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Zosmum

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Posts posted by Zosmum

  1. Posted · Report reply

    Hi

    we have these problems with Zo, now 16. we took certain additives out of her diet which was quite difficult at the beginning.

    We removed- ASPARTAME, an artificial sweetener found in a lot of sweets, drinks, crisps etc

    MSG, Mono-Sodium Glutamate, a flavour enhancer also found in crisps, sweets, drinks and a lot of other things

    SODIUM BENZOATE, not sure what this is but it's in a lot of drinks

    It does get easier to get them only things without artificial additives. Zo now only drinks fresh fruit juices or water. Definately nothing containing caffeine and definately no sweeteners.

    Good Luck and hope this helps a little

  2. Posted · Report reply

    Hi Guys

    Not been here for quite a long time.

    Zo is now 16 and about to leave school. We managed (just) to keep her in mainstream school and she is about to take her GCSE's. Not bad for a kid who was down for not being able to a couple of years ago.

    She has also been offered a place at college to start in September.

    We have been through so much over the past few years from suicide attempts to complete meltdowns to total silences but we have channeled her obsession with horses and she now has a Saturday job on a riding school yard and a place on an equine course at college.

    It is so nice to be able to share this good news with you all, where in the past it seemed to be all bad.

    Hope everyones well and also having some good times.

    Zo is still hard work and still has lots of meltdowns but finally we have a little bit of good to share

     

    Keep smiling :)

    Zosmum

  3. Posted · Report reply

    Hi

    Sounds like your doing really well with your son.

    When my daughter was younger (she's now almost 16) If she was doing something wrong but not too bad we used to say "ooh not good Zo" and try to steer her into something else. When she was doing something really bad or dangerous it was a case of "FREEZE-some-one is going to get hurt" and things along those kind of lines. Be sure to remember boundries, if it's not allowed today then it must never be allowed and if you let him do something today then he will assume he will be allowed all the time

     

    GOOD LUCK

  4. Posted · Report reply

    Hi

    My daughter sufferes in the same way. Hates school to the point of self destrution.

    We have recently been trying a new approach at school. She has the last half hour of school in the sensory room with a really nice TA to be able to talk thro' her day, what has sent her off and what she might have almost liked throughout the day. So far this seems to be helping a bit. Most days they don't even talk about what went on in school but more what she's going to be doing that evening or even what she would like to do to some of the teachers. They basically sit and have a bit of a giggle.

    Maybe you could try to approach the SENCO and suggest a similar tactic.

    I have to add that this only came about when my daughter reached crisis point. She tried to hang herself with her school tie and went completely bollistic at her head of year.

    She is now year 11 and things are not too bad at the mo'

    Good Luck

  5. Posted · Report reply

    Hi dogfish

     

    Sorry Z hasn't been back to you for a while but she has been so low. She has been put on fluoxetine (antidepressants) mostly cos of school

     

    Hopefully these will lift her mood and she will get back to you

     

    The only thing that is keeping her going at the mo' is her horse riding

  6. Posted · Report reply

    Hi Julieanne

     

    Iknow exactly where you're coming from on this one and can totally sympathise with you

     

    Did you know that you can get small cards(like business cards) printed up so if he is really bad in the supermarket you can hand them to people. They just explain that he has autism and that his behaviour might not be what they'd expect and then ask people to please be understanding and patient.

    They do work to a degree but they're a bit of a pain when you have to hand them out a lot.

     

    I am seriously thinking of getting Z a t-shirt with- I HAVE AUTISM-YOU GOT A PROBLEM- printed on the back so I can take her shopping and don't have to worry bout the mindless idiots And don't have to keep worrying bout what they're thinking. They can read the shirt and maybe they might even be a little more accepting

  7. Posted · Report reply

    My DD is often bullied at school but she doesn't always realise that what happens is bullying. An wful lot of anti-bullying campaigns focus only on the physical side of bullying and not on the mental side of it. Z is often refered to as a freak, weirdo, thicko etc by kids in school but also told to grow up, act your age not your shoe size etc by teaching staff.

     

    She doesn't see this as bullying as she isn't being punched and kicked but it has had a really bad effect on her. So bad that she is now on Fluoxetine (anti-depressant) and often wants to die as she hates herself for being different

     

    As for the video, it was really difficult to watch but perhaps they should include more subtle forms of bullying in these kind of things

  18. Posted · Report reply

    Well done on winning the battle JsMum. You should be sooooo very proud of yourself

    And yes when J does go to resi school you prob will miss him like mad but then you just need to remind yourself that (all being well and it will be) that you did this for J and for as long as J is happy and gettting all the support you have worked so hard to get for him then you need to be happy for him.

    Give yourself a huge pat on the back and look forward to seeing your boy happy and settled and smiling. All the things we want for our kids

     

    Oh and if you do ever feel empty we're all here for you

     

    Zosmum

  20. Posted · Report reply

    Joke on TV this morning

     

    What's red and smells like blue paint?

    Red Paint

     

    Z's reply to this was " no it would have to be purple cos to make the red smell like the blue you would have to mix them together and red and blue makes purple"this was followed by a small chuckle

     

    I think the chuckle must have been because of the completely bemused look on my face. Talk about how to pickle your brain, lol

  22. Posted · Report reply

    Hi All

     

    I have just been talking to a really nice, understanding chap at the cinema in Wrexham.

    He has agreed to do special showing of a film of choice.

    It has to be in a morning, before general opening and has to be a minimum 5-10 people

     

    I wanted to do this so that Z can go the cinema like her peers do but without the anxiety of it being too dark, too light, too busy etc,etc

     

    If you live nearby and are interested please get in touch and we'll see what we can do

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