JeanneA
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Posts posted by JeanneA
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I agree with the previous post, you need to get as much help/info as you can, you need to make people aware of your diagnosis and how it makes you feel. There are many others on here in a similar position as you, I'm sure you will make a lot of friends and get lots of good advice. I wish you well.
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Sorry to hear about your mother-in-law, in reminded of when my mother died many years, I was told she only had months to live but she died in hospital after a few days of me being told.
You do sound like one very positive woman, although I'm sure it isn't easy as you have to be very supportive to your husband and father-in-law at this sad time. I wish you well for the future, do keep updating us on how you are getting on.
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Good advice from sesley, I hope all goes ok. As long as your son has all the familiar things around him in his new bedroom I'm sure it won't take him too long to settle. Let us know how it goes.
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Hi ash I went through exactly the same thing when my son was young. You really do need to push for an assessment at least then you will know one way or the other if your son is on the ASD spectrum. You are doing all you can for him so don't beat yourself about it. There are many parents on here in the same position as you so I'm sure you will make lots of friends and get some good advice, this is a great forum.
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Hi and welcome to the forum. I am pleased that you have got your diagnosis. There are quite a few members on here that have got a diagnosis later in life or are awaiting one. Hope you find this forum helpful.
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hi Sally, the hospital staff feel it's because Glen was really unhappy at the care home he was in. It was a small care home with 5 residents and mostly male members of staff. Glen has always appeared to get on better with females, and has never like small spaces. Glen's room was very tiny, I was really surprised when I saw it.
Another reason that Glen used to hit himself to the degree that he did was he only had one drive out in the van a week whereas in the previous care home he was out in the van practically every day. I kept on telling the management that Glen needs his drives but they wouldn't listen to me they just said 'Glen would get used to it' When Glen was refused drives he used to self harm with force and hit members of staff with force also.
I am so pleased Glen isn't at that care home anymore, and feel guilty that I agreed to him going there in the first place. I just can't wait until Glen's in Colchester, so I and his siblings can see him more often.
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Thanks Mel will keep you updated :-)
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Hi Lynda thanks very much for your comments. :-)
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Hi guys sorry I haven't been on the forum much lately, I've not been well for sometime, had some kind of flu virus that just won't go away, but feeling a bit better today.
Just thought I would update you on how Glen is doing. He has been having a mental health assessment at a specialist autism hospital. Glen's doing fantastically well, he is so happy and much less anxious than I've seen in some time. He rarely self harms now or hit out at anyone, staff have told that Glen strokes his face if he's feeling anxious not slap it as he before.Next Friday, is the discharge meeting and then sometime during May Glen will be moving to Essex about 40 minutes away from home, which is great news, I can't to see him more often.
The manager and staff of the new care home have visited Glen at the hospital and all is going well.I will let you know how the discharge meeting goes.
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Hi smiley hope you have a lovely time and really pleased to hear you are on different medication, fingers crossed it all works out :-)
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Hi polar bear, good to have you back on here again. :-)
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Hi there, this is a great forum it's great to have you as a new member hope you enjoy your time on here :-)
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Hey SP being an extra in a film a great experience for you :-)
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Sounds positive smiley. Hope all goes well when you see the doctor next week.
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Hi Adrian a big welcome from me to. Hope you find some friends on this forum, we are a very friendly bunch. :-)
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I do hope things get resolved for you, what an awful position to be in. Look forward to hearing how you get on.
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Hi special how's the house work going then? I am a cleaner and I am used to cleaning other people's homes, I had a very busy week and this weekend will be doing my own cleaning. I actually enjoy it, I don't get stressed, I like seeing the end result. I hope you have a relaxing weekend now and can relax now hopefully your cleaning is finished.
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Hi special thanks very much for your reply I appreciate it.
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Now Glen (at long last) has been placed in the Support Group regarding ESA, does this mean I will no longer have to get anymore Med 3 certificates from the G.P.?
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I am very anti smoking especially after living with my mother for 22 years who was a very heavy smoker. My eldest son used to smoke but thankfully gave up. I nave never had this with Glen and hope I never do. I would seriously discourage your son, I wouldn't even agree to herbal cigarettes but that's just my opinion.
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I agree with special talent it is well worth getting in touch with ATOS, as I did. My son didn't need a medical and was also put in the support group.
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Hi yes it can be common for people with autism to have digestive/bowel issues. You do need to talk to the school to explain the situation.
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Hi Louise, glad you heard back and will be receiving an allowance. My son was put in th support group. Hope all goes well for you.
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I had an email from the new care home manager this morning to say she intends to visit Glen several times at the hospital in the next few weeks to get to know him before he eventually moves into her care home in Essex.
Update on Glen
in General Discussion
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Thank you. My husband and I are going to Glen's discharge meeting on Friday, we are traveling up Thursday. It will be nice to see Glen and to also hopefully know a date when Glen will leave and move into his new care home. :-)