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About Lucie1979

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    Salisbury Hill

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    Crawley, West Sussex
  1. Lucie1979

    Busy Day!

    Hahaha! Yes you definitely deserve that BP Badge!!! Wow a busy day indeed well done! x
  2. Hi all, not been here for AGES..... a little update... alongside his HFA dx we also now have a dx of ADHD. They shoved meds at me for him (Equasym XL) straight away but at this moment in time have decided against giving them to him. Senco is flatly refusing to apply for a statement for him as according to her he isnt needy enough. They have almost finished year 1 and recently we had a parents in school afternoon where we look at the work the children have been doing...... well Xavier has a few pieces of paper with literally his name written on and thats it How can they say he doesnt need extra help??? He has no work to show me for the whole of year 1!!!
  3. He has been Diagnosed with ASD/HFA and possibly ADD but this will come with a little further investigation! Feel a bit numb, so far Ive told my sister, sister in law and mother in law and theyve all cried!! xx
  4. Thanks Justine. I totally understand what youre saying. That probably came across wrong. Dont get me wrong he can be a monkey and is far from perfect (what child is? lol) and I also realise without a DX they dont know what they are dealing with, plus she has 29 other children to deal with so its not easy for her. I just think her attitude towards him sometimes is a little harsh. Its like he is being punished for being a naughty child where a lot of the time he cant help it and isnt being "naughty". xx
  5. Dont know if any of you remember but Xavier had his 1st meeting with the child developement centre back in June. To cut a long story short, she said he was showing traits of AS but didnt want to DX on first meeting and said see you in 6 months. Well, since then he has moved up to Year 1 in school and has not settled whatsoever, infact things have deteriorated since his move up. I, so far am not impressed with his teacher whatsoever. He has been stood in the corner for being "naughty", missed 90% of his pplaytimes since september because he cannot focus/concentrate on his work, one afternoon i picked him up at 3pm and walked into his classroom to find him laying down in the reading corner (not reading) and his teacher telling me he's been asleep for an hour in the afternoon and has been kicking off saying he doesnt feel well but she said he was being a drama queen and putting it all on. He was very poorly and was off school the following day. The school have been in touch with the Child Developement centre also to raise their ever growing concerns with him. His appointment was supposed to be in December but theyve bought it forward. Now so far Ive had no contact with CAHMS, not been advised to do so either, will the Dr at the CDC be the one who diagnoses him (if he gets one) and will this be as soon as tomorrow? Feeling anxious, I know theres something wrong with my son, I feel cross that his new teacher knows theres something there too yet makes no allowances for him whatsoever.
  6. Thinking of you at this VERY sad time. Im so sorry. ****HUGE HUGS****
  7. This is now getting worse! Im in the process of drawing some visual routine pictures for morning and night time. He went up to bed at 7.30pm after having a bath. Its now 10.15pm and he is still wide awake!! Last week whilst at school he actually sat on the carpet, then layed down then fell asleep!!!!!!!!! Im going to go and see my GP i think! He said the voices in his head keep asking him silly questions like.....how do volcanoes work???! I would give ANYTHING to spend an hour inside my sons head! I bet its amazing in there.
  8. We finally got his appointment through and went last week to the Child Development Centre. At the end of the Hour long appointment said to me that Xavier without a doubt has Aspie traits. (Nice to have a little clarification from a professional) She doesnt want to chuck a diagnosis at him on her 1st meeting with him so wants us to come back in 6 months. He is also being referred for physio for his balance issues. Now I dont really know what 6 months is going to change?! LOL Also spoken to a Mum at the school who has an 18 yr old boy with AS. She asked me if they gave me any "what to do next" advice?! I said erm... no?! She said that the going back to see her in 6 months was a bit strange and that it is actually CAHMS that makes a diagnosis NOT the lady at the Child Development Centre.?? IS this right? Im so new to all of this and am completely confused. Should I contact CAHMS myself? Do I meed to go through my GP? So far the referral to get a diagnosis has all gone through from the school and school nurse. What should my next step be? Can anyone help? Thanks for listening to me waffle Lucie xx
  9. Thanks for the replies Xavier has always had a huge imagination! I always try and stop him hurtling around with his sister at least an hour b4 bedtime - Quiet Time He came in from school this afternoon and almost as soon as he sat on the sofa his eyes started closing (although I was watching Alan Titchmarsh ) I immediately woke him up because I want him to be tired at bedtime. He went to bed at 8pm and I can hear him chatting away to himself upstairs now!
  10. As some of you know my 5 yr old son is in the process of being referred as myself and thw school suspect he has Aspergers. Well over the past month his sleep has become very unusual. Even from a baby he has always been a good sleeper. It has now started where he seems to want to fall asleep during the day. This is very unusual for him! Then at bedtime which is 7.30pm he keeps saying there is a little person in his head that wont shut up and he cant get to sleep! Last night he finally went off just before 10pm!! Not great because then in the morning and at school he is grumpy! Baffled.com!
  11. Xavier FINALLY has an appointment! :thumbs: The ball is now officially rolling! The school nurse who read my report/referral reasons said my write up was very informative and painted a good picture of Xaviers "problem areas". Appt is on 13th June. This whole thing started back in October. It says on the appointment letter to allow an hour for this appointment. Just wondering on 1st appointments at the child development centre what sorts of things will be spoken about? Etc? I think I heard the school nurse say that 1st appt will be me and hubby being asked lots of questions about family background etc and they will set Xavier up with a few activities.
  12. WOW Amazing pics Mumble!! :thumbs: I wasnt going to watch it but kids turned it on at 10am and i sat and watched the whole thing!!! I loved it!!
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