What adive can you give?

[caz2007]

hi,

 

ok, i have a support work, that comes every week,

he doing my head in he makes

me so mad and upset me big time

then i end up shuting when i am talking

 

i have disablit like we all do here,

 

I am visual impaired

Retinopathy of Prematurity (ROP)

Retinal detachment

Dry eye

Cataracts

all to do with my eyes,

 

I have hydrocephalus ( Water on the brain)

I have Moderate Learning Difficulties

I have migraines very often,

epilepsy

As signs

 

Why do support work of any kind think they no

you when they dont!!!!

 

well a few weeks ago we where talking and

he start saying stuff that i did not understand

and he was doing my head in!!!! he said i was beeing

argumentative!!!

 

we where fillling in fourms came to my

disablity,

 

i have all the prolims what you can read on here,

he said about my learning diffcutes the doctors now

i have learning diffcuites mum and all my family now

too and my best friends does, well he came out

and said, do you have a learning diffcuite " i said yes"

he came out and said well i dont think you do

i'm not a doctor

 

then i stared getting upset and angar he saying

i dont have something when i do

i went to a speill need school where we all had

learning disablity of some kind, disablitys.

 

as i have learn over years and see and heard

about how we cope we get to understand

that we can do some things and we have

good days and bad days and

thats was a bad today for me

 

but i cannot get my head around why somebody

would say that

when i was saying what my disablity are!

 

what wold you all do, like this week i start tall him things

 

i could not do one of them where,

1. colour i find now what is light and dark is!? becouse of my learning disablitys

he chaged me way of saying it "why would somebody say do that"

 

what would you do,

 

here done other things as well and siad things,

 

thanks take care

caroline

[call me jaded]

Hi Caz

 

He sounds just a little inexperienced to me. Who is your care worker's superviser? You should be able to raise your concerns with them, not particularly as a complaint but just to say that you sometimes find communication with him difficult.

 

With the form, send copies of recent medical assessments for the decision-maker (the person who read the form) to see for themselves.