Noskcaj86

Yes, the speech therapy are asking us to give them our new address so they can forward all his details on to the new speech therapy unit ready for our move which is good. We will keep pushing for him to get assessed and hopefully it will happen soon! Thanx for your help

Also the only "diagnosis" we have had so far is perception disorder, but that only covers one area of his problems. We know there is much more to it than that!

Hi Suze, Hes only just turned 4 and at the moment isnt in any educcaton because were moving house/area next month and hes starting mainstream school in the town were moving to. Not sure if he will get any help at new school. He was getting 4 mornings a week at a language unit where he had speech therapy for half an hour a day, but that finished at end of the school year. Were currently getting no help at all with him from anyone other than a phone call now and again from health visitor and pead appt every few months. Im hoping once we have moved we will get more support again. He was getting 4 mornings a week in language unit and had also been seeing someone from disabled childernes team, although that was only once a fortnight. I feel like nobody belives us or listens when we try to explane what he's like. The health visitor sees him for 5 mins and thinks she knows what he's like from that...... Im his main carer (dad works long hours) and I see him 24/7. The only good advice she's ever given me is not to leave 4 yr old alone in a room with 7 month old (of course I already knew this!!) We need more help than were getting just not sure how to get it. feels like a dead end sometimes. Going to tell the pead everything, let him know what all our worries are and take it from there. Only thing is because were moving area soon he will be having a new pead etc so i expect we will then have to start over again and explain it all again. I just wish we had filmed some of his behaviours to show them. Thanx

Hi everyone, Were having a lot of issues getting help for our 4 year old son who we are 95% sure is on the autistic spectrum, He shows many symptoms. We are pushing for him to be assessed by an educational psychologist but so far we have had no luck. The health visitor says he's to young for an assessment? We want to get him as much help as possible early on but because he's not getting assessed this is proving hard. He sees a peadiatrician every few months for follow up appts and has just had a 2nd EEG which we get results for on 12 september, His first EEG results were normal. He's been having speech therapy since 18months and seeing speech therapist since 1 year for motor skill delays and feeding difficulties. He started attending the language unit at local school a year ago, his language has improved a lot since he started there but he's still delayed. We are still having major issues with his behaviour, understanding, lack of awareness with danger, potty training, anger/lashing out at siblings and me (mum) and dad, hyperactivness... he's on the go non stop all day and dose not get tired until late evening. I find going out with him very difficult, we constantly get comments about his behaviour which i find very upsetting. I cant take my eyes off him for 1 second incase he wonders off with someone or walks in to the road, he literally has no fear of strangers or danger understanding. If I didnt have the other 2 little ones in a double pram he would still be in a pram for his safety. I am really struggling with him and feel we need more help and support than were getting. We want to get him assessed but it's starting to look like were going to have to pay for it ourselfs which means saving up and asking relatives for financial help. My reason for this post is to find out if anyone else has had such difficulties getting there child assessed? And does anyone have any advice for us? There is autism in my side of the family which makes me think its more likely that my son is autistic. We just need some answers were finding it all very difficult, including our eldest child who's 8, he's had enough of getting physically hurt by his brother. Thanx