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serendippity

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Posts posted by serendippity

  2. Posted · Report reply

    Hi.

     

    This morning I received a copy of my little one's Ruth Griffiths developmental test results. It's all a bit confusing to me.

     

    They have mentioned raw scores, but I've no idea what these mean. Whether they're out of 100, or 50, or whatever. His percentile is <1. I have a vague notion that this means that of a hundred children, he'd be in the bottom 1% or something like that... can anyone clarify?

     

    It also mentions a MDT assessment. I'm guessing this is multi-disciplinary team. Does anyone know what agencies are likely to be involved? Whether it'd be the same kind of assessment as before?

     

    If anyone can answer any of these questions I'd be really grateful :)

  4. Posted · Report reply

    hello serendippity,

     

    Sounds familiar to my son at that age. Some of his quirks were:

     

    • No eye contact.
    • Lines things up, cars, pencils even food.
    • Mixing 6x Puzzles together and arranging them with no trouble.
    • Very little speech, he would name makes of cars while walking through a car park (Ford, Volkswagen, BMW etc...) but not conversational speech.
    • If we had any visitors he would hide under the kitchen table or run to his room until they leave.
    • Would rock back and forth.
    • Make strange grunting sounds.
    • Wouldn't eat anything broken, like a biscuit or Kit-Kat chocolate.
    • Any wet clothing would have to be changed asap.
    • Didn't like dirty hands.
    • +Lots more...

     

    Haha my little one hates broken chocolate bars too- he screams indignantly and throws them at me in disgust! In fact, quite a few of those sound familiar- I wonder sometimes where the difference is between symptoms and just their little quirks. I mean, we all have them, right? I can't sleep in bed linen washed in anything other than my usual fabric conditioner- but I don't have ASD :)

  5. Posted · Report reply

    Many people with ASD are very affectionate and enjoy the company of the people they know well. Your son being very loving does not rule out ASD.

     

    Yes, I think it just goes to show how spectacularly uninformed I was to be honest. I had only the vaguest notion of ASD, which would probably apply to those at the more severe end of the spectrum.

     

    I'm learning, now.

     

    I wonder whether his 'symptoms' will become more pronounced as he gets older. Whether they're less noticeable now due to him being so young. It was only this morning whilst watching him play that I realised he doesn't *do* imaginative play. He gets his figures, puts them in the cars, lines them up... but he doesn't make them walk about, or drive the cars. I hadn't noticed.

  6. Posted · Report reply

    Thankyou for the replies.

     

    My little one is wonderful, he really is. Alright, so I'm biased, but everyone who knows him adores him. He's always happy, and has a really strong character. He's so funny :)

     

    I think the hardest thing is that I want answers. I want them to tell me how severely he'll be affected. Whether he'll be able to lead a normal life. Things like that, y'know? Yet there's no answers. The fact that it's a spectrum is incredibly frustrating too... because there is so much difference along the spectrum it complicates things even more.

     

    I don't care if he's not going to be the next Einstein. I just want him to be happy.

     

    I've been reading as much as I can (will definitely look out for those books, thanks) and trying to get my head around it. Education seems a bit of a minefield. Apparently, the paediatrician wrote to the LEA to tell them he'll need additional support when he starts school. I'm not sure what that support will entail though.

  7. Posted · Report reply

    Hi. I'm 29, and mum to five boys. My youngest (30 months) had an assessment a fortnight ago and I was told that whilst it's too early for a definite diagnosis, he is severely delayed and showing behaviours which would point to him having ASD. Oh, and ADHD as well.

     

    I feel slightly shellshocked. I was expecting to be told that he was very busy- I knew that, but I never for a minute suspected ASD. Not even when his playgroup and other professionals expressed concern about his lack of eye contact, or the fact that he lines things up constantly. He is the most loving of all my children... I keep thinking they must have got it wrong.

     

    Anyway, I'd really like to talk to other people who've been through similar. They have arranged some pretty intensive interventions (speech therapy, o/t, physio, and a place at a playgroup for children with special needs) but I can't help feeling pretty lost right now.

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