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LS2242

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Everything posted by LS2242

  1. LS2242

    Need advice

    Thank you all for taking the time to read and post your comments. I am so pleased I posted them, you have given me things to look into and serious things to think about. That thread Kathryn was heartbreaking to read however comfort also that we are not alone. I just dont understand when there are all these children and adults facing problems daily in one form or another due to their dx, why is the NHS and LEA's not doing anything to improve the service. Nearly all the threads I have read indicate that parents are having to fight / argue / research and contact so many people personally in order that there child eventually may get some help, support and guidance that they deserve. Maybe us as parents need to take the bull by the horn and get a petition together or something. The service out there for our children clearly does not work efficiently or meet the needs of so many. (Apologises I am on my high horse) I will post a seperate thread for people's opinions on this. Camhs are doing a referfal to the communications panel but the wait there is six months. Guess we will just have to wait. In the meantime just carry on plodding along and take each day as it comes and just carry on trying to do our best. Thanks again everyone.
  2. LS2242

    Need advice

    Thank you for posting. Umfortunately i cant see the old thread you mentioned (sorry forums are new to me) Trying to get to the bottom of his stress is difficult as from what I understand from him it is due to so many different things. Example. Child next to him borrows pencil without asking. Child next to him puts arm over his side of the desk. Playtimes feeling of NO friends. Peolpe being mean. School trips. He has asked me several times now, including tonight to changee school, however his perception is if he changes school everyone will be nice, if there not he will change schools again. I can understand where he is coming from but my thoughts are that yes I can change his school but unless his perception is modified then these problems will just follow him around. Nice to know that it is common for children to mask things within school. Does anyone know what difference does a diagnosis make?
  3. Hi all This is my first time to actually pluck the courage to post however I have been activley looking for info for many many months. To cut a long story short we first noticed our son was 'different' (sorry did not know another word to describe him) when he was about 2yrs old. However it was not until he was 7 that we came to the conclusion we needed help. We originally went ot our GP thinking he had OCD due to his little ways and his anger (if something was not as it should be, would send him into a complete tantrum). Gp referred to CAMHs and they suggested he maybe have an ASD (it is in the family) 2 years on nothing has changed (he is now 9) he is still undergoing assessment and although I have it in writing that they think he is on the scale (aspergers) they cant make the call for diagnosis (aparaently they need four proffessionals to agree) He masks it in school therefeor they saying we would not get the agreement for an educational phycologist. In school he hides his stress and is quite a model pupil most of the time but then basically explodes 3 out of five days a week when he gets home. His anger is so uncontrolable I dont know what to do to help anymore. I fear when he becomes a teenager if I let things continue then I really will have a problem on my hands) He is becoming more and more literal each passing week these days, finds it difficult to socialise and although really wants friends there is that something missing. He can get attached to people and then go OTT and then it changes to him annoying them and then they dislike him or there is not that connection there in the first place. He suffers from facial ticks which the phycologist has put down to stress he is masking within school. In short he sees children at school as mean (even if they are trying to be nice) Although he does get bullied often, some of it I believe is his perception of people and things. He is gets very fixated on things and remembers things from years ago that have annoyed him. I am at the end of my tether at the moment as I dont know what I can do to help him. His temper is like a switch, slightest thing and bang off he goes and doesnt stop for 3/4 hours sometimes, which is emotional draining. He takes his anger out on his sister and myself by hitting, name calling etc. When he is angry he loses control totally and will go to whatever lengths to get his own way. The convential methods we have found dont work such as sending him to his room, counting to ten, distraction, taking away a toy for a few hours etc... I dont know what else to try. I have tried ignoring the negative and praising the positive. Nothing I try appears to work and am hoping some of you who understand Aspergers more than me would be able to offer some tips and coping stratergies. I have spoken with school at length and they agree now they are beginning to see things within school ( more his literal side and inability to learn something in classs and then apply it in other surroundings i.e. homework. Also they say he plays along side people rather than with people. They have now called in an Educational Phycologist for guidance within school (believe it or not she says she never come across it before) but have already said that he doesn't display many behaviours at school to warrant funding (which I agree) The school are on the same opinion as me and that they can see mental health issues ahead and senior school being too much stress, that is why the school want to help all they can now. Hope this makes sense. How I have described my son is not exhaustive behaviours and his little ways of no crumbs on the table, wont sit on the chair etc.etc.. I can deal with. If you need anymore info to help guide me in the right direction then please just ask. Apologises in advance if this does not read fluently just trying to explain concerns in short. Any help / guidance much appreciated.
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