Hi i'm Mark
I have a nearly 9yr old son who has been diagnosed with pdd 8 weeks ago.
Me and my wife always knew there was something not right with how he was growing up, especially in social circumtances, but at least we now know why. The only problem we have got is what help is actually out there. Before we got the diagnosis social services told us when we got it they could help, now they say "Because I dont beat him" they is nothing they can do.
He is really improving at school, except for playtime,dinnertime and when having to do group work because the littlest thing can set him off. The main problem with school is they say there is no problem and even after taking the letter off the hospital his so called mentor still says there is nothing wrong and there is no need for them to get involved.
We found that when he gets home, the moment he leaves the school gates he turns, arguing, screaming and even violent. you can ask what is wrong but you always get "I dont know" and this can go on for hours and has been known to go on for a few days.
We also are having problems with his sleep, he never has more than 3hrs a night, and we have had to fit locks on the living room door because he decides to climb on the units, as me and my wife are 3 floors up we thought it best because if he falls we can not here him down there because he can be so quiet.
We also have a 7yr old girl who doesnt have any problems, which we find hard when havin to discipline them both because we have to do it different to each of them, then the is will cause arguments because we dont treat them the same.
Sorry to be ranting its just after 2yrs of really knowing there was something wrong and now knowing and still gettin all doors close for help we dont know what else to do.
Oh. There is also 1 last thing which we are unsure if it is the asd or something else. He says he hears voices. he told us in one of his rages "God told him he had to kill me and my wife, if he couldnt do that then he had to kill himself, and he didnt want to die, so it was us" he also carved into his drawers "Dad is death, and mum is death 2" When u ask him he says he hasnt said this.
Any advice would be appreciated. Thanks for listening