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ellisisamazing

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Posts posted by ellisisamazing

  1. Posted · Report reply

    Ellis never had a dummy, I didn't like the idea of using them at all, however when my (nt) daughter was teething she really suffered and we found a dummy did help soothe her through a four mouth period of awful teething and pain, then luckily one day she just lost interest and never wanted one again! :clap:

     

    I think it all depends on the child, and if you find using one useful and helpful, then fine. :)

  3. Posted · Report reply

    S is 5 years older than J, Lis, & was my "childminder" from the age of 12, held the fort after school while I worked part time cos nobody else would help! I paid her babysitting money & expected a professional service in return, if ever she complained I just had to say, we're a family, we are in this together, if you dont help I cant work.

     

    I feel awful about it looking back, feel like she lost some of her childhood, but now she's not living at home any more I think she realises that she's benefited too. I always thought she'd be good with special needs children, when she was living at home she wouldnt hear of it, but now she has some distance from the situation she is drawn to these children. She's working as a TA at the mo, & aims to become a SENCO or ed. psych.

     

    I'm sooo proud of her.

     

    Lovely post, Pearl! >:D<<'>

  4. Posted · Report reply

    Neither Tom, nor his younger brother are aware of differences yet as far as I can tell. I would like Tom to grow up understanding that his being autistic is as natural a part of him as having red hair, or being a boy.

     

     

    That's a lovely ideal. And I totally except Ellis as he is, I am fiercely proud of him and I would never change him! But I am also very proud of my little girl being able to understand that he is special, beautiful, totally unique and completely perfect! :)

     

    Maybe her use of the word 'broken' is a little unsuitable, but as she gets older, I will explain this to her! The fact she has been able to pick up on his Autism on her own and form a word to describe what she sees is in my opinion very perceptive for one so young! :D

  9. Posted · Report reply

    MadMe,

     

    I think you have reacted in the way any of us would, still a shock even though you're expecting the DX! >:D<<'>

     

    You're going through an emotional rollercoaster....again. :crying: But I''m sure that you will find the strength to get through this, you're obviously a really strong lady and I wish you and your very special family all the best! :thumbs:

     

    Remember don't neglect yourself, us Mums are important too!

     

    Lisa xxx

  10. Posted · Report reply

    Thank You, Sandra!

     

    Your little girl sounds lovely, and like a little big sister too! :lol: It's so nice to see them just accept, no questions asked.

     

    Children are so tuned in to things sometimes, when you are least expecting them to be. Again this morning my Daughter came into my room and said, "Mummy, Daddy and Romy have to kiss baby Ellis, he broke...no talking!", at this my eyes filled up and she climbed into bed with me and just hugged me really tight.....She is so loving.

     

    I love watching the interaction between them, she is so bossy with Ellis, but he seems to like being dominated!!! :lol: DD makes him sit down and brushes his hair and tries to feed him!! He just sits there smiling, quite content to be mothered! :) .....when he's had enough, he gives the JERRY SPRINGER "talk to the hand" gesture! :)

     

     

    Lisa xxx

  11. Posted · Edited by ellisisamazing · Report reply

    My Husband is an Aspie, very high functioning, more traits I suppose! Only just dx'd a month ago.

     

    He is extremely clever and a 'big thinker'. Obsessed with Music and History(Has a degree in History, so I never noticed the obsession).

     

    Fanatical about straight lines, curtains have to be almost measured to be equal on both sides when opening/shutting!!! :rolleyes: He is also happy to be alone in a room without any stimulus, tv, radio, books for a length of time! :unsure::unsure:

     

    He has a difficult relationship with his Mum and Dad, They haven't spoken for two years and he says he always felt different as a child....He was reading books about THE THIRD REICH at age six and nobody picked up on it!! :wallbash:

     

    On the plus side, we never pay bills late, and our life is really organised and he is a dedicated employee at work and he likes to hoover and mop, causes he does it better (not complaining about that!)!!! :lol:

  13. Posted · Report reply

    To Opheila and JsMum,

     

    Gosh, you have both experienced bad holidays, so sorry to hear that. I would expected a lot more understanding in this day and age.

     

    I would report the holiday resorts to something like Watchdog or similar, they may find this very interesting...........

  14. Posted · Edited by ellisisamazing · Report reply

    This last few days my two and three quarter year old NT Daughter has been observing Ellis a lot, I keep catching her watching him, so I asked her was there something the matter and she replied, "Mummy, Ellis is broke!", and she then went onto to say," He won't talk to me, he is broke...Oh poor baby Ellis (she thinks she is older!). I have never told her about Ellis because I believe it would have been too much for her to understand at such a young age, she has proved me wrong! :rolleyes:

     

    It has just surprised me just how much she can grasp and understand about her big brother. Like at bathtime he will play with bath toys but will not try to wash himself, he wouldn't now how to....so my Daughter will take a bath scrunchie help me to clean him. I find it really strange, it's like my kids are in reverse. I suppose all lot of parents think this.

     

    When did you notice your NT Child/Children become aware of their siblings difficulties?

  15. Posted · Report reply

    Hi,

     

    In answer to the question regarding Carer's Allowance, it is paid out on a basis that you look after the person on DLA for at least 35 hours per week. So I think even if you are working you can claim this. Sleeping time is counted as are weekends. I think it is middle rate that entitles you to a claim on this.....

     

    Good Luck

     

    Lisa

  16. Posted · Report reply

    hello well done everyone , can anyone tell me how you managed to get back pay , my son has been going through 2 years of diagnosis but i only got my dla awarded from day of diagnosis ?? aslo does it affect the child tax credits? and i read somewhere about a disabilty premium , does anyone know of this ....its so hard to find out what u are entitiled to :unsure:

     

    We also had a 2yr process of diagnosis, and we didn't get it back paid, only paid from diagnosis date.

  23. Posted · Report reply

    HE GOT THE APPRENTICESHIP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

     

    :groupwave::band::cheers::thumbs::lol::dance:B)

     

    We have literally just heard, it got to 4 o'clock & I thought, thats it, then the phone rang.

     

    I feel like I'm going to pass out. I just can't believe it.

     

    J is very, very happy, but is finishing watching his TV programmes before texting everyone! :rolleyes:

     

    He starts mid August, �10k which is very good for an apprenticeship.

     

    For once in my life I have very little to say, I need time for this to sink in.

     

    Thankyou all soooo much for your support over these last few fraught weeks, you have celebrated & commiserated with us all the way & it has meant so much to us. You are all lovely, & I've not even started on the booze yet! :cheers:

     

     

    WoooooooooooooHoooooooooooooooooooooooooooooooooooooo!

     

    Yayyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy!

     

    GO JP GO JP! :notworthy::thumbs:>:D<<'>

     

    Pearl, This is fab!!!! I am chuffed for JP and you and mrpearl!

     

    OMG! I am in tears here! Happy Ones!!

     

    Well Done to you all, you have been amazingly supportive to JP, You are a fab Mum!!!

     

    Lots of Love

     

    Lisa xxxxx

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