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ellisisamazing

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Posts posted by ellisisamazing

  4. Posted · Report reply

    PreciousAlfie!

     

    Hi, I am so dozy at times! It's Lisa from DS, I sent you the PM about this place, you'd posted about Alfie in the DS Aspie/ASD thread! Hope you are ok, and I'm so glad you got yourself in here! >:D<<'>

     

    Welcome Again! :)

     

    If you need a chat, you know where I am!

     

    Lisa xx

  8. Posted · Report reply

    Hmmmmmmm, you could be onto something there Mumble ... just as AS children are often v beautiful & other worldly looking, I think it could be true that they often (but not always) look young for their age. JP doesnt have a lot of expression in his face & still looks v cute. And quite a few AS young peeps I know are v similar.

     

    I could be the exception that proves the rule though - I'm NT, always laughing, crying, shouting, generally gurning ... but can pass for a good few years younger than my real age of 120 (by candlelight, with the wind in the right direction) :lol:

     

    And yes, when I was 18 I hated being thought younger, now I'm pathetically grateful!

     

    Pathetically grateful.....hahahahahahaha!

     

    Good Lord Woman! :lol:

  9. Posted · Report reply

    Hev,

     

    That's brilliant! :notworthy::thumbs:

     

    I am so pleased for you....You are obviously a lovely mum and it's so nice to hear that you and Steve are getting along so well and that he is getting on with his changes in a positive way.... See you've braved the storm and now it's your turn for a nice bit of calm!

     

    Good Work Mrs! >:D<<'>

     

    Lisa x

  10. Posted · Report reply

    You already know about my friends son E ... I think he was past 6 when he first started talking when riding a horse & has never shut up since :thumbs:

     

    I love that, Pearl! Ellis is still riding every tuesday and he love its! I would love to hear him talk so much!

     

    He is babbling such a lot, but I haven't clue what it's about! :huh:

  12. Posted · Report reply

    Just a quick reply but just wanted to say hi. Jaden is 5, non verbal, still in nappies and drinks from a bottle. Will add more to my post after the weekend...just wanted to say you are not alone :D

     

    Hi Jadensmum,

     

    Yep, I will look forward that and would love to chat more with you...thanks! :)

     

    Lisa x

  13. Posted · Edited by ellisisamazing · Report reply

    Logan is only 4.5 but he is completely non-verbal and never has spoken. He's not usually that vocal either, although he has made more sounds lately. He's still in nappies and will be for a while I think. He doesn't use a bottle, and hasn't since he was around a year, but he does use a lidded beaker (in fact will only use one specific kind or wont drink!).

     

    Lynne x

     

    Hi Lynne,

     

    El is quite similar as your Lynden then, no words at all! I once thought he called me Daddy (I must have been having a rough day!), but as time goes on and he makes more grunts and babbles I am more convinced it was something that sounds like Daddy and maybe I was living in hope too much (he still makes this particular sound and it varies in his tone so it's more soundlike than wordlike!).....he is quite noisy and 'sings' alot, very tuneful, repetitive and I haven't clue what it means! :wacko: But very entertaining, accompanied by totally rhythmless dad dancing! :clap:

  14. Posted · Edited by ellisisamazing · Report reply

    Ellis is 6 in July and still non verbal, also still in nappies and using a baby bottle. Just curious to know if any of you are parents to a 'gobbledeegooker'? ( I mean that phrase as a term of endearment, before I upset anybody!) :)

     

    Also if your child was nv and is now verbal, when did they start chattering?

     

    Ellis had several words up to the 18 month point which disappeared just after his MMR vaccination (I am not blaming that either, but you never know!) :huh:

  17. Posted · Report reply

    Watching the new season of America's Next Top Model this evening, they have a beautiful contestant called Heather Kuzmich with AS featured, but she and the others all stated she has AsBergers Syndrome!?!?! :wacko:

     

    Just confused as to why is it pronounced differently?

     

    Oh, and some of them girls are soooo rude, one of them said Heather was on a "three second delay" when it came to taking things in!!! :angry: And all in front of the poor girl who was obviously having a hard time adjusting....why are people soooo nasty?! :shame:

  18. Posted · Report reply

    Hi

     

    My mum keeps saying that it's me that suffers far more than kiddo (I have a 6 year old AS son). I think she's hit the nail on the head there. He seems absolutely oblivious to the mayhem, upset, frustration, sadness, etc that he causes and the effect that it has on others. In some ways I'm glad about that, particularly when it comes to bullying, etc in that I hope he won't feel hurt (who knows!?).

     

    Guess what I'm saying is that I'm sure Steve has never for a minute felt like he's lost out or felt particularly unhappy by not undertaking the types of activities eg clubs, etc that NT kids like. That's how our kids are and I'm sure they're happy in their own way doing things that they feel comfortable with.

     

    Best wishes.

     

    Caroline.

     

     

    Yep, that's exactly what I mean, but couldn't say so eloquently! :lol:

     

    I am probably gonna have a meltdown of my own tonight....Hubby better run for cover! :ninja:

  22. Posted · Report reply

    Hev,

     

    I know exactly how you feel....we are having a bad time right now with El, I feel as though we have gone back in time, to a really bad place. :crying:

     

    Romy was invited to a party a couple of weeks ago and it is actually taking place right now. We have had a dreadful weekend full of El weeping, screaming,meltdowns, not eating and dragging a blanket around everywhere and barely any sleep! Today I have kept El at home and Ro only went into nursery after lunch as her sleep is also affected, I was planning on letting her miss the party (it is at a fun factory type thing on the banks of the River Mersey),as I was worried El would attract sympathisers and the usual stares....I can do without them right now! :ninja::rolleyes: But I then decided I can't let El's SN's always rule us and I have let her go with her classmate and her Mum, it's the first time I've let a non relative take her anywhere without me or DH and I am nervous as anything but I can't let her miss out....I am fed up of having to miss out socially!

     

    I love him so much, but sometimes I feel like screaming and I crave a little 'normality'...I hate how ASD rules us! I know he can't help it, but why is everything so hard?! :tearful:

  23. Posted · Report reply

    Rocketgob >:D<<'>

     

    It's so bliddy hard sometimes, we suffer PERMANENTLY with the sleep issues......and you're right it affects the whole family! :crying: As a result we constantly play musical beds in our house in the hope of landing somewhere and catching a few minutes of shut eye! Our 3 year old DS has suffered terribly because of El's nightime activities and she is now also a terrible sleeper! :rolleyes: My DH is also suffering Long Term Depression and he works very long hours, so if he doesn't get a decent sleep, he ends up trying to start an argument with me about it.....You'd think I was a fan of no sleep the way he sees it! :blink:

     

    We use Melatonin and El has been prescribed that for three years, but he can only take it for around a week then he builds up an immunity to it and then it stops working again, so we stop that and suffer again for a while! We have tried soooo much sleep meds, but they simply don't work on our boy...he basically has tooo much natural energy! Even his consultant was shocked, she put him on a pre-op sedative once on quite a high dosage and assured me he would succumb to it quickly.......That was a long night, he eventually dosed off about 4am!

     

    I understand exactly how you feel....it's a brain killer! And you're right...writing it down makes you feel better!

     

    Good Luck...I will think of you in the wee small hours! :lol:

     

    Lisa xx

  25. Posted · Report reply

    Thank you all,

     

    Its the hidden disability issue! She looks normal, even more so now she's walking better, then she kicks up a fuss other people can't handle it. They don't need to be so intolerable though, she wasn't that bad! She can certainly throw a better wobble than that.

     

    Angel.

     

    Your daughter is NORMAL, it's others who have the issues/problems!

     

    Good for you! >:D<<'>

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