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Helen2

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Posts posted by Helen2

  1. Posted · Report reply

    Hi

    My daughter sufferes in the same way. Hates school to the point of self destrution.

    We have recently been trying a new approach at school. She has the last half hour of school in the sensory room with a really nice TA to be able to talk thro' her day, what has sent her off and what she might have almost liked throughout the day. So far this seems to be helping a bit. Most days they don't even talk about what went on in school but more what she's going to be doing that evening or even what she would like to do to some of the teachers. They basically sit and have a bit of a giggle.

    Maybe you could try to approach the SENCO and suggest a similar tactic.

    I have to add that this only came about when my daughter reached crisis point. She tried to hang herself with her school tie and went completely bollistic at her head of year.

    She is now year 11 and things are not too bad at the mo'

    Good Luck

    My goodness thats not a good thing to happen its a shame it has to reach that point to get help, ross had his first outburst at school where he just started punching himself in the head, normally its at home he erupts, the senco is trying with him and gets him out once a week to tlk about school she is very supportive but very stretched at the same time

  2. Posted · Report reply

    Hi,

     

    I am also mother of a 12 y.o with probable AS - I live in France, so system is different. I now have to go and get Will most lunchtimes - one thing he hated most at school was the canteen, and we find breaking the day up a bit helps him. - Does your son have a de-stress ritual - Will gets home, and goes straight in the garden to walk up and down the path for 5 - 10 minutes. He knows if he does this at school, he gets mocked.

     

    We go to a psychology centre here, and he sees a psychologist nurse sometimes, if he feels the need. They also have a group there for adolescents with problems - I don't think they are all AS, but they all seem very shy. I think he finds this helpful. He is also on medication (risperdal) as he can get aggresive when he gets over frustrated, and this does seem to help. He often talks about suicide or killing others too.

     

    Having said all that, he is finding going back to school very difficult, and we have tears nearly every morning. It is all very draining, for him and the family. I am hoping that when he gets his official diagnosis we might get more help, but I am not certain about that.

     

    Not much help really, but I hope knowing you are not alone helps a bit.

     

    Diane

    your mail is a big help thank you it took me ages to get someone to help me and once i went to the doctour and asked for a referal, it only took a year to get a diagnosis, i thought great cause know i can get the help i need.this is where the problem is i cant seem to get any help he needs alsorts off support my son wont go in the canteen at school and wont even eat the lunch i send with him i have to work so am not able to get him at lunch time, the good thing is there is only me and my son at home so he gets my full attention, its just me that could do with some help and support into how i can help him with some off his problems .hope you gat a diagnosis soon, did you always know there was something diffrent about your son ??

  3. Posted · Report reply

    cutlery find hard /difficult to have skills to ride a bike i would investigate the possibility of dyspraxia. i have tried to attempt suicide myself by ODing on tabs and i on and off harm myself ( self-harm - cutting) so i can empathise with your son and the thoughts of wanting life over ALOT!

     

    XKLX

    thank you yes i will look into dyspraxia, i also understand how he feels about suicide which is why it upsets me to here him talking about it, although i have never attempted it the toughts have been there, i have suffered depression on and off for years , stay strong and thank you for your reply

  4. Posted · Report reply

    get in touch with the NAS http://www.autism.org.uk/ they have loads of information. Your son is one of those that saves his anxietys for home,where he can unload in a trusted enviroment. See if you can get him discuss his anxietys and try to reassure him,he is a human being who is special and although life might seem scarey and confusing it is worth living,and don't forget,now he will be going through the usual teenaged troubles,so get him to understand that what he is feeling is normal all human beings go through.Also see if you can seek phsycological help as well,maybe through the NAS they might be able to show you how. Stay positive as well,its important to encourage self confidence .

     

    thank you so much for your reply, yes he saves it all for home, its just me and him and thankfully i am understanding and there to help him we dont get any support from family so it can be tough.i always sit with him till he calms down then i give him time to talk so he has got very good at telling me where things have upset him. we then talk this through , and i contact school if there is any way theyy can help with the prob i just need support in how i can get him more involved in life outside the front door his mental health and the fact he cant use his hands properly,

  5. Posted · Report reply

    maybe an ASD specialist pyschologist to talk through mental health issues such as depression but also built up frustration and anger to work through in steps and stages how and why this affects him!? i would look into this possibilty! has medication been discussed in the docs help ease his depressive thoughts/feelings? (suicidal)wanting be dead maybe medication for anxiety could ease things too? have anyone like docs mentioned CAMHS ( child ,Adolescent,Mental Health Service) as this is team which could help provide service of working through MH issues such as depression ,anxiety with clients with complex difficulties such as AS!?

     

    not being able to open packet or put his own socks on does he have gross/fine motor difficulties? is is he clumsy, forgetful is handwriting large? - has co morbid condition to Dyspraxia been looked into? as this can go alongside AS and is very similiar close in alot of signs too so hard to spot the difference between each one!

     

    hope this information helps in some way anyway!

     

    XKLX

     

    Thank you school have mentioned cahms to me sadly a girl in his school killed herself, this set ross off thinking its ok to kill youself and talked about suicide for weeks, very upsetting!! this tends to come and go. as for his not being able to open packets ect, yes his hand writting is unreadable he cant ride a bike i call him cack handed. he just cant use his hands, cutlery he looks like a toddler he has lots off other probs we seem to be able to cope in our own home enviroment its when we go out and school is the biggest issue!! Thanks for your mail,

  6. Posted · Report reply

    Sinse my son was born i knew he wasnt the same as others all through school i asked for help, but they all said he was fine just sensative and shy!! he had lots of social issues in school and out as well as other motor problem skills simple things like not being able to open packets and put socks on ect, as he got older he was more awaire off his being diffrent this presented as depression and i went several times to the doctours. they sent us away saying its just his age, nobody would listen to me till he went to the seniors , it was so traumatic we both ended up in tears and the senco was very good and sat me down and for the first time listened to me!!! she helped a lot and within a year he was diagnosed with asperges this made so much sense, the problem with my son is he is so well behaved in school as this is what is expected off him he shows no emotions and by the time he gets home his anxiety leavels have built up so much he just expodes, anger tears frustration etc, school are trying to help, but what help should i be able to get for him, at home i can keep his enviroment happy and trips out are very organised and planned, but school is a big problem!! What should i do? he needs some sort off mental help he talks often about wanting to be dead and why me etc!! what help do others get for there children with asperges? Thank you.

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