ellisisamazing
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If you've been waiting with baited breath for the next instalment....
He got shortlisted for interview today!!!!!!!
Friday, April 13th but he's not superstitious
We're hoping fantastic Dave his ESW can accompany him
So lots of interview skills practice for next 2 weeks, stuff like:
give an example of teamwork you have taken part in:
how would you deal with a difficult customer:
oh, & take your hand out of your pants, it dont look good
Yayyyy! Woooooo!
Pearl, That's brilliant!
LOL @ the pants bit!
April 13th? Not a problem......My Birthday!! I was also born on Friday the 13th!!!!!!!!!!!!!............kinda explains a lot!
Lots of Good Luck to JP! He's my inspiration!
Catch up with you later
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Hello and welcome to all newbies!
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Thanks for the reply in my thread, Vicky!
Yes, it's fab! I have only heard MUM twice......but I am very happy about that. Small steps are as important as the Big Ones!
I am really happy for you, and hopefully this is only the start for both of our boys!
I wish you all the best!
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it must have been brilliant to hear ellis say mum<'> <'> how are you feeling tonight?
Much better thanks Hev! I just seem to be on a bit of a slump recently......I am always so, MRS TOTAL CONTROL!!!, and I kind of burnt myself out, trying to do everything. Plus I have a really demanding two year old who is jealous of Ellis (ooooh a rhyme!) and is very whiney right now, so I kind of lost it a bit.
But I am OK today, I have realised I'm not Superwoman and sometimes I need to take a step back and NOT do the shopping/cooking/housework etc. or let somebody else do it!!
And it was a real OMG moment, hearing that! Priceless!
How are you, Hev?!!
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Thanks Claire, I live in hope!
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Thinking of you, Hun.....I hope it all works out for the positive.
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Thanks Everybody!!
You all ROCK!
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Go for it! We hadn't had El's dx when Ro came along, but we knew there were some social probs with him before Ro was born. He basically screamed for a few minutes on first seeing her!, Unfortunately I had projectile vomited prior to his visit and my Hubby was asked to wait in corridor with new baby for a moment while I was cleaned up and floor was mopped. And as DH was stood there, my parents arrived with El, who was most put out by his Dad holding a new baby!
El then basically ignored her for the next 14 months!!, He would play around her but avoided any contact with her!
One day Ro just approached him and he put his arms around her and they have been fighting/laughing/being naughty together ever since!!!
So good, we may have another!
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Thanks Bid and Bikergal!
I feel a bit more ok about stuff today, I think I have been so tired that it's making things seem harder than they actually are!
A few early nights are on the cards for me!
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Thanks Kathryn,
Yes he is!!! He is so beautiful, a really sweet boy with lots of personality.
I am ok, just a bit wibbly, I have always been the practical one......I need to be "looked after" for a change!
A good nights sleep will help, so off I go!
Goodnight
Lisa xxx
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I think you should stay!
The Forum is big enough for both of you! Just post around people you don't get on with, it's natural to not gel with everybody!
Stay........
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Hiya Vix, Congrattys on your boys achievement!!
Hope you don't mind me jumping in?! I have been busy so couldn't post earlier.
Last Friday, Ellis was dropped back home by bus, took a look at me and said "Mum!" I nearly fell over with excitement!
He said it again today, and also said "Ello"....... (in a BARRY WHITE WALRUS OF LOVE stylee way!!)
It's so lovely, but I am so trying hard not to expect too much from him. I am very emotional at the moment too and keep worrying about the future for him, I keep logging in here and seeing parents/families with their struggles and it makes me so sad.....
Think I am going through a natural low, I have been soooooo positive and Gung Ho about everything (trying to make sure Hubby and everybody else who worries is ok!!!) and I seem to have hit reality, and my Hubby has just had an informal dx (?) of Aspergers, so I'm a bit fragile!
I have never felt like this, Ok, I cried for a few weeks when we had El's dx, but we just got on with it. And it taken me 18 months to feel a bit wobbly!!
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My son's teacher and his classroom assistants. They took in my frightened screaming child who didn't know how to show love or express emotions other than fear and anger.
In return they have given me back a smiling, adventurous little boy who is full of joy, eye contact and long loving cuddles. (He still has his MOMENTS, but life is so much better!).
I can't thank them enough, we have a long road ahead, but it's not as scary as it used to be.
Medical Pro's have been not so good, had 18 month fight for a diagnosis and they don't give much information/advice.
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I have just recieved my letter to say they have recieved my application. It says if i haven't heard anything within 6wks to give them a call. So maybe you should phone them to see how the claim is going.They said they may need to visit at home to assess, is this normal procedure ?
We never had a visit from the DLA dept????? They just confirmed our paperwork with my son's consultant.
And the claim took 11 weeks and was backdated. Remember to apply for Carer's Allowance also! Good Luck!
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Thanks all, I stopped after 3 drinks so still coherentBeen so strung up this week I'm just like a jelly now
J is taking a well earned break & watching Lemur Island followed by Seaside Rescue, tv heaven for him
NOW just have to keep everything crossed he actually gets the job......
Yaaaaaaaaaaaaaaayyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy!!!!!!!!!
Excellent P!! Give JP a big high five from me and Ellis!!
Three drinks? Is that all? I at least want to see a repeat performance of THE FIFTEENTH OF DECEMBER 2006!!!
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All the best hope everything goes well
Brill Pearl!!
Lots of luck and love to JP!! Will be thinking of him!!
See you over in C4!!!
Lisa xxx
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Awww hun im so sorry this has happened and especially as the boy the son of ur friend, have u spoke with the parent to see why he has been excluded? and to expect a gift why should u bother?! sending u lots of hugs<'> T never gets invited to parties and he used to come out of school demanding he gets an invite like the other kids lots of times and like u i had to say they cant invite everyone but i know T knew he was NEVER invited to parties, he has only ever been invited to 1 party of a school friends and that was when he was in reception class 2 yrs ago since then nothing
Thinking of u.
Bambi x
We have had this happen too and it's awful. When El was still in mainstream nursery he was not invited to any parties in the first six months, but the mothers were quite blatant passing out the invites in the reception area and it would upset me. My son was the only child there with ASD and was the only one always left out.
One particular day I was a bit upset and on arrival was greeted with the usual invitation scenario, I couldn't help myself and blew my top.....I said (very loudly!) "So I take it that El's invite is lost in the post then, with the past 6 months of parties worth!!!!" The Mum in question just squirmed whilst I burst out crying and was packed off to the Head's office, she was agog when I told her and must have said something cause next thing was we were getting loads of invites!!!
We have hadno probs at his special school
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Hello Lovely Pearl!!!
EVERYBODY!! Be extra nice to this wonderful lady, she is my friend and is bliddy fab!!
Good to see you Pearl!!
Lisa
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We also attended my sons special school yesterday for his review. He started there in May last year and was totally shut off from other people. In the nine months at school, he has gone from being an insular, emotionless, screaming, frustrated, violent little boy to a warm, friendly, smiling, loving and calmer little soul.
We are overwhelmed with the positive changes we have seen in our boy and even though we can't predict the future, I feel really positive it will be happy and productive. We are in constant contact with his teachers and class assistants due to a diary which we send back and forth each night and day, any behavioural comments/concerns/eating issues are noted from me, my husband and the staff. I find this really helpful because of my son being non verbal. Makes me feel better nothing what is going on!
We were told that progress is very steady and that his abilities are getting stronger all the time, he will now sit for 30 min sessions, and maintains strong eye contact and is active in all lessons. Teachers own words were, "He is a little star!!"......cue, very proud Mum and Dad!!!
Maybe the diary would help you?
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Hi Luigi,
I have nothing to add really, sorry!! I am the Mother to an ASD son, so I can't really relate to your experiences, but I would like to say WELCOME!! This forum is really helpful and I hope you get a lot of answers from it!
Wishing both you and your Wife a positive future!!!
Lisa xx
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direct health 2000 do them, web site will tell you when near your area, i know there in liverpool sunday coming, needles are about 90 each i was also wary about giving the baby mmr after my other sonWe had to contact this company, it is approx �90 per injection.
But I feel that we ALL should be able to have it done for free as Parents who have another child with ASD, it is such a dilemma. Nobody really understands the fears and doubts unless you're the parent, IMO.
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Had another visit from portage and health visitor today, health visitor still standing by her first views (my daughter is just highly intelligent and a little clumsy)!Portage however do offer support in difficult areas but say she cant be autistic because she is social, however unappropriate it may be!
I know dd is intelligent but it doesnt explain away, her inability to recognise emotions, facial expressions, her sensory issues etc etc etc!
Today when waiting in corridor to go into nursery she pushed one child over and said 'k' isn't here is she, then turned around and hugged and kissed the face off another child saying 'o' isn't here is she. This happens most days despite all the efforts of myself and teachers, does this sound like appropriate behaviour?
Education psychologist saw her in school today but iwasn't given any feedback, apparantly that will be done through portage, so no idea when that will be! They've arranged a meeting for all involved including parents to get together and voice concerns, so hopefully something posotive will come from this.
Still wiating for peadiatricians appointment but weve been told it should be in the next four weeks, can't wait but just hope he listens to our concerns and doesn't fob us off like H.v and G.p have done.
Have a feeling its going to be a fight all the way but i know my daughter and i'll fight all the way to get the help and recognition that she needs.
Sick of feeling patronised when best H.v can say is its probably just the fact she's an only child and maybe because she's tall for her age people think shes older so expect more from her!
A parent knows when something isn't quite right with their child.
I sometimes feel like they think im a neurotic mum or ive got munchausen by proxy!
Its so wrong that we should be reduced to feeling like this just because H.vs and G.ps dont listen to us parents!
Sorry to rant but had to get out all the frustration and tension im feeling today!!
Has anyone else been in this position and how did they prepare for consultant peadiatricians oppointment to ensure their voice was heard?
Feel like i owe it to my daughter to persist.
You need to stay strong and not take no for an answer!!!!
For almost two years before my son was DX'd, I was telling/asking HV's to listen to me, but I was told that I was OVERANXIOUS/TOO PROTECTIVE, A PANICKER etc!
Was also told my son was LAZY, then he was JEALOUS because I was pregnant with my second child (he was two). He was also labelled as ANTI-SOCIAL!!!
When my daughter was born, my son never reacted to her at all in either a negative or positive way, he just ignored her for about year, until when she able to walk and "get in his face"!!!
Even through all this I was still being told to calm down, and that he was definately suffering SIBLING RIVALRY!!!
The straw that broke the camels back was that I took both children to a music session at the library, El ran around like a wild animal climbing on the lower shelves, screaming and cackling at random, rocking back and forth and unfortunately he got rough with a little girl there, because she sat on the seat he was initially sat on (I think, IMO!!) and he pushed her, she fell off the chair and banged her mouth on a table edge. As you can imagine I was mortified and upset about the girl (who was fine, btw!).
At the end of the session I was on the verge of tears, and the Group leader was also unknown to me at the time a SENCO approached me and very gently suggested that he had SOCIAL COMMUNICATION PROBLEMS!!
I was just glad somebody PROFFESSIONAL finally saw what I did. From there on we had a visit from a EDUCATIONAL PSYCHOLIGIST and the ball was rolling we finally recieved an interim dx of ADHD/ASD in August 2005 and then after several appointments and sessions a Confirmed dx of severe AUTISM, GLOBAL DEVELOPMENT DELAY (mental age of 9-12 months was given, though he was actually 3years and 4 months) and obviously NON VERBAL too!
Remember you're the one who sees the whole picture 24/7, keep on at the PRO'S till you get a DX. Write down any behaviour you feel is significant and present the info to your HV and be strong!!
Good Luck!!
Lisa xx
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I use seven other forums and there is sadness and outrage regarding this programme on all of them.
I found the whole thing incredibly sad. The sight of the "Father" stepping over the filth ridden baby sleeping face down on a rotten carpet was the defining moment for me. There may have been no maliciousness from the parents but these children are neglaected, whatever way we look at it. The whole attitude...."yeah, we'll move him later"
The complete and utter lack of COMMUNICATION between the parents and children in particular the "mother" was disturbing......producing children to ensure they had help and care for the rest of their lives????
Truly selfish.
My heart went out to all the children in particular the two girls, the eldest deviod of any emotion as she is so drained and the younger sister contemplating suicide, yet still defending her parents.
I hope that their lives change for the better, And the parents take some responsibility for their actions.
I have a feeling that tomorrow will bring them down to earth with a bump, as the press will jump on the reaction of the public.
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Nellie, take care and good luck to you!
Lisa xx
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My Boy spoke too!
in General Discussion
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Thanks P!
Have left you a reply in your JP thread!