
  5. Socialising and dating opportunities

    I believe you that he's very nice, because at 8/10 cases, they wanted me when thought that I'm a bad boy and later got disgusted by the truth, or when I didn't flirt at all, just wanted to make a friend. The primary problem of aspies is the reading of facial expressions and between lines (don't know surely when and what a potential partner really wants), but the vast majority of girls will wait for his actions (and, perhaps, prefer indirect phrases that he doesn't use more than direct expression), they don't take absolutely full control of the meeting (I don't say there aren't exceptions, but that's the statistics). To be honest, you're a very sympathetic mother but who will want a boy which isn't independent of parents even at 24? If you go with him then it works as a repellent. He's an adult Aspie able to do everything by himself, no? I would advise him to read C. G. Jung and psychology in general because that's exactly what should make the difference. For example, it's for a few minutes to learn the body language, it's very easy to fix it and it works for all aspies.
  6. Last week
  7. Hi, I am living in Middlesbrough. My 8-year-old son has autism and has additional needs. We have now decided to move to Leeds, so I am looking for the choices of primary school for him. The best choice for him is probably a mainstream school with autism unit/provision, but I don’t know how to find these schools in Leeds since I don’t know anybody there. The Council has given me the names of two of them but I am searching for more choices if there is any. Does anybody have anymore info in this regards? How is the level support for ASD children in Leeds?
  8. Earlier
  9. 'Cruel' pauper funerals don't allow family and friends to mourn loved onesThere is no ceremony to attend if a pauper funeral is organised by Exeter City CouncilFamily members are not able to attend services paid for by Exeter City Council - also known as a pauper's funeral.In such instances the local authority pays a third party to carry out a closed cremation of the body.No ceremony is held and the council is not told when the cremations are taking place - so it is not possible for the family and friends of the dead person to attend.An investigation carried out by the Sunday Times said that in a leaked letter a city council official told a grieving man: “The body is passed to the crematorium in Exeter, who arrange a closed crematorium...this is not open to friends or family, I’m afraid.”Earlier this month, Devon Live reported how residents in Magdalen Road, Exeter, were planning their own fitting farewell for popular community figure Monica Law, 82, after being told a closed cremation had been arranged for her by Exeter City Council which they were unable to attend.In response to the Sunday Times investigation, an Exeter City Council spokesman said: "The council pays for the services of a third party to carry out ‘closed cremations’ in these circumstances.“In these cases we may write to friends or family informing them of the situation. However, there is no ceremony to attend."Because of this arrangement the council is not aware of when these funerals take place.”More than 110 MPs have told Theresa May to act on the funeral poverty “crisis” following the Sunday Times investigation.The MPs signed a letter to the prime minister describing the findings as “a national disgrace”. They demand a system to stop councils using “sickening” tactics to deter poverty-stricken residents applying for public-health or pauper’s funerals.“Councils across the UK are indulging in cynical punishment of the poor."A no-frills funeral is one thing, but it is unfathomable that the poorest families are being banned from attending those funerals full stop,” it reads.“One woman was told ‘don’t bother’ when trying to attend her brother’s public-health funeral last December. This behaviour must end.”The campaign is led by Carolyn Harris, Labour MP for Swansea East, whose son, Martin, eight, was killed in a road accident in 1989. She used a load and a “whip-around” to pay for the funeral.Exeter MP Ben Bradshaw said: “This feels like we’re returning to the cruelty and indignity of the Victorian age."Funerals are when we have the chance to say goodbye to our loved ones and celebrate their lives with family and friends."Their dramatically rising cost and the growing poverty suffered by some families under this Government are making tragic cases like this all the more common.“People can apply for help with funeral expenses from the Government’s Social Fund, but this has not kept up with the rising cost of funerals and the Government should review this as a matter of urgency.”Source: Exeter Express & Echo via Devon Live
  10. BBC news story " The watch that can help manage severe autism By measuring stress and anxiety levels, this wearable device could help people communicate. ... " : https://www.bbc.co.uk/news/av/health-44680214/the-watch-that-can-help-manage-severe-autism
  11. Moments That Relax You

    Another discount is available on Forest Holidays, this time for 5%: More info
  12. The Australian Interrogative Intonation

    Even worse is the excessive use of "like". Aaagh!
  13. We should create our own country. 悠哉國.

    Why? What if none of his descendants want to do the job, or are any good at it? Is it really fair to subject anyone to such expectations? Look at the damage caused to the current heir to the British throne: Prince Charles, a victim of monarchists' cruelty (originally written in 2003, prior to Charles's second marriage)
  14. We should create our own country. 悠哉國.

    We are going to backing up the Descendants of Dr. Johann "Hans" Friedrich Karl Asperger to the throne. See also: World Aspergers' Organization's Royalist International
  15. We should create our own country. 悠哉國.

    Royalist? How are we going to choose a monarch?
  16. reasons to smile and be happy.

    Here's another one, the aptly-named Frensham Great Pond near Farnham in Surrey: The secret beach in Surrey that you might not know exists
  17. Gaming meltdown

    Hi all - just joined and already value reading your stories and would love your advice. We have a 13 yo boy who has some characteristics that would seem to suggest Asperger traits - obsessions, struggle with close friendships at school, hates change, lacks some empathy - but otherwise seems to be coping better with life than most teenagers. We have only realised possible ASD in the last few months since he hit his teens so it's very early days and while he is coping OK we are keeping our thoughts to ourselves. His current obsession is x-box gaming (fortnite of course - but issue is true of all human vs human battele games) and with usual mutual frustations we have agreed time limits for playing and separately watching youtube videos. I'd say he's a better than the average player but he really struggles with losing which is most of the time by the nature of the game - it can never be just one of those things/bad luck/better player, its always someone cheating, error in the game, internet lagging, etc. At first (January) it was shouting and moderate swearing which we worked on, but more and more he is crying and screaming with rage/unhappiness. He broke an old laptop so was warned that next time something gets broken that would be the end of it. If he plays say 15 games/day unless he gets a win early on his moderate anger will ramp up and so will his reaction to failing to win. He can't be persuaded to take a break so launches straight back in and unsurprisingly he's even less likely to win because he is so angry and under more self pressure. He will then scream at my wife and I and shut us out. We do our best to sit with him and reassure him but we struggle with what to say/do until time's up and after 15mins he can calm himself down and be more rational. I've read many of your stories of undesirable activities/noises that can create meltdowns but what is best when that is associated with his biggest love/obsession? My natural desire is to protect him by removing the game/x-box but if he is on the aspergers scale is this best or should we just accept this is part of his life? He's aware of the stress and hate of losing but the buzz of winning maybe 1 in 25 games or the need to be the best overrides the negatives in his eyes. I can't think it good to have this love-hate-self-lothing association building up. Should we stop him playing to protect him or should we just pur our fingers in our ears and let him get on with it? In our weekend quiz he said his biggest fear is failure so things are begining to fit but we are desparate for some pointers for coping with this specific challenge... Thanks for reading.
  18. " New guidance making it easier for people with autism or a learning disability to navigate the internet safely and legally has been produced ... " : https://www.thecourier.co.uk/fp/news/local/fife/669435/fife-at-forefront-of-new-internet-guidance-for-people-with-autism-or-learning-disabilities/
  19. " 'Clever genes' may lead to autism, anorexia and bipolar - but protect against Alzheimer's, claim scientists ... ": http://www.dailymail.co.uk/health/article-5873515/Clever-genes-lead-autism-anorexia-bipolar.html
  20. Needs being neglected in school

    I understand being loath to move her as you've already done it once. What does your daughter want to do ? Stay at present school or move schools ? I ask as I was also loath to move my daughter, but she kept saying she didn't want to go to school and what a horrible time she was having every day, and I kept trying to help saying ' it will get better' etc. But all I was really doing was extending her stay in a totally miserable, unsupportive environment. She only began to believe things would get better when she began at the new school.
  21. Needs being neglected in school

    Thank you Spam! Am so sorry for delay in responding, only just got picked up your reply. Firstly I should say that we have already moved my daughter once to an alternative school (for other reasons) so an loathe to do it again. She has had a slightly better week in that she has been assigned ‘library monitor’ (at my suggestion) and has had positive feedback in how helpful she has been. She has enjoyed this but it is becoming apparent that the separation from her the rest of the class is creating a psychological barrier. To the point where she doesn’t want to go outside and play. i have emailed the Head/SENCo saying they whilst being given a short term job is all well and good, it doesn’t help my daughter long term. There needs to be a proper strategy put in place to support her , particularly in social situations. This has been pretty much been swept under the carpet. Sadly she is also recounting tales of other children being unkind to her now either to her face or behind her back.
  22. We should create our own country.

    If you're bored right now, think about it. We always complain about how bad the others treat us. Maybe having our own country, our own rules and an education system will make a difference in our lives. ----- Autismland is a royalist democratic party in World Aspergers' Organization. Autismland is a member of the World Aspergers' Organization and the World Aspergers' Organization's Royalist International. Programs Welfarism. Backing up the Descendants of Hans I (Dr. Johann "Hans" Friedrich Karl Asperger) to the throne. Positive aspects will be: Royalism. Reformism. Building onto the British know-how and institutes. A Western welfarist monarchy modelled after Great Britain. Symbolism The infinity mark symbolizes the sovereign Autist state. Royal colours, the dark red and gold symbolizes the Royalism. The Anglican Bible verse quotes a part of Malachi 3:10 from King James Bible, as a symbol of the welfarirm and the British model. External links Twitter Account Chat Room
  23. I was falsely diagnosed with adhd at 6 but i new something was building up before i was diagnosed with aspergers syndrome at 18 when i was 13 now a long long long long long long time ago i had a staqtus epilepticus and the aspergers wish had been deteriatin since i was 18 sudenly became late onset regresive autism and acording to the dr at the hospital it is combined wiv peter pan syndrome so i have the worsed and best part of asd worsed cause i never goin to be out of pads now because of ibs and epilepsy combination best because i a have a childhood back that i never had in first place but i cant grow up anymor now ever were progress happens in the peter pan syndrome the autism conteracts and vis versa mentaly i 7 I now in care home for rest of my life
  24. If you're bored right now, think about it. We always complain about how bad the others treat us. Maybe having our own country, our own rules and an education system will make a difference in our lives. ----- A simple idea with the ultimate aims of: forming movements with the aim of founding a sovereign state for our kind. People founding their own movements and parties according to their own desire (for example Royalist International) and be a member of WAO, the only condition is that it must be pro-democracy. Fast and confident state-building. Branches World Aspergers' Organization's Japanese Branch World Aspergers' Organization's British Branch Members Committees for Preparation of Aspergers' Independence Autismland Royalist International Autist Reformative Front Symbolism Hexagon symbolizes the neuronal cell. External links Official Twitter Account
  25. I'm a few years younger than yourself. My niece is 5 and has a terminal illness. I think about her on a daily basis even though I can't see her as often as I would prefer. This causes really extreme anxiety. Are you in contact with any cancer charities? I know the national autistic society has a section on bereavement etc but that's aimed at people who know someone is dying or has died. http://www.autism.org.uk/about/family-life/bereavement.aspx Do you have family and friends to support you? Hope you find this forum supportive and helpful in reducing your meltdowns etc. I find the 'Stickman communications' cards to be invaluable in explaining to people what I'm feeling and thinking and my needs at the time.
  26. Hello, Recently diagnosed HFA at age 41.had stage 4 cancer for nearly 2 years and always found the uncertainty of the diagnosis (not been given a time frame) the absolute worst part of it, worse than the thought of dying itself, with this HFA diagnosis I guess I know why. It's actually driving me insane, I can't cope with not knowing, scans every 3 months and the wait times, it's all too much, can hardly deal with a change of daily plans, this waiting around to know when I'll next need treatment or going to die is unbearable. I depressed and having meltdowns more than ever, i wish the cancer would do its job a lot of the time. This isn't an intervention or cry for help, just stating facts. If anyone has any experience with this please can you give me advice, thank you.
  27. Admin note: as this has approval from the University ethics committee this research has approval to be advertised on here.
  28. PARTICIPANTS NEEDED: -Aged 11-16 years -Children with an Autism Spectrum Diagnosis -Mainstream school AIM: To investigate the connection between the friendships of children diagnosed with ASD and their emotional wellbeing within a mainstream school environment. WHY THIS RESEARCH? As persistent impairments in social interaction and communication are central to a diagnosis of Autism Spectrum Disorder (ASD), many children with ASD experience difficulties in developing friendships and relationships with their peer group. This may place them at a higher risk of social isolation and loneliness which may ultimately lead to the development of mental health problems. Therefore, the impact of friendships is of significant concern to the success of a child’s education. Your participation will be crucial to help further this research. WHO TAKES PART? Children aged 12-16 years WITH (and WITHOUT) an ASD diagnosis and their parents. This research project has been approved by the University of Bath Ethics Committee. Information provided will be kept anonymous and confidential. At no point will the children’s full names or identity be disclosed. HOW TO TAKE PART? The children and their parents will be asked to complete 3 questionnaires each to measure friendships and emotional wellbeing. The study will then compare child and parent perspectives. These questionnaires are online should take no more than 10 minutes to complete. Child Questionnaire Link https://bathpsychology.eu.qualtrics.com/jfe/form/SV_9o9cdpZaoGiF4xf Parent Questionnaire Link https://bathpsychology.eu.qualtrics.com/jfe/form/SV_cOUgmEYAwAsEL89 Emma van Gelder Email: efvg20@bath.ac.uk PARTICIPANTS NEEDED.docx DO YOU HAVE AUTISM SPECTRUM DISORDER.docx
  29. PARTICIPANTS NEEDED: -Aged 11-16 years -Children with an Autism Spectrum Diagnosis -Mainstream school AIM: To investigate the connection between the friendships of children diagnosed with ASD and their emotional wellbeing within a mainstream school environment. WHY THIS RESEARCH? As persistent impairments in social interaction and communication are central to a diagnosis of Autism Spectrum Disorder (ASD), many children with ASD experience difficulties in developing friendships and relationships with their peer group. This may place them at a higher risk of social isolation and loneliness which may ultimately lead to the development of mental health problems. Therefore, the impact of friendships is of significant concern to the success of a child’s education. Your participation will be crucial to help further this research. WHO TAKES PART? Children aged 12-16 years WITH (and WITHOUT) an ASD diagnosis and their parents. This research project has been approved by the University of Bath Ethics Committee. Information provided will be kept anonymous and confidential. At no point will the children’s full names or identity be disclosed. HOW TO TAKE PART? The children and their parents will be asked to complete 3 questionnaires each to measure friendships and emotional wellbeing. The study will then compare child and parent perspectives. These questionnaires are online should take no more than 10 minutes to complete. Child Questionnaire Link https://bathpsychology.eu.qualtrics.com/jfe/form/SV_9o9cdpZaoGiF4xf Parent Questionnaire Link https://bathpsychology.eu.qualtrics.com/jfe/form/SV_cOUgmEYAwAsEL89 Emma van Gelder Email: efvg20@bath.ac.uk DO YOU HAVE AUTISM SPECTRUM DISORDER.docx PARTICIPANTS NEEDED.docx
  1. Load more activity
×