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Joe Ellis

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Posts posted by Joe Ellis


  1. i would say opposite since my official diagnosis of A.S NAS i feel has disowned me let me down no one professional wise seems have time for you anymore unless you get in touch and chase them up so fed up/annoyed of lack of interest feel like just burden nuisance to them too much aggro for them deal with you!!! CAMHS/adult MHT couldn't be bothered you don't fit into there box as not just MH probs on it's own don't get understand AS

     

    i question ask myself all time apart my parents/family understanding me better from knowledge of the condition what it involves nothing else support/help wise seems to have worked all fallen apart /pieces or i don't qualify .... gr rant moan over .... i still haven't got fulfilment of self discovery journey even though i know the road is long and windy twist and turns everyway so confusing complicating complex will i ever get to bottom of it?!

     

    XKLX

    I do sympathise. CAHMS are pretty useless for young people in my opinion, it doesn't give me a lot of optimism for adult services. But there might well be other support groups out there for you -I have to make an effort and find one -and you are not alone! At least we know what kind of crazy we are! and I would say it's a special kind of crazy, with a lot of good in us because we are who we are. (I'm trying to be positive!)


  2. You'd probably be better off reading Donna Williams' books 'Nobody Nowhere' and 'Somebody Somewhere'. She gives a very readable, coherent account of how the world looked to her as a child, and how her perception changed as she grew older. But bear in mind that a diagnosis of autism is the identification of a broad set of behavioural characteristics, and that those characteristics can vary widely between individuals.

     

    cb

     

    I didn't know Donna has done a second book, I have only read Nobody Nowhere, which both I and my son (both aspies, but both not diagonosed at the time) found quite distressing as Donna had a terrible time of things. Could relate to her in some ways, though her ASD is more severe than mine. I'll have to look out for Somebody Somewhere, the title hints at a more positive episode.


  3. Hello, I am new here. Bomu, I obtained a diagnosis at last a few weeks ago. I can say that it's quite life changing. It's scary to know this is a life-sentence, but then whatever it was called that made me different, I pretty much knew that anyway! But a life sentence is not a death sentence. The positive thing is huge: I KNOW WHY I'M DIFFERENT, and it's NOT MY FAULT! I have carried a lot of guilt around with me thinking it was something in me that I could control or that I was doing wrong, and I have carried anger about things done to me psychologically when I was young in case that was what damaged me. Although the latter may have some truth, the main thing is I know it's not my fault, it's how I was born, and now I can take stock and work out how to get on with my life, armed with the knowledge that I have Asperger's, I am not crazy, I am just like thousands of others who just have a different way of seeing the world.

     

    As to accessing help, I have one or two leads, but have yet to work on that which is something I need to do soon.

     

    My view is find out what's ailing you, cos in this case ignorance is not bliss, though the truth takes some getting used to! Good luck.

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