Thank you bid for the greeting and reassurance.
I do feel quite alone so that is why I looked up the forum. My son knows what is wrong and he is coping well with knowing just not how it affects him.
I will look further into the forum and see what info I can gather to help. I really cant believe his intelligence though. He teaches himself loads on the computer but heard this is normal. I know in the future he will still need me to go places with him but people will just have to understand i cant just desert him to cope alone.
He will always be my miracle.
I will go now and make use of the excellent forum.
Thanks again.