lisac
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Posts posted by lisac
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Agree with you Melow. Thalidomide anyone?
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Do you know anyone who attends and/or would recommend this service , apart from apearing in a glossy magazine ? Sorry, i was refering to lower functioning adults with autism over the age of 19. Not school age children or those needing a hospital environment with mental health needs., x
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I would say, given his level of reasoning, if he is happy doing this then just let him be . In my experience behaviours good and bad come and go. Far far less of a worry than self harming and eating the contents of the duvet
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Hmmm Lorry. I am in a very similar situation to you . Quality care for adults like ours is few and far between. I have found a number of residential places 'souless' and unatural. I've seen a few. At best, a 5 out of 10 service is what one would recieve. Not ideal for those with more complex needs.
If anyone knows of any respite or residential service that they would recommend please could they recommend them here . It would be very useful for parents in this position , x
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Well i guess pick your battles. In the grand scheme of things, is it really that much of an issue him doing this? Iv'e learnt to become very relaxed regarding new habits that bring pleasure/comfort, they dont last forever , x
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My adult son goes through phases of doing this. No one has any idea why . All I know is that ignoring it and acting like it hasnt happened is the only way to deal with it ( easier said than done , i know) . Best of luck, x
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'But I've done that with an open mind, and wherever possible through cooperation with the very same agencies I've sometimes battled with and with an open mind to possibilities i might have overlooked or not wanted to consider'.
This is how I operate , absolutely . How do you know others on this forum dont do the same ?
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Well put Pearl . Maybe it is that, those with children with less complex or severe needs just dont understand , x
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I can see what you are saying about 'warrior mums', iv'e known a few and they can be incredibly irritating and irrational in my personal opinion. However, some of us on here are really very reasonable and only want what is fair and right , x
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SS organise / provide funding for direct payments . Nothing to do with IQ. Given what you say, your son would/should qualify for support. It may be your best option , x
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From my experience, it is either work, college placement, day centre or direct payments where you can employ support staff to take him out and about each day . If you come across any other alternatives id be very interested to know, x
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I dont know. Just remember whatever you decide to do will be the wrong thing
. May be send him in but dont be suprised if the school call you to pick him up, worth a try , x -
I'd go with baddad's second gut feeling. This is what I would do . Sometimes being casual is the right way to go about things, this is my usual approach to new behaviours ( because as soon as i give anything any attention, its as if my know's and that's it! , the habit is stuck)!! Do you think he may be enjoying the change ? Are you worried that it will become a new routine, and you dont want to encourage something that will be hard to break ?
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Have you been drinking mandapanda?
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Mandapanda chill out . How do you know it is never the answer! Stop coming out with cliches..
I find alchohol can be a short term answer , two glasses of wine can alter ones perspective on things for a while , much safer than me taking diazepam or any other drug. It has been a coping mechanism in the past for me , thank god for wine 
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Yay!!
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Im not sure about the large pupils , could be anything. It may be just because he is unwell . My son and daughter have always had large pupils and so have i , x
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Hi Jeanne , ive no personal experience of this drug but i know diazepam is used for the management of anxiety disorders or for the short-term relief of symptoms of anxiety. Go with it, wish you some peace
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Jeanne sorry to hear you had another bad night . You must be exhausted , which makes things seem worse . You can and will cope because you have done it all this time , give yourself a massive pat on the back . Id call your GP and ask him to come out and prescribe a stronger sedative for your son. If it was me, i would do this . People without this level of autism have no idea how soul destroying it can be at times , good luck girl, you are a star! , x
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What other resources though? I am interested as it is horrible feeling so helpless . I am wracking my one brain cell but cant think what other resources there might be , any ideas? , x
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You could try going to bed and see what happens , but i think it will probably naturally occur when he feels better
I know with my son , if he is ill, he insists on getting in bed with me ( he's 22 ) . I always think its his way of showing he's scared or worried and wants a bit of reasurance. I let him and then when he stirs in the night i lead him back to his room , or i get into his bed . Its no big deal to me , the dog sleeps in bed with me all the time!
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Baddad, but what could a district nurse or SS do? Are you thinking the district nurse could prescribe a sedative? Or a GP?
I guess SS may provide emergency respite in the home ,if needed , so mum could get out to do every day stuff? Apartfrom these , i cant think of any benefit , unless im missing something ?
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Yes you're right NobbyNobbs. That is the sensible approach. When my son is in a state i just want to get rid of his discomfort asap so will give pain relief together at first, then 'stagger' it , ( pain relief, not me drunk) so hes always got something. Hope your day improves, x
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Just keep dosing him up and try and keep your distance, is what i do . When my sons in pain or discomfort or just feeling different he will too turn aggressive, (it makes sense) , hope he starts to feel better, not much fun is it!? , x
Does your child bring his pillow and bedcover down?
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Well behaviours come and go , even if there has been a long break . My son has suddenly started taking his coats/jackets out of his wardrobe and placing them on the floor, then asking/telling me to put them back! All night he's been doing this . So ive tied the wardrobe handles together for now so he cant get to them. Its some sort of ritual and while irritating and not what id chose , i'll live with it. What about locking the duvet away till bedtime , would that work, or would he kick off?