Julieanne
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Posts posted by Julieanne
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My son is 9 and we just moved to a bungalow with fields all around us , as he likes to escape and run off, which of course to him was a huge game...we have locks everywhere, and we all carry a lanyard with keys around our necks at all time...it really is like living in a prison rather than a home.
He went to spend a night with his grandma, and she left the window open slightly, with the lock on, he managed to force the window open and escape.....he has amazing strength for his age ( 9yrs).
It happened at 6am and he made his way up her lane to the busy main junction where a passer by found him in just jim jams, and laying in road
who luckily wasnt a weirdo and he held her hand and said ''go to grandmas house'' and hr lead her back. the police were called by this lady who found him as she realized quickly he was low functioning autistic and my poor mum in law was in bits, she feels so guilty about it happening, but all we can do is take the maximum precautions, he is a real houdini and could get himself out of chains that boy!!!
But thankfully he was fine, social services were involved and they seemed to think this sort of thing was common amongst autistic children.
I have never been so scared in all my life, and what worries me is that what happens as he gets older?
I have padlocks galore and i worry for the future.
has anyone had anything like this with their child, and if so, did he repeat it? he just laughs and thinks it is great fun while all time we are having a heartattack
I was scared social services would take him away with them thinking it was negligence, but they did understand, and it is hard when u make your fences higher than normal, locks everywhere, gates, window locks, every concievable thing and he still escapes, i just am so scared of what he may do next.
Any advice?
Thankyou Julieanne xx
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I have been told that i can get Jay into a place where he can go and possibly after a period of time stay overnight. It is a place run by the local council and is part of his respite care. I currently get 12 hours a month family link, with a family that have known jay for a long time and he has built up a strong bond and we trust them completely.
With this placement because he may stay overnight, he becomes in ''care of the local authorty''. I am not sure about this. And would like to know other peoples views on their experience with this and how they got on.
Does anyone currently have this as respite care for their child?
Thank in advance for any replys
Julieanne x
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Yes, sometime I feel like I am "grieving" for the person that my daughter would have been, but never will. Then I feel terribly guilty for wishing that she was different from how she is.....I love her dearly, and I worry what the future will be like for her. Also I feel so resentful and angry about having to fight so d@mn hard for her to be properly educated, when other children just have an appropriate education given to them, because they are NT.
It is just so hard somedays, seeing other children running out of school, telling their parents all about their day at school, when DD doesn't...
Seeing other children playing with their friends - DD has NO friends. It just tears me apart; almost physically painful for me some days.
So yes, I feel the same some days.
Other days, I watch her playing, happily on her own, see her beautiful face, (she is stunningly beautiful, I know I am biased, but it is true) lit up with the biggest smile and my heart just fills with love and happiness that I am her Mother.
I know exactly what you mean when you say you are grieving for the person your daughter would have been...I feel exactly same about my son. It is hard to watch other children doing the normal run of the mill things and knowing my son wont ever do them...it puts a lump in my throat. I love my son dearly, but i think as a parent of a severly mentally disabled child, it is something that will always stay with me, and im sure other parents can relate to that.
thinking of you all
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<'> >< <'> >< <'> >< <'> >< <'> Thankyou so much for the replys, it means so much and it is nice im not alone!! -
Yes I get it too.I can go long periods when my son is doing well and I am having no problems at all. Then something will happen like he's invited to a party and when I go and meet his 'peers' and see how they are talking, playing, interacting etc together and he might be examining a shiny piece of paper on the floor, then it is a sudden moment of realisation of how wide the gap is. Not necessarily in intelligence, but in motivation and interests etc. So I would say that just because your child is in nappies does not mean he is 'at that level'. He maybe way ahead in other areas, but just does not have the skills to demonstrate it. For example, my son who is 8 and still cannot read or write asked me the other day, when we look at something, why don't we see two pictures ie. one from each eye. So I explained to him how the eyes work and how the brain and muscles pull together the two imagines into one. I can't imagine another child his age even asking that.
I also remember watching a video on You Tube by Amanda Baggs called 'in my words' (if I remember correctly). This woman appears severely autistic and you would automatically assume of very low IQ. But watch her video and it makes you realise you can never judge anyone on their outward appearance.
And your child will develop. It is harder for us because we don't know how that will be because they don't necessarily follow the developmental stages of their peers.
But there will always be good days and bad days.
<'>Hello Sally, thankyou for taking the time to reply.
I had jay assessed and he is currently 9 years old in age but mentally no more than 21 months, i do appreciate what your saying, your right as in some things he seems to be ahead...yet others he is his ''mental'' age. It is so hard being a mother of a disabled child, and my husband and i have been told that jay may never leave home as he cannot do anything for himself, his learning difficulties are on such a great level.
I will look on youtube for the video you mentioned
thankyou for that It is nice to know i have support and there are others out there that can understand what we all go through, as i find alot of other people with mainstream children do not understand how hard this can be.
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Hello, I havent posted for a while, busy moving house which i am thankful to say that with jay went very well
I have just been with my little nephew who is nearly 2 and still in nappies so mentally same as jay as jay is also in nappies still...and you cant but help feel a sense of loss..im not sure if i know how to explain it properly but it is kind of a ''smack in the face'' when u see a child that is 4 times younger then your own doing exactly same things, only my little nephew understands more and answers to things u ask him, with nodding of head etc, although my nephews speech isnt all there yet, i just felt like it brings it home to me more.
i was wondering if anyone here feels or has felt this way and im close to tears at the moment, i guess i thought i had come to terms with jays disability and exactly what it means for rest of his life, as in always living with us etc...but i dont think i have
Anyone relate to this?
Thankyou for any replies in advance
Julieanne
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I can so relate to the whole ''isolation'' thing...we have found that in the last 7 months that hubby's family are keeping their distance away from Jay.
hubbys mum just doesnt offer to have him there anymore and she only sees him when we take him there. and one time back in summer, we were down there, hubs sister was there with her ''perfect'' family and jay went off on one as he always does..and she took herself off to do the ironing and looked a few times but hardly said anything...then when we left it was a look of ''thankgod for that, we can have peace now''
We dont go out either, we have been called anti social by family members, but they simply wont accpet that jay cant handle social situations, it is us locking ourselves away apparently.
as for friends, when jay got diagnosed it took me around 18 months to come to terms with it, and even now im not sure i have...anyway she said to me one day when i got teary..''have him adopted if you dont like it'' i was horrified that wasnt at all what i was thinking and i thought omg!
however when her daughter may have had to of worn glasses when she was 4, she creid before she took her to the opticians as she said she didnt want her daughter picked on and how horrible is it for child to wear glasses...
well if all i had to worry about was whether my child was wearing glasses i would be a happy bunny...instead i have a severley disabled lower functioning spectrum child who will never leave home, but im not allowed to be upset!
so yes i know all about isolation...
hugs to all
<'> >< <'> >< <'> >< love Julieanne xx
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Taken from the National Autistic Society website, I am sat here in tears because this poem could have been written about my little pA poem by Brian J. Webb, grandfather of a boy with autism. The piece was inspired by attendance at the EarlyBird Plus course (by the NAS).
"I have recently been on an NAS early bird plus course with my daughter. My grandson has Asperger's and I found the course excellent, I learned so much from it. It inspired me to write a poem from my grandson's point of view, which I gave to my daughter. She took it to the course and it was read out and positively received. Two of the teachers on the course have taken it to their schools to help other children to understand Asperger's."
"My name is Charlie"
My name is Charlie; I'm different to you
I don't see the world the same as you do.
You see a classroom and I see a chair
I don't always notice what else is in there.
Too much information keeps coming my way
It's so hard to cope with, day after day.
You show me so much that I don't always see
One step at a time is the best thing for me.
Bright lights and loud noises upset me so much
An unusual smell, or somebody's touch.
When you look in my eyes and I'm looking away
I'm not being rude if I don't hear what you say.
I'm not being awkward; I'm just doing my best
I'm striving so hard to be just like the rest.
The times when you think I've not really tried
If only you knew how that hurts me inside.
I want you to like me the way I like you
If only you saw things from my point of view.
Your life and my life both run parallel
Yours seems like heaven, mine's sometimes hell.
Whenever you're frustrated at the things that I do
Remember
You could have been me and I could have been you.
� B.J. Webb. 2007
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Thankyou for that, it made me cry...awwwwww !!!!
hugs xxxx
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I know even after nearly 9 years i have not fully and i dont think i ever will come to terms with jays autism/communication/learning difficulties.
I have been having a bad morning and cant stop crying, im not always like this so im not sure why this day is any different to any other ??
I said to hubby, eldest will leave home, and yet youngest wont, and someone said to him that he knew a couple who have a 57 year old suatistic man living at home still with his parents that has a menatl age of 5..jay is like that he is around 3 years and the gap is widening by the month..
I dont want everyone to think im selfish but i cant do all things other people can do, like family meals out, family holidays, normal stuff and im going to be tied...i dont know if i can do this!?
i dont like idea of residential, heard too many horror stories...and family dont understand, all i get is..''its the cards you were dealt with'' im like'' ya think'' ( like i dont know that already ugh!!!
im just finding it all too much right now and even though i love my son to bits, i still have my ''days'' & i wondered if anyone else felt the same?
hugs Julieanne xx
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I just wondered if any of you can relate to this at all...
I got a call from Jay's school yesterday saying he had to have special fitted shoes as he is a little more then pigeon toed, and they had gone ahead & ordered them....which i guess is ok, as he needs them and i am all for doing the right thing where my kids are concerned, but then why do i feel like crying?
I did have a cry yesterday and im on brink now
maybe i havent fully come to terms with his autism, his mental age of 3 ( yet he is nearly 9) and maybe i see this as yet something else, i know that mainstream children may have to wear these too, but i dont know i feel like its something else to deal with.they are called piedro shoes, they look fine, not that bothers me, but i guess what it is, you get your head round something then along comes something else, a bit like my eldest child having dyslexia, its something else to deal with.
maybe im being silly, but i want to get a little bit of normality back in my life, and i try hard, with the obvious adjustments and i dont know why im blubbing!!
does anyone understand what i mean?
thanks Julieanne x
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Hello Everyone, I wanted to ask you all something...
I am due to do a shop to supermarket possibly saturday, but that means taking my son who has ASD with us...hubby doesnt want too, he says it is too stressful , he gets so angry with people staring and he feels he cant take all the nasty ''comments'' anymore. I however am a little bit stronger in dealing with it, and i feel that why shouldnt we take him, i can go when jay is at school but i feel why should i? if that makes sense, he has every right ot go to a supermarket if he wants too, he isnt a monster! lol
But from the stressful side, my poor hubby gets so wound up all in defence of our little one, which i throughly understand. i am disabled myself i have nerological problems, use crutches to walk long distances, and i have degenerative discs in spine that cause me alot of pain so i cant go on my own i have to have hubby with me. hubby doesnt work at the moment as i cant always deal with jay due to the pain im in on a daily basis, so he is around in week to help me with household stuff and to be here to collect jay to and from school as i cant always drive due to the conditions i have.
just wondered if anyone else had a partner that felt this way? i also feel mad at people with their ignorance but as i say i can deal with it better i think..
it is getting him down so much that he feels that he doesnt want to go out, can anyone else relate?
thanks and hugs to all
Julieanne x
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Hi all,Any suggestions for ANY good disability related films ?
I am proposing we have films in week of 17-23rd this month (disability awareness week) on this theme.
Thanks
I have the following for autism/aspergers:
Snow Cake
After Thomas (Documentary)
Hello..just went on net and found the following films that may be of help to you
Rainman....little man tate....whats eating gilbert grape....forrest gump...under the piano...i am sam...autism the musical...her name is sabine...i havent viewed all of these myself, but from the search i put it, i pressume they are what you are looking for.
good luck!
Julieanne xx
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Having a rather hard time of things with Jay at the moment...he is shouting ALL the time..he cant seem to speak quietly, and is very random so like on saturday when we went to tesco's i had a member of staff say '' for gods sake '' and looked at me like i was a completely ###### parent with a unruly child
i did complain about her and im in process of getting onto head office to make tesco stores ( at least) autistic friendly as us parents are under enough stress without feeling like we cant go out anywhere which is how myself and my hubby feel now...want to lock yourself away...ugh!
and then today as i went shopping i had a customer mutter something and give me a awful look as jay was again shouting and i just lost it and said '' my son is disabled , he has autism OK?'' maybe not the best thing but i have had enough of ignorance...
i then left the shop crying and not finishing my shopping and sobbed all way home..i get home and jay starts again...this goes on for hours...from 6am to midnight...all the time...i am at the end of my tether...social services are ###### here on isle of wight and i have had many dealings with them, promising me this and that but of course it never happens...
but anyway i wanted to know if any of you have a autistic child that constantly shouts everything, every noise they make..and what coping strategys you may use...i have tried everything from fingers in ears...to saying with visual cues..''too loud/noisy'' he laughs and thinks it is a complete game...
anyone relate or help please?
thanks for listening and for any replies in advance
Julieanne
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how on earth will I ever get my 13 year old son to bath himself, and get dressed in a morning withoout me stood in the room, telling him step by stepWe ve tried so much, charts, bribery, pictures, tick charts, feel such a failure really
its laughable, I can still see me doing this when hes 19, fed up
Doesnt help that we re all on egg shells waiting to see if the school we ve requested in his statement will be named, the school have asked for extra funding for occ therapy and speech and language,
I just feel so hopless, i know its probably only going to be weeks now, but god its been such a year
we have had a year of battles, first for his diagnosis, then statement, now the las t bits are dragging
Hes basically had a year where he hasnt had the same education as the other kids
I feel like i resenet him today, all I want him to do is get a bath, is that so unreasonable, Im not asking for a miracle, or maybe I am
I know he doesnt do it intentionally, but wehnever we try and find ways to help him the barriers are up, I feel like he doesnt help himself
Sorry for moan, just finding it all consuming today, our lives 100% revolve around what he needs and wants, and he seems to be getting more and more controlling
I know this is due to school, etc, just want adolescence over with, its never ending xx
here is a
<'> <'> <'> and i hope that your son gets the help and proper schooling he deserves -
Well, I joined these boards a while ago to find out more about Aspergers in order to help my little brother who was diagnosed last year.. Only to find that in the past few months my psychologist suspects that both myself and my Dad have it too. I've looked into it and I was so shocked that everything that I've struggled with since I started walking and talking is the same for other people on the autistic spectrum. It even explains physical problems that the doctor hasn't been able to work out such as why I never know when to use the toilet until it's too late
And why I had an extreme phobia of food and was hospitilised a few years ago. I guess I just didn't see it, because although my little brother and I are similar, he's far more aggressive than me and there are just differences - e.g I like to rock myself when I'm stressed, where as he fiddles with his hair, I have severe OCD, where as he shows no signs of it. Maybe I was just in denial? But I'll be having an assessment soon and I'm also having an EEG because I've been convulsing in my sleep and waking up soaked in sweat and a sore tongue where I've bitten it. Epilepsy, maybe? It only happens in my sleep though..Anyway, I wanted to ask if sensitivity to temperature is common or not? Because it doesn't affect my brother.. But I am always cold! I'm wrapped up when everyone else is in shorts and t-shirts (again as a child, I was sent to the doctor because of this and they could find no cause). I've also suffered a number of burns over the years because somehow I didn't feel it
So I have to be careful with the kettle and in the shower, ect. Although my Mum usually does these things for me anyway.Just wondered if anyone can share any experiences
Our son Jay has ASD and learning difficulties, but i feel he too may have a sensitivity to tempreture...he hates wearing long sleeved tops/fleeces /jumpers....etc.....and will go out in his pull ups only (as he strips off to just them when he gets home from school) and will jump around on the trampoline with ice on it( if we let him LOL)
he doesnt feel the cold hardly...he is happy with just pull ups on and only wears clothes if he is leaving house then he strips off when we have reached our destination LOL so maybe he has a sensory thing going on??
just wanted to let you know that your not alone!
bless their little ways!
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Hi,I have just phoned the foster carer to check on Kai. She said he's been very distressed and crying. He's begged her to give him money for the train to come home
. She said he won't eat and has been in the bedroom all day, refusing to come out. He has smashed his mobile phone up, pulled her curtains down and ripped off her wallpaper . He's also been swearing at her and her husband.She said she can't have him back as he's so distressed and destructive.
I had no choice but to send him as he's so violent to me and my little one.
Now i feel awful. I can't stop crying
. What am i going to do? Hopefully he'll be happier when he gets back to school in the morning. Even though he doesn't really like it there, at least he has his friends.
I suppose i'll have to phone my totally useless SW tomorrow and see what she says.
Loulou xx
Just wanted to say Loulou, that my husband and i have been thinking about you and Kai and wanted to send
<'> to you.It must have been so hard for you to take the desicion that you did, but i think you have so done the right thing sweety.
the foster carer in question has amazed my husband and i as with 20 years experience she flaps at first sign of Kai acting destructive!!
How did you get on today with social services? ours here on Isle of Wight are useless....
sending you hugs and thoughts to you and for Kai too xxxxxxxxxxxxxxxxxxxxxxxxx
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Well I thought I,d post something a little bit light hearted, and positive .My son has always been very fussy(understatement), where food is concerned.As a baby he was very sickly 
, he was difficult to wean and would,nt have anything with lumps in it.His food was still pureed when he was 3 
.He then went on to have a very limited diet which over the years has become a little varied, but not much.Vegetables have always been a big no no, pizza, chicken, bacon, sausage, chips,cake and yogurts are what he lives on.............no fruit either.He had a lot of sensory problems going on with taste and texture and very often he would vomit food straight back if he had food with a funny taste or lump he did,nt like.This developed into a real fear of trying new foods..........However today I thought right ..enough is enough...............lets have a go with a jacket potato
............he has recently started having small very crispy roast potatoes so I thought he might go for it.
.............well when I told him he was getting chicken and a jacket potato for tea , I was met with..."you bl**dy c*w"......
..... he was not very happy as I was insisting he was,nt getting anything else and that if he did,nt like it he could leave it , but that was what he was getting....he did,nt have to eat it but just try it , I was asking no more.Anyhow I dished it up and his face was thunderous, .............he said it was disgusting, ..........and he was never eating another one..............but unbelievably he ate most of it 
.............he did leave the skin......... (we can work on that later )............I caught his eye as I took his nearly clean plate and he rolled his eyes at me and gave me a scowl that actually looked like it might turn into a grin 
.Anyway I told him I,ll buy him his fave tractor spottting magazine tomorrow as a reward 
, but he does have to go to bed early tonight for calling me a bl**dy c*w! ..............edited to add he is 13 now , and we,ll be giving a few more things a try too.I must say I think this positive step with trying new food has come about because he is older now , it has definitely got easier.When he was younger the mere mention of potato would have sent him running for cover and he would,nt have even tolerated potato on his plate or near his food, this in itself would have made him vomit, so todays potato feast has been a real step forward.
Awwwwwwwwww bless his little soul!!! Jay has same problems and has only recently started eating peas, raw carrots and sausages, chicken nuggets, but wont touch other veggies or fruit ( just had a breakthrough with raisans- cant spell lol)
it is such a good feeling whent hey dont gag on something new...he deserves such a huge cuddle!!
im smiling for you and i think you have a little star there!
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Coming at it from a different angle, if he was in a friends car and broke their stereo would you feel they should accept the cost personally?As a care worker I had my car insured to enable me to transport clients - this actually added next to nothing to the premium, but enabled me to make trips with clients (enhancing their opportunities) I wouldn't otherwise have been able to make, both within and outside of my normal working hours. It was common practise then (don't know if it still is), and I'm fairly certain that if one of the clients had broken my stereo the parents/carers of that client would have been keen to put that right so I wasn't personally out of pocket...
Respite is slightly different, but if Ben broke something like a CD player or telly at the home of his respite carers I'd just replace it, claiming on my home insurance if necessary.
If this is a voluntary carer (or someone who receives a token payment) through something like 'link' as most carers arranged through SS tend to be he/she would not have 'business' insurance to cover this.
TBH I think the fact that he/she has a two seater car is a bit irrelevant: If you were concerned about the safety aspect that's something you should have raised before (unless this was his first trip out with them) - it seems a bit unfair to 'argue it isn't appropriate' after the event.
Looking at it from the carer's POV, if i was doing this on a voluntary basis for little or no reward and ended up footing the bill myself, I'd think twice about doing it again.
Thinking about the expense, I know it must hit hard, but do you receive DLA for your son? If so, this would seem a quite legitimate thing to spend it on, as respite for you and trips out for him certainly fall within the boundaries of providing for his needs.
Of course, I'm only going on what you've said and what i know of respite services/support organisations in my area. If the situation were markedly different, and the carer operates the respite service as a business, or is paid full childminder/care worker rates by the agency or Social Services then she should have cover for such eventualities drawn into her business plan and her agreement with the people purchasing the service from her - which would take the onus off of you.
Hope that's helpful
Hello to both of you...i do see both points of you, and they are both valid and very thought provoking.
I do not mind paying for it, i think what troubled me was that if this kind of thing keeps happening and the agency doesnt have some kind of insurance in place then it could be a very expensive and stressful time for my son to recieve respite when it is meant to be a ''break'' for us!
thanks so much for the replies, i appreciate you replying. I guess it is a hazard of having a special needs child.
I will be having a word about having my son in her car whilst she gets a quote though as this ate into his respite care time that he deserves!!
hugs & thanks again Julie xx
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I wonder if anyone has been through the same thing or similar...
my son is lucky enough to have 10 hours respite care through a agency and his carer takes him out in her own car and agency pays for petrol ( they get funded by my local disablity team)
they are aware of my sons needs, how he can have outbursts, pinch, hit out at others...children & adults when frustrated, over excited or in a area where he feels complete overload and sometimes for no reason whatsoever ( typical autism! )
whilst she was driving back from this play area today, she says jay broke her car stereo ( he was sat in the front, she has a 2 seater car) which i could argue isnt appropriate as if jay had a real outburst this may cause them to crash and ideally he should be in the back of a car. the staff are expected to provide their own cars with a business insurance which is provided by the respite agency, although the excess is �250 this stereo is worth �179.99 and would apparently push the carers premiums up, so when i was being told all this by phone about a hour ago, i got the impression we would have to pay. i said well shouldnt you as a agency with vunruble children/adults being in your cars be covered by this type of thing, and i was told that jay was the ''first''to do this ( yeah right!!!)
she said she didnt know if there was a insurance to cover this ( she is a manager!!! i know - laughable isnt it that they dont ###### know!!!) and she was to get in touch with the headquarters to ask them, but i may not know for a few days.
im not trying to shirk my responsibilities but i wonder legally where do i stand on this? i cant afford to pay that kind of money out and im going to citizen advice tommorow morning to get more help...
anyone else been in same position or know anything about this legally wise?
thanks for any help! im desperate!!!
oh btw in the time allocated with my son she on her way back went to get a quote for her precious stereo, and that was time for my son in his respite, so he lost so many minutes being sat in the car while she got a damn quote!!! grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr.....
Julie xx
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my son is going through a huge tweenies phase! in such big way, he has everything tweenies...the greatest hits cd ( yes there is one lol) bed set, books, endless dvds and videos, the set of dolls, play house etc lol
hes 8 with mental age of 3, just wondered if there were any fellow tweenie enthusiasts out there?
or if your child/children dont like tweenies, what is their obsessions right now?
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How rude and how childish..I would have been furious with that man!me too!!! i would have blown my stack...i know it doesnt help sometimes but i hate the ignorance that surrounds disabled children & adults... grrrrrrrrrrrrrrrrrrrrrr
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Was talking to my husband about our son ( who is 8, mental age of around 3, severly autistic)
and we said about the whole grieving process, where you wish you could do things with him like we can with our eldest son, and how we feel we are missing out even though our son has no clue and is absorbed in a world of tweenies, water hoses and washing machines ( bless!)
It can take time to come to terms with not being able to do this & that with him, as he simply wouldnt cope, wouldnt understand, wouldnt enjoy and then having guilt when doing it with eldest, even though i know my youngest is happy doing ''his'' own thing.
we do involve him in lots but some things are simply too stressful for him to deal with and he gets so wound up, i dont want to put him through the trauma of it all.
i do find myself getting choked up as yesterday, my hub took eldest body boarding at the beach and he couldnt take youngest, as he has no sense of danger etc and would run off and it would be a absolute nightmare of worry and stress for everyone, and it does make you think that even after nearly 9 years you think you have come to terms with having a disabled child, it can hit you at odd moments. also its understanding that my son isnt missing out as he is happy and always smiling, but it is how you feel as a parent, it seems to get to us more, than it would ever affect our son.
Hope this makes sense and i wondered if anyone else felt this too?
love Julieanne x
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I was cleaning up ( as i always do as jay constantly trashes my house! lol) and then i hear my eldest son screaming...
jay had sprayed suncream in his eyes..
.so i get him cleaned up and thankfully no damage was done...then i get jay cleaned up as he was covered...told jay off but he just laughs as he thinks its all a game, he hasnt got the capacity to understand that things like that are potentially very dangerous... then i turned around.....
looked into my bedroom and my bed, over bed unit, walls, quilt, pillows, all bedroom furniture, carpet, windows were covered in this damn suncream...so i have spent the last 2 hours shampooing the carpet, cleaning off the suncream which isnt easy as it is waterbased and
now im going to have to redecorate my room as it has eaten through the paint to the plaster...makes you wonder what is in suncream!!
then walking past stairs to go down to check jay i notice that in spare room he has done the same!!!!
im so damn exhausted....3 days in....and i cant make him understand what he has done is wrong...
we have to lock all doors as it is, and i literally went to get some washing to take upstairs got sidetracked forgot my door and spare room wasnt locked and jay got in and caused havoc! i understand it is my fault as i should have been more aware, but im so tired
just makes me feel like crying...i feel so alone!
does anyone elses child with ASD and a mental age of younger years, do this type thing? ( jay is mentally 3...but 8 in years)
my house feels like a prison
just wondered if i was alone?
hugs Julie xx
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Earlier on i was cooking dinner and jay came running in singing ''wheels on the bus'' ( his fav!)
and he was jumping and i looked and he was swinging this rat by the tail in tune to the song!!!!!!!!!!!!!!!!!!!!!!!!!
it was half eaten and it was one that my cat had caught as he found it on the patio....lol
even though this is gross, it was quite good in one way as this is the first time jay has ever touched a furry type animal/rodent/species lol so maybe this will encourage him to stroke our 2 cats now..
however i throughly washed his hands and disposed of the rat in a place jay will not be finding it lol - kids!!!
just wanted to share as it kinda made me smile..
totally exhausted
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Hey everyone, Just wondered if anyone feels the way that i do?
I am totally exhausted and feeling really low as my son needs to be watched 24/7 and doesnt sleep until nearly midnight, and he goes to bed at 7 as he is 9yrs, and it is his routine, then we are up and down to him all night as he wants drinks, toilet, food, diff dvd etc. so the only break we are getting is when he is asleep, we are totally done in. It was the hardest 6 weeks of our lives. His behaviour has rocketted in aggression, pinching, anger and he has made me black & blue. We tried melotonin and it was good at getting him off to sleep but then he would wake at 1am and not go back!
over summer holidays we got so desperate that we ended up putting him on Ritalin he has 5mg twice day but it isnt really calming him like it should, so i will talk to the paed and see if we can ''up'' the dose tommorow.
Just at my wits end, i think that everyone else is sat about reading sunday papers and relaxing...i think what is that!? im losing hair through all stress, and i cant take much more...
anyone else feel like this?
Julieanne x