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Gutcruncher_

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Posts posted by Gutcruncher_

  3. Posted · Report reply

    Gutcruncher ...........have you read or noticed the posts I have made and moderated on this thread.I have deleted 2 posts already and edited another.Please refrain from using offensive language, several members have reported this topic already .If the manner in which you conduct yourself on the forum is anything like you are personally I,m not surprised no one wants to offer you any assistance.

    Victim blaming!!! Stop being disablist! You are anti-'aspie' not me. You know NOTHING or what I am like or my circumstances are. I get turned away for mentioning Aspergers which is a toxic label to most of these organisations. I times I've seen and heard the look of disgust for even mentioning Aspergers is many, many many. At one employment/recruitment agency I went to years ago, I heard Aspergers sufferers compared to sex offenders and drug addict, "we don't want people like you, our client businesses certainly don't", all because I mentioned having something that is not imaginary or feigned but real. I was blocked from starting A-levels twice, had to take a university course fouth on my list despite having required A-levels because 'special needs' is bad bad bad, keep away, bad.

     

    Several members have gone out of their way to reply to you on here and offer and advice and encouragement and you reply in a disdainful manner.Don,t club all autistics /aspies (whatever term you like )...under your umbrella...."beneath contempt," you undermine every single one of them who has strived to pursue their goals , my son included, who incidentally does volunteer work because he enjoys it and it will help him gain employment after he finishes agricultural college.If you think my son had it easy your wrong on that score , but I won,t bore you with that , it won,t be what you want to hear .

    I don;t like a cosy middle-class cosseted lifestyle with parents doing everything for me. I have to struggle but get nowhere, I dont live a sheltered life, middle class people believe the lies about equality of opportunity because they are the elite and get it easy.

     

    I am NOT AND NEVER doing voluntary work I need to HAVE MONEY, I CAN'T SURVIVE WITHOUT MONEY!!!!!!!!

  4. Posted · Report reply

    well WAS helped me fill out my benefit form. Free courses, have u tried adult learning they do skills for life english and maths and there are courses where u can get LSF which i got for my computer course.

    WAS never have wanted to help me with forms :( You must be lucky, Do you get a care package to pay for help from them? They want more money than I could possibly supply with a normal job.

     

    I can't get 'skills for life' courses, too basic, you only get free courses if you have lower than GCSE qualifications.

  5. Posted · Report reply

    i know what you mean re the free courses. The tutor was disgusting re your 'special needs' and should have referred you onto student support. i did what i could to stay friends with the disability department so i could have a support worker in class with me. It was all approved via DSA which you can get regardless of which benefits you are on.

    What I mean is that I can't get more education, as there are no 'free' courses. I would need 'free' education as I do not have the means to pay anything. I don't have thousands of pounds for an education course. I wouldn't be upset and asking stuff here if I was, I would have a purpose then.

     

    At university I was told to , put up or shut up (those words), go to another university if it was so bad, etc. As that would be financially disastrous as I'd have to start a degree from scratch, I couldn't. I had to keep going or not have a degree. I kept going. I had stuff said at me all the time that would've lost people their jobs if it had been 'racial' or homophobic, but attacking 'aspies' and people with disabilities in general seems fair game to mainstream society.

     

    You havent replied re the volunteering work, is that an option for you?

    I want to do PAID work. There's no point working otherwise. Voluntary work is exploitative. You don't get paid, you will be out of pocket, you'll never get paid. If someone white said to a black person, you're biologically inferior, you must work for nothing, that is (rightly) considered BAD universally. I am NOT worthless, I am not going to work for nothing.

     

    Considering you aren't working or claiming DLA i realise you cant afford private help. Have you searched for other local charities to help with DLA forms? i might be able to help you via PMs.
    Yeah, I mentioned it, it was closed down in 2010, there's nothing now. I have tried.

     

    What I was saying about personality disorder was that CAB person put that on my DLA form, not Aspergers, and they told me it was the same thing.

  6. Posted · Edited by Gutcruncher_ · Report reply

    You can appeal if you disagree with the amount to pay. i plan to do this with my personalised budget.

     

    http://www.autism.org.uk/24618

     

    Also try emailing Carly Hinton ( Carly.Hinton@nas.org.uk )

    (i was a member of a project that wrote out the myths and truths of the personalised budgets system.)

    I don't think you realise, I never got as far as getting a social worker let alone personal budgets.

     

    Are you on DLA? www.benefitsandwork.co.uk is an excellent website that can help with wording the

    forms. i realise it is difficult and you feel isolated. ( Andrew.Powell@nas.org.uk ) has done courses

    and projects on how to reduce isolation.

    Applied for DLA but rejected. Went to CAB for help with form. They put down 'personality disorder' on list as my condition instead of Aspergers, they said it was the same thing!!? (WTF?!). I was rejected.

     

    I do have a diagnosis of Aspergers, but never had ANY help off the NHS, the help and diagnosis was private, and NO, I can't afford private help.

     

    There was a charity that did specialised help with DLA etc claims for people with disabilities, but they got closed down two years ago :( Wessex Autistic Society has never wanted to know.

     

    Not worth contacting NAS, they are a SHAM organisation, absolutely don't care at all, 12, nearly 13, years has proven that to me.

     

    EDIT: I don't want to sound "bad", it's just I'm being sugggested things I have tried before, often may times, getting nowhere. I have PMed you a question.

  7. Posted · Report reply

    There is a postcode lottery regarding services. You have done the right thing by going to your MP. Who is better than your MP? i would recommend contacting Dr Liam Fox www.theyworkforyou.com i think is the site.

    Fox isn't my MP so I won't get a reply, and will be just as bad as my MP, as after all he is a Tory MP.

     

    1, going to college or education or volunteering work that suits your interests, if you can do something academic and get the psychological tests to show what your needs are, these can then be used to access social services

    I WANT to do more learning but CAN'T AFFORD IT. There is no "free" courses, I have no means of affording courses. Most likely they would turn me away even if I could pay. I wasn't allowed to do A-levels until I was 19! No one wanted me to do A-levels! I even have the required GCSE passes at 16. I had a tutor at university who wouldn't let me into his seminars because I was "special needs"! But main issue, can't afford any more education!! I want to do a Master degree for example, never will be able to afford it.

     

    2, attending autism adult social groups and networking with them, they can tell me what works for them and i can decide whether to try it or not.

     

    3, meeting other like minded autistics

    Horrible, HORRIBLE when I tried one meeting group. They were all pushy middle class parents, no empathy, my Tarquin did this this and that, then you can (ignoring I don't have money or same class situation)! It's lek a part of their brain is missing,I have different circumstances/situations, they don't understand that, the wealthy often don't. I feel MUCH BETTER not trying to meet other 'aspies', that set me back quite a bit. I wasn't listened to, I was treated like dirt, which was the opposite of what I expected.

     

    4, attending autscape once a year http://www.autscape.org/

    Nowhere near me, I don't travel well!!! I don't want to mix with other 'aspies' in person. Not because I dislike 'aspies' just because of my bad experience before, and I realise the 'label' is so bad, I have to avoid it.

  8. Posted · Edited by Gutcruncher_ · Report reply

    u say that but there is a bus that goes to weymouth and i get on it for free.

    Weymouth is an enormous distance from me, two hours by train I can't afford that and have no one willing to take me, I don't live in that area.... WAS are trying to avoid helping me by shifting goalposts

     

    EDIT: sorry don't mean to reply 'badly', basically you have to realise I don't live in that geographical area.

  9. Posted · Report reply

    Thirdly, I'm sorry if this seems harsh but if you become very angry in real life (even if you feel justified to do so and might actually BE justified to do so) it is a simple fact of life that the person you are aiming that anger at will be less inclined to want to help you. Although you didn't like what Mike said, there are organisations out there who provide help but sometimes in order to receive help it may require compromise on your part to temper certain attitudes or expectations.

    You're making callous assumptions - I have NEVER been offered support then turned it down as unworthy, basically I've NEVER been offered support to "compromise" with. If organisation say, you need to pay this amount before we'll help, and I CAN'T AFFORD IT, that doesn't mean I haven't "comprised", that means I can't afford it!! If something is hours away in Dorchester and I have no transport and no means of affording getting there, I can't get there! I can never get a driving licence!

  15. Posted · Report reply

    Coming to realisation of today's society sucks and that hurts deep when try work thing out all your life best you can and it isn't easy can be tough challenge / battle no professional / services I have been with is trustworthy or keeps to the promises made once again adds to daily fight which further angers adds to frustration

    Why does 'Aspies' vote Tory?! Tories are against all social minorities, we're a social minority, a vulnerable that needs help from the state, we're exactly what they dislike. Do people lack the most basic empathy and understanding of what the Tory party stands for?!

  16. Posted · Report reply

    NAS have NOTHING nearby/local, I can't travel anywhere, they send the same form letters, going back to 2000, NO SUPPORT, GO AWAY, NOT OUR PROBLEM. I need help and support!

     

    Wessex Autistic Society is the nearest "local" one but they are still far, far, away, particularly as I have no transport. They want like £30 an hour to use their services, they also want "Direct Payments" but I can't get direct payments as Social Services won't even take me on as a client! Never have! They don't even respond! The MP and councillors I write to say I've got nothing wrong with me, otherwise social services would be helping me. So I have nowhere to go! I wouldn't ask for help if I didn't need it!!!

  17. Posted · Report reply

    I think services struggle understand get their heads around high functioning end of the spectrum means you are still " autistic" and still have difficulties I think that's why we are often missed in the gap such a shame because not physical and can't see it ! We should go around with " aspergers" on our heads maybe then they'd stand up take notice we still need help & support just like the rest!

    The mental health side say, you have a learning disability, go away, nothing to do with us, keep away, the learning disability side say, you aren't non-verbal, you have a degree, you don't have a learning disability, you have a mental illness. The mental health/illness social services and charities all say, go away, keep away, you're learning disabled, not mentally ill...

     

    I GET SENT FROM ONE TO THE OTHER, NO HELP.

     

    I NEED HELP! I AM ON THE VERGE OF SUICIDE AND I GET NO EMPATHY OR SUPPORT!

  18. Posted · Report reply

    That's not exactly true and you know it!

     

    Those on the spectrum are highly catered for both online and off - go to Google and type in Asperger's and over 14 million results come up in 0.17 seconds!! Be my guest and when you've finished reading them all come back and let us know if you still need some help.

    w where to go for help.

    I HAVE TRIED THAT FOR YEARS.

     

    I was diagnosed with Aspergers in 2000 YET HAVE NEVER GOTTEN *ANY* HELP FROM *ANYWHERE*.

     

    NAS won't help, NEVER have, ALWAYS send me the same form letters.

     

    Wessex Autistic Society say, nope, go away, none of our problem, or ask to visit in Dorchester which I can't get to (I can't afford to travel anywhere, don't go out of the house for weeks on end, can't get a driving licence as I have epilepsy). They want MONEY that I DON'T HAVE. £30/hour plus travel!! I can't dream of being able to afford that!!! Even on a minimum wage job I couldn't afford that!!

     

    I don't care if there's 14 million Aspergers references on a search engine, IF THEY DON'T HELP ME, THEY ARE NO GOOD.

     

    LEARN BASIC EMPATHY! YOU SEEM TO LACK IT COMPLETELY!

     

    I have never had any help off social services, they say, mental health you need, mental health say, you have a learning disability, nothing to do with us, the learning disability side say, you are too intelligent, you're mentally ill, go away.

     

    Mencap refuse to help. All the learning disability charities tell me to go away and NEVER respond.

     

    I can't afford Wessex Autistic Society's fees! IEven if I had a job it's out of my price range! It's extortion!

  21. Posted · Report reply

    Mental health say, go away, you don't have a mental illness (which I don't, true), go away, nothing wrong with you, but the learning disability/learning difficulty services say, you don't have a learning problem, go to mental illness.

     

    Wessex Autistic Society don't care about Aspergers sufferers. They also want like 30 quid an hour for their services, how am I meant to afford that!?!

  23. Posted · Report reply

    I can empathise / sympathise I feel the same I tried everywhere like you get turned away igorned or having chasing round to find out if ANY support services willing to listen to your needs once you mention AS it like automatic reject button as it's " hidden" " invisible" and cope best you can on your own day to day but build up gets too much all of sudden so understand how stressed / anxious so get how Ill makes you worrying how going to manage alone in this world scary enough feeling abandoned

    I am abandoned that's it exactly, THANK YOU for understanding :)

     

    I am abandoned. These people immediately reject when you mention Aspergers AND they all tell you to go to the other organisations, even the ones that have just told you to go to them, nothing to do with us, go away, etc.

     

    The look of disgust these people have for people with Aspergers is incredible, even the "autistic society" charities are exactly like that. Wessex Autistic Society is a sham!

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