Mummyof6

Thanks it's been a while since I've visited the site, we had our pead app and wouldn't you know it, I didn't get anything out! Between the 4 kids literally screaming I couldn't concentrate! The older two were meant to be babysat but it didn't work out. What we ended up with was a referal to speech pathology, the waiting list is rediculous, my daughter has been on the list for a year or so already so I hold little hope of getting either in there. Early intervention referal got lost in communication somewhere along the line and we haven't gotten any answers. My son has continued to show improvements in speech, and has gained a few words back that he had lost through much one on one and has 'warmed up' to me better. I'm so excited come bedtime each night- there are kisses all round! I know what you mean with calling the cries or laughs fake, they are what would be considered fake by anyone else, as they are what sounds/ seems to be alike to when people put it on, if you know what I mean? We dont treat it as fake tho, if he comes looking for a sympathy pat on the back we do! Anyway, we had blood tests a few weeks ago, both boys did great, neither cried! Both were fascinated. Twin 1, they had trouble finding his veins and after two failed attempts they decided to do a finger prick, messy! In the last few weeks I've been worrying about both boys, and I'm not sure if I'm leaning either way on this, just wish the doctors were more helpful! As ive said above i havent discussed this with anyone except hubby, not evwn my mother who lives downstairs, but the other day she made a comment about how smart the boys were at breaking into an out of things, how they cant stay still and about thier temperament, but totally out of conversation or out of caricature for her, she added, some parents would go get a doctor to give them medication and claim extra benefits for children like that! it really hit me like a train to the chest! She had never been that kind of person to make a strange judgement like that, i think it may have come from her new boyfriend after he met the boys. but it hurts! with the knowledge i have of asd now i feel a twinge of pain when peoPle make silly comments about children they know that are different. I will probably get off this site for a while, I don't want to be amongst all you very special people that deal with asd all day everyday, and think that I have the same level of hardship if indeed I don't, I feel that if it turns out that my son/s are 'just' having issues with sensory input output then I'm not qualified to be in with all the amazing people that do so well dealing with much higher needs children. I shall go try to find a sensory page to gain some more understanding in that aspect while I wait for the doctors to get their act together. Who knows, I may indeed be back! All the best!

Thanks, I will check out those links I have been talking to my husband, he is in the same back and forth as I now, one day we are almost certain he is nt but the next it's like a flip and you can see more and more red flags popping up. The biting is a huge issue, I have teeth tattoos right now on my stomache and back from a meltdown this morning, his brother also has more from during the same meltdown, this meltdown was the longest one we've had that isn't in reaction to bedtime, I'm not exactly sure what triggered it but he was screaming crying and lashing out for 30-45 minutes, I tried walking away, he then attacked his brother who was in his way to getting all the kitchen cupboards open, bit my stomache because I wasn't doing whatever it was I was meant to be doing. Bit my back because I sat on the floor in my own meltdown! Threw toys at the tv. Anyway nap time came and I was absolutely ready to throw them into bed! Yes they share a room, but seperate cots, they haven't attempted to climb out of them yet but little one pushed his safety screen out of the window and now the window is locked! We have horrible bedtimes at night, if we evade the routine by even 15 minutes we have an hour or more of complete horror! It's funny you should meantion biting back, I did that with my older two and both stopped biting me too, this little guy bit me the first time and I thought ok I got this, and bit his finger, he freakin laughed at me! The harder I bit the more he laughed! I was quite taken back by such a scary thing! He bites himself a lot, his wrists and fingers are always bruised and he hardly cries with any pain, he cried more getting his temperature taken in hospital and was totally fine with getting a central line and only a little sook with an immunization. He has a rediculous level of pain threshold. He cries when he falls sometimes out of frustration or shock, but if its not a meltdown it's usually a 'fake' cry. I have my appointment tomorrow, I'm not sure what i am meant to say, do I just ask her for an assessment and wait for her to ask questions about why or do I start by giving her the list of redflags an ask her what's going on? I'm not sure if we are dealing with a sensory disorder alone or as part of the autism spectrum. I have a horrible day tomorrow, hubby is at work and I have all 4, and the routine will be all out of wack, we have an orthodontist app first thing in the morning then the pead app straight after nap time which usually is our outside time, and I am not looking forward to it, both boys get very upset if we don't do outside time on time! I guess atleast the pead will definitely see some of what I will be asking her about, if that's any constellation to our emotional stability being put into overdrive testing :/

Lids* he puts lids on all the containers.

Thank you for your reply, I'm feeling very overwhelmed by all of this, and at the good times I can almost brush off the idea of any issues completely, then I turn around and am almost in tears when another 'sign' presents. I haven't ever felt I was unable to share my love between all of my kids, but now I'm unsure how to help him and to assure the other kids are getting enough attention too, and how to get the others to change things also. My 4 yo is very habds on with everyone and she and bubbas twin brother cop a lot of the lash, twin vrother is covered in bruises from bubbas biting. I'm in Australia, the only boards I can find atm are inactive or on fb and I don't want to discuss this in a forum on fb where all my friends and family can see as I don't want them worried, interfering or treating my baby like he isn't 'normal' (I'm so flustered and new to this -I'm not even sure how to speak in a politically correct way about it all.) I have upped the baby proofing as bubba is too clever and can break into anything we can so we are now locked out also until we find another option. The thing is that if anything I would assume bubba is hypersensitive, he is in love with touch texture, if he is frustrated we can calm him by giving him anything silky, pyjamas or his bolster pillow. He loves soft touch, like round and round the garden on his belly and this little piggy on his toes. He doesn't make towers or do puzzles but he 'invents' things all day, he will raid the plastic containers and fit kids to everything, he will make a whistle out of anything possible and it works for him even when we can't make it whistle. He also self calms with his hoot plush, if he is upset he brings it to us and we have to sing the hoot song using it like a puppet. And he hums songs for his favorite tv shows. He has been sick from birth but no tests have come back suspect, his brain scans all went well and his eye and ear tests also fine. I just hope the doctor can fit us in on here waiting list again now since she had to cancel, we were on it for 6 months pending our last appointment for both boys airway issues. I guess I shall continue researching and acting as if bubba does need some extra help and with that being less cuddles for mummy I guess, it breaks my heart every time he reaches out and I go to hug him and he suddenly decides he doesn't want to know me for the next half hour!

Hi, I am new here, I'm not even from the uk but I couldn't find any boards in my area of the world, hope no one minds. I have a 16 month old who has just recently regressed in many areas and raising red flags for us as parents. Before I get into it,yes he is a twin and no I'm not comparing them to each other, I am comparing his behaviours and certain things now to what they have been previously. My son was starting to talk really well, he was saying mummy daddy and his brother,sisters and auntys names thank you, hello, birdy, hoothoot (the name of a favorite cartoon bird) he was pointing and waving (please do not take this as me boasting, please!) any way, he has lost it all, he was using everything in context and at the right time. He was born premature and low birth weight due to intrauterine growth restriction. He has always been small, but always been very independent and never stays still. About 2 months ago he became very withdrawn, non active, not his usual happy self, we assumed he was coming down with something as he is always catching virus' due to his low immune system. He then stopped talking and we thought he may have had a sore throat? But we started getting concerned when he didn't come down with anything and his vocab hadn't returned after weeks later. He has stopped waving goodbye to daddy from the door or gate, and doesn't show interest when he returns from work. He used to give kisses and cuddles whenever we asked but now it's a battle and if he isn't wanting anything to do with us he lashes out. He is happy to be carried around in our arms but won't sit on our lap or have a cuddle when we sit/squat to his level. When he is vocal its repetitive in sounds and movements but also sometimes very alert and can give eye contact on his terms. His tantrums are crazy and result in biting and hitting himself and others. He can break into all the baby safety locks and throws kitchen ware everywhere. We are waiting for an appointment which the paed had to cancel last week, unsure when it will be rescheduled to, so I am wondering if anyone has any advice of how I can adjust myself, our family and home to help my son feel more comfortable? Even if he isn't diagnosed with anything I know he is different in needs from my other 3, and I want to accommodate his needs and am trying to be a good mum! My heart is breaking for him!