rachdvs

hi Mel Jayne, My son has not yet got dx so I am really supprised to get higher rate , I just put on the form he was on a waiting list for camhs and he had been refered by our gp for suspected ASD. I was also very honest about the problems we were dealing with and answered the questions with him on a bad day in mind. I applied because of advice from this forum saying you dont have to have a dx .

Hi all this is my first post , i have just recieved the dreaded brown envelope from DLA and have been awarded higher rate for care and lower for mobility , why do I feel like crying and feel sick I should be over the moon ! I only sent the form off 4 weeks ago and my son has not yet been diagnosed ,we have had an appointment with camhs but only for them to decide whether they can help us and be put on another waiting list. I suppose recieving this letter this morning has made me realise that the behavior we have to deal with is not normal for a 14year old boy and we will eventially end up with a dx . How would he cope with a dx , does he have to be told ? .Will it make him more angry and withdrawn , I feel like im being pulled down a path I dont want to go, Im sick of fighting for help for my son. I have been asking for help at school for him since he was 5 years old and finally got a statement for him when he was 12years old for help as he is dyslexic ,I was so happy I thought at last he will start to get the help he needs , how wrong I was ! he couldnt cope with the one to one sessions I had spent so long fighting for ,his behaviour at home became so vioent ,he was so unhappy . i feel so angry at myself for recognising the symptoms of ASD i just though his lack of affection and dislike of any form of contact was due to him being so unhappy at school. I would like to say thank you for all the advce this forum gives ,I couldnt have filled out the DLA form without the valuable information.