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Noskcaj86

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Status Replies posted by Noskcaj86

  1. Could not be more annoyed right now! Hospital just phoned and apparently we were meant to be there at 9.30 this morning for 1st ADOS assessment... I havent had an appointment letter so knew nothing about it :( royal mail = Useless!!

    1. Noskcaj86

      Noskcaj86

      Oh and to add we have only been waiting for this appt for 3 and a half years..............

       

    2. (See 1 other reply to this status update)

  2. Jack has been Re reffered to SALT 6 months after discharge by EP that saw him in school. We are awating results of cognitive test done by EP.

    1. Noskcaj86

      Noskcaj86

      And still waiting for appt with ADOS which was meant to be this month...

  3. Had first asd diagnosis appointment today, Jack spent the whole time walking round and round the sofa with his hand over his mouth breathing heavily enough it made a grunting noise.... It was an hour long appt! Showing his true colours for them to see.

    1. Noskcaj86

      Noskcaj86

      yes, i think it might work in our favour, meant i had less to explain to her!

    2. (See 3 other replies to this status update)

  4. Had first asd diagnosis appointment today, Jack spent the whole time walking round and round the sofa with his hand over his mouth breathing heavily enough it made a grunting noise.... It was an hour long appt! Showing his true colours for them to see.

    1. Noskcaj86

      Noskcaj86

      Oh and did not say 1 word either, just walked and walked and grunted. So i didnt really need to explain the odd behaviours...

       

    2. (See 3 other replies to this status update)

  5. First actual diagnosis appt on thursday, one step closer to knowing whats going on! About time!

    1. Noskcaj86

      Noskcaj86

      Diagnosis for ASD that is, hes had other diagnostic tests and all have been negative.

  6. My son is DANGEROUS!

    1. Noskcaj86

      Noskcaj86

      Yea, nothing happened. I just meant hes a danger to himself. He had been walking on the curb, as if it was a tight rope and wouldnt listen to me saying it was dangerous because he was to close to the road and could easilt fall in to the road etc. I kept pulling him away but he went back again. Just worrying he still doesnt recognise danger even when i explain it over and over x

    2. (See 2 other replies to this status update)

  7. So frustrated with sons school again, they are not taking his learning problems very seriously... not sure what to do! Can just keep him there or keep him there and put back a year or move to a better school?!?!?!

    1. Noskcaj86

      Noskcaj86

      I mean, they tell me hes delayed by 2 years in comparison to his peers in some areas, but hes not getting any extra support?????

    2. (See 2 other replies to this status update)

  8. So frustrated with sons school again, they are not taking his learning problems very seriously... not sure what to do! Can just keep him there or keep him there and put back a year or move to a better school?!?!?!

    1. Noskcaj86

      Noskcaj86

      I would like the school to take his probably ASD more seriously, and to realise that it will be a life long condition and he will need extra support. I just feel they are not taking it seriously enough!

    2. (See 2 other replies to this status update)

  9. So this convo just happened! Me- Jack Nanny's dog has died, so you wont see her next time you visit nanny... Jacks- "Oh". Me- Nanny's dog wasnt very well and now shes gone, you wont be able to throw the ball for her next time you go to nanny's, poor dog. Jack no response so I ask... are you happy or sad? Jack - Happy.

    1. Noskcaj86

      Noskcaj86

      hes only 4 and a half though, is this not normal for his age? he tells me when hes sad... if hes upset about not getting his own way hesometimes will say "mummy im angry at you" so he has some understanding of his emotions. He says he "happy" and also "not happy". But angry, sad and happy are the only ones he uses.

    2. (See 7 other replies to this status update)

  10. So this convo just happened! Me- Jack Nanny's dog has died, so you wont see her next time you visit nanny... Jacks- "Oh". Me- Nanny's dog wasnt very well and now shes gone, you wont be able to throw the ball for her next time you go to nanny's, poor dog. Jack no response so I ask... are you happy or sad? Jack - Happy.

    1. Noskcaj86

      Noskcaj86

      Yes that will be interesting! My grandad, his great grandad died in January and he still doesnt seem to understand that either. He was talking about him today as if he was still alive...!

    2. (See 7 other replies to this status update)

  11. So this convo just happened! Me- Jack Nanny's dog has died, so you wont see her next time you visit nanny... Jacks- "Oh". Me- Nanny's dog wasnt very well and now shes gone, you wont be able to throw the ball for her next time you go to nanny's, poor dog. Jack no response so I ask... are you happy or sad? Jack - Happy.

  12. So this convo just happened! Me- Jack Nanny's dog has died, so you wont see her next time you visit nanny... Jacks- "Oh". Me- Nanny's dog wasnt very well and now shes gone, you wont be able to throw the ball for her next time you go to nanny's, poor dog. Jack no response so I ask... are you happy or sad? Jack - Happy.

    1. Noskcaj86

      Noskcaj86

      I get some very odd responses from him to questions lol, either he isnt listening or he doesnt understand!

    2. (See 7 other replies to this status update)

  13. Why does my son make such a fuss about getting in the bath but then once hes in he doesnt want to get out again!

    1. Noskcaj86

      Noskcaj86

      Yes thats true with bed time here too! Well, that bath time did not end well... he had an accident in the bath and then needed a shower to get clean!

    2. (See 3 other replies to this status update)

  14. Why does my son make such a fuss about getting in the bath but then once hes in he doesnt want to get out again!

  15. Right...korma it is from now on. The first chicken dish BOTH the kids will eat!

    1. Noskcaj86

      Noskcaj86

      so hard to find things they like! especially with 4. Glad you found something :)

       

    2. (See 1 other reply to this status update)

  16. so we are having a few accidents still at home, but still so much better than he was, i think we have cracked it!

    1. Noskcaj86

      Noskcaj86

      Its going ok, still having accidents but also making it to the toilet other times without needing to be asked :) but night time wetting still happening every night so that will prob take a while yet. What age did your son manage to stay dry in the day? Jack is already 18 months later than his older brother was, he was dry without accidents at 3 yrs. x

    2. (See 1 other reply to this status update)

  17. toilet trained in the day now! Im in shock! still needing nappies at night and has the odd accident but doing so well :D

    1. Noskcaj86

      Noskcaj86

      funny how they suddenly get the hang of it after months/years of us trying to teach them with no luck! So pleased!

    2. (See 1 other reply to this status update)

  18. Such a struggle tonight, hes asleep now, no school for him tomorrow after the stressed out state hes been in tonight. Will be phoning the paediatrician or school nurse for advice tomorrow. Left with a massive headache!

    1. Noskcaj86

      Noskcaj86

      If only he could have stayd that tiny little perfect bundle in my arms...

  19. Feeling very sad, Jack doesnt want to talk to me and is so angry all the time, always wanting to be alone... cant connect with him :(

    1. Noskcaj86

      Noskcaj86

      well he just let me cuddle him, and he told me he loves me... so he does, but on his terms only!!! lol

    2. (See 3 other replies to this status update)

  20. Feeling very sad, Jack doesnt want to talk to me and is so angry all the time, always wanting to be alone... cant connect with him :(

    1. Noskcaj86

      Noskcaj86

      i hope he does! He tells me to leave him alone or go away mummy a lot of the time. I havve to beg for hours for a hug! Just so different to my other boys who live hugs :/

    2. (See 3 other replies to this status update)

  21. I am so ANGRY at everyone and everything! Most people are so mean and selfish, only care about themselves and there own. What a horrible world we live in.

  22. I am so ANGRY at everyone and everything! Most people are so mean and selfish, only care about themselves and there own. What a horrible world we live in.

  23. I am so ANGRY at everyone and everything! Most people are so mean and selfish, only care about themselves and there own. What a horrible world we live in.

    1. Noskcaj86

      Noskcaj86

      Maybe, but usually its really nice there so it would be a shame. Maybe give it a few weeks, try again and if its the same never go back. We miss the soft play where we use to live, it was a lovely small quiet place and quite often just our family there! X

    2. (See 8 other replies to this status update)

  24. I am so ANGRY at everyone and everything! Most people are so mean and selfish, only care about themselves and there own. What a horrible world we live in.

    1. Noskcaj86

      Noskcaj86

      She was heavily pregnant and was ranting at my kids saying they had hit her daughter... Poor jack didnt know what was happening and my eldest was adiment that the girl had tried to kick and punched him! One word for it, chav! We had to leave soft play early, but i mannaged to get a full refund due to bullying so not all that bad! Thanx :)

       

    2. (See 8 other replies to this status update)

  25. I am so ANGRY at everyone and everything! Most people are so mean and selfish, only care about themselves and there own. What a horrible world we live in.

    1. Noskcaj86

      Noskcaj86

      im just fed up with all the horrible stuff that happens in this world! I had a parent being nasty to Jack and his older brother today at soft play and its made me in a bad mood. x

    2. (See 8 other replies to this status update)

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