Years ago someone suggested to me that I should claim DLA for them, as they knew a child who got it for similar.
I never did, partly because I was so worn down with DLA renewals for my DS, partly because I couldn't face filling in those dreaded forms another two times, partly because I didn't feel it was 'fair', IYSWIM.
But now I've just spent nearly ?50 on 3 new medibags for them! I have used ordinary bumbags and wotnot in the past, but from experince it's seems safer to have the 'proper' ones as people can see clearly what they are (there have been muddles before). TBH a fiver of that was for express delivery because I'd forgotten DD needed an adult one for secondary school
And then when I thought about it, most of the free-from food is very expensive. I know you can get some on presription, but again I've always just bought it...because things like the soya milk is a particular brand, and mine have always had another brand and are used to it (different brands do taste very different), etc.
So there is plenty to use the money on, and they do need more care and supervision than other kids...cooking separate food, constant supervision around food. Both have needed their epipens in the past, plus hospital appointments for the specialist allergy clinic (DD had 3 separate food challenges this holiday, total cost of rail fares about ?80 just for those).
What do you think? I still feel 'funny' about the idea...partly the horror of the forms, partly I suspect because I don't want to 'acknowledge' two more of my children have significant medical needs and partly because I think it might be unfair.
Do any of you claim DLA for something like epilepsy or diabetes for any of your NT children, which is how I would equate their medical needs in my own mind IYSWIM?
Edited by bid, 27 August 2008 - 02:45 PM.