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fgilbert

New and confused

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Hi,

 

It has been a rocky week for us and I thought rather than lurking, searching forum I should join and share.

 

I have a 5 1/2 year old son who is currently in year 1. He has not got a diagnosis yet but we are currently waiting for the results of the ADOS test.

 

School feel that he shows strong traits of ASD. He has had input from o.t. and salt since he was 2 1/2 year old. Pead.consultant believes it is just developmental delay with expressive language delay and hypotonia (low muscle tone)linking into fine and gross motor delay. However, in school in class of 30 he struggles. He is SA+. Despite having TA in class he is ego-centric, has issues over personal space, finds transitioning between tasks and is unpredictable. He does have little quirks at home e.g. wearing soft trousers, things smelling and loves collecting rocks.

 

He is currently at home and not in school as school do not feel they can support his needs and he must have one-to-one. We finished a 5-day exclusion yesterday after a boy was hit on the head with a rock as my son stated "i wanted to see what brains look like." However, at re-integration meeting they said they hadn't sorted support for him yet so would have to remain at home for more days and on return be on a reduced timetable.

 

I have visit from the outreach teacher of the primary school in our area which teaches children with moderate learning difficulties. She has given us a new structure of reward chart, visual timetable for days activities and use of now/next prompt cards. She is re-arranging her children so that she can see my son in his school.

 

Today i have CAMHs visiting us at home- first appointment.

 

At the same time we have an appeal in as the local authority refuses to carry out a statutory assessment!!!!

 

Feels very over-whelming at the moment, really want him to be interacting with his peers and be getting an education.

 

fritha

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