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mrsrosa

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Posts posted by mrsrosa

  1. Posted · Edited by call me jaded
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    hi , i have to say i have had such a lovely welcome here, keep saying it but everyone has been so nice, so thankyou!

     

    anyway, my wizzle who is 4 has been given initial diagnosis of aspergers and we are awaiting CASBAT assessment (paeditrician has said she feels that this is basically a formality but will give a bigger insight into areas we need to help her with etc..) and such but my problem is, after talking to the paediatrician she has told me that with certain things wizzle does we should just ignore it, as in swearing, being particularly horrible with her words towards us and her siblings and things like the other day she wee'd all over her bed, and wee'd on the floor and blamed the dog while my partners friend was here, i told the paed this and she said the best thing to do is ignore it!

     

    how do i explain to my 8 year old daughter that wizzle will not be being told off for certain things? we have tried to explain that ignoring the swearing and such is the best bet but i am just worried that i have no answers for her, she knows something is up as i was sat crying one night and she came downstairs and she asked what was the matter and i told her that izzy has some behavioural problems that a doctor needs to look into but that once i knew a bit more i would sit and talk to her, but i really dont know what to say!! are there any books out there that can help with how i word things etc... wizzle is due to start my eldests school in september (am absolutely dreading it after the observations from nursery, IEP and such) so i need to word it correctly if you see what i mean. it must be really hard to sit there and think "well i would get told off"!! she is a very good child most of the time (apart from the 8 going on 13 attitude!) even things like she had a friend over today and wizzle didnt cope well at all with it and things got very frustrating for her because of how wizzle was being etc.... any help or book ideas would be greatlyl appreciated :)

     

    helllo there ive got two daughters,my 3.5 has asd and i also have a 8.5 year old, i got a book from the libary called everone`s different which is written for siblings of asd children,sorry cant remember who it was by and ive taken it back,but you could maybe google it.

    it was very helpful for me,i went through it and marked some pages and then went through it when we were on our own so she could ask any questions.i felt quite emotional doing it but was good to have a proper chat and cleared up alot of things x

  2. Posted · Report reply

    Hi Everyone,

     

    I actually joined the forum several months ago but this is my first post. I really look forward to getting to know you all.

     

    My daughter Elodie is 4 years old. She was diagnosed with an ASD 14 months ago - probable aspergers.

     

    She is a very funny and delightful little girl, super affectionate, however her speech and language skills are far behind and she only understands a minimal amount of what's being said to her. She also has the typical obsessional behaviour. It's been constantly Thomas the Tank Engine since she was tiny, but she moves between others for a few months at a time.

     

    We've got a place on the NAS Earlybird Course starting in September which I hope will help, not only with Elodie but DH as well who according to our GP is definitely Aspergers too, but as he's coped quite well through life there's not a lot of point getting a diagnosis.

     

    Jen Xx

    hello,i too am quite new . ive got a daughter who is 3.5 who was diagnosed a few months ago.she sounds very similar to your daughter,we tooare doing the early bird course in september,im feeling a mixture of dread and looking forward to some help and support xx

  4. Posted · Report reply

    Hi again,

     

    My son has been diagnosed today with ASD. Although we kinda knew already it is still a bit upsetting being told. At least we know and can move onwards and upwards. It was very quick from first being informed at pre school til today was less than 2 months. He no longer has to have a gluten and dairy free diet as no allergies were found. Have got to have more bloods taken and go back in 4 weeks.

     

    :)

    hello there we too have recently had a diagnois for our little girl she is 3.5,i had a feeling what is was but hubby didnt so came as a huge shock to him,im now greatful its been picked up on so quickly as we are getting lots of help which can only be good before school.take care x

     

  6. Posted · Report reply

    Im glad you are feeling more positive, especially when its the holidaays. Enjoy your time with your daughter this summer, 6 weeks isnt that long. Ide rather it be longer as my children are easier to manage when they are off school. Its a long process from start to finish when getting a diagnosis so hopefully you can understand and as you said others will to when being with your dd why she is a little different. you already proved to yourself that you are strong getting to this stage, now just enjoy the sun before the new term begins.

    thankyou,i must be one of the few people that looks forward to the hols,ive also got a 8 year old daughter and i love having them at home together,like you say sometimes easier! fingers crossed for a dry summer x

  7. Posted · Report reply

    hello there,after having a tough time in the weeks after my daughters diagnois im having a okay time at the mo,just found out she has been given 5 hours 1-1 for her time at playgroup once were back in sept so thats good,im begining to realise we are lucky she has been diagnosed at such an early age (she is 3.5)

     

    went for a hair cut today and i explained my daughters problems to my hairdreser,the first person id told outside family and close friends,i did it without getting upset which amazed me! she was lovely and said if there is anything she can do to make whole trip easier just to let her know,feel better she knows there is a reason behind her tantrums whilst there!

     

    sure every week will be up and down but at mo feel like i can cope finally,guess you find out your stronger than you first thought!

  8. Posted · Report reply

    hi, im jo and mum to 4...my youngest son has been refferd to pead by nursery..

    I have always known my lil boy had problems as a baby he liked to spin costers contstantly all day...had picca...never sleept...but the prof said it was cuss of having a new baby around...(must of these started before she was born)..anyway 2 yrs later he has very diff behaviour,talks non stop...licks people shoes ect esp when scared, pinches himsely and enjoys doing it..eats and sucks at his clothes..dripples contant...cant eat with spoon/fork useis his hands for eveything and stuffs food in his mouth..is hypo..walks on tiptoes...social skills are behind, ect...the waiting lst is v behind atm and they said we are on the cancllation list...im findit v hard as all my children suffer as well as he needs to be constantly watched..i asked for help from hv and she came round and ob him fore an 1hr and agreed with me and nursery that he cud have an ASD...but untill he is dx nothing cud be done..and i just have to treat him normal :wallbash: ..great help there a...lookforwd to getting to know u all and hopefully surportin each other..x

    just wanted to say hello,im quite new as well,ive got a 3.5 year old daughter who has just been diagnosed with asd,all a bit scary but everyone is lovely on here,hope you dont have to wait too long xx

  9. Posted · Report reply

    you have got further throw the process than many parents, because the sheer look of these forms stay firmly in a draw with the I will fill that in tomorrow, sadly tomorrow never comes so well done for even getting this far, then you actually posted it, not to alarms you, but did you photocopy the form, and was any documents you sent where they copies too.

     

    Also I post mine by recorded delivery so I can track the letter as it has far too much information in for it to get lost, if you havent this time, dont worry but next time ensure you look into recording the post.

     

    As for how long it takes, it really is different for everyone, like said it can be quick, litrally weeks for some and other months and even years, but what you can be assured is, that as soon as they recieve it, it is dated and from that date any money your child is awarded is back dated to that date, so for some cases, say it took a year and the child gets high rate care, that is backdated a year. so if it does take a while but it is awarded in end, from the date they first originally recieved it.

     

    You may need to go to tribunal for a first claim, but if that is the case still go to it, dont be put off, a panel have more experience in ASD/ADHD challanging behavioural needs.

     

    NAS have a welfare rights advice line so if you do run into any difficulties give them a call.

     

    I think the forms are an extention of our childs biography, its litrately Js whole life story in those forms, that leave you drained and exhausted both emotionally and physically, but it is for thier needs.

     

    It isnt any easy process at all, I totally understand the dredge of them, but well done for getting this far, hopefully it will go smoothly, and you will get a reply soon, but if it is stressful and there is problems there is support, from National Autistic Society and Contact A family, as well as this forum.

     

    You have got this far, dont worry.

     

    JsMumx

    yep i photocopied everything,the whole form,letter from pead,report from senco and speech lady,and sent it recorded,guess its just wait and see now

  10. Posted · Report reply

    Hello MrsRosa - welcome to the forum :thumbs:

     

    I did early-bird with my son years ago, and the 'home videos' (which I assume will still be part of it) from then still warm me cockles occassionally! Different people got different things from the course, and TBH I got very little because my work experience and the support I had been giving my (autistic) nephew for years beforehand put me in a different place to most of the other parents, iykwim. As a starter course in understanding and techniques though, it was invaluable to some, and for everyone involved it was reassuring to meet other parents in the same boat and to know that you weren't alone. So mostly a big thumbs up :thumbs: for early bird, but if offering one word of caution it would be that they can be given to a bit of generalisation and promotion of the latest theory or intervention that the NAS has endorsed (back when I went it was 'PECS' and I had lots of 'debates' with the S&LT about it :lol: ). Try to think outside of the 'boxes' they offer you, and remember that if one child who's autistic behaves a certain way for one set of (usually assumed) reasons it doesn't mean that all autistic children will behave that way, or that if they do the reasons (assumed or otherwise) are the same. Kids more often do things because circumstances mean they can, not because they 'have to'. ;)

     

    Hope that's helpful

     

    L&P

     

    BD :D

    thanks so much for taking the time to post,thats really helpful,yep the home video is still part of it,cant say im looking forward to that but hey ho! i think knowing your not alone is a great help x

  13. Posted · Report reply

    thanks for all your lovely replies,we have just had comfirmation we are on the early bird course for september,part of me is really looking forward to it as i think it will give us alot of help,im really nervous tho,dont really like speaking infront of people i dont know!

    guess ill have to get over that!

  15. Posted · Report reply

    hello im new to this site,ive two daughters 8 and 3,my three year old has just been diagnosed with asd,its come as a bit of a shock,we attend a playtogs group that has been going very well and have just been invited to join our local early bird course in september. anyone got any experience of early bird,thanks xx

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