Jump to content

ellisisamazing

Members
 View Profile  See their activity

  • Content Count

    559

  • Joined

  • Last visited

Posts posted by ellisisamazing

  3. Posted · Report reply

    Hi

     

    Yes some gp's do prescribe..although mine won't :rolleyes: Which is a pain in the bum! having to go to the hospital to get the prescription every month.

     

    Hi loulou

     

    Glad to hear your son is settling down a little bit :)

     

     

    My GP also won't prescribe, but we find a telephone call to Paed at Hospital is sufficent, then it's posted out!

     

    We had just put El back on it this week and he is sleeping for around 12 hours (bliss!)

     

    Initally it worked a year ago when first prescribed, then after a few months it stopped, so we had sleepless nights, then he fell into a pattern of regular ten hours sleeps totally naturally. I think Christmas has overwhelmed him so we are giving it another go!

  4. Posted · Report reply

    Hi

     

    You've got past one massive hurdle, which is obtaining a diagnosis. I felt like I'd been to hell and back to get a diagnosis for my son. Once, we'd got that, I knew it was really only the start of things, but it was like a door opening. Straight away I asked the consultant "what happens now?". She explained that Robert would now get X, Y and Z support for eg SALT, OT, etc. The other thing was this is was recognition that I wasn't off my head, I was right in knowing that Robert did have something wrong. I felt relieved and recall feeling almost euphoric phoning everyone to tell them the 'great' news that we'd finally got a diagnosis, then by the evening felt very low and sat and howled!

     

    I remember very well being given the diagnosis and I howled uncontrollably. Poor consultant was apologetic. When I managed to compose myself I told her that I was crying not because I was upset, but because I was massively relieved!

     

    Have to say that even 8 months on, I still get emotional about it. I then realise how lucky we are to have a name for Robert's condition, especially at a young age (he was 4.5 at the time of diagnosis).

     

    You're bound to have very mixed emotions. But, you've got past the biggest hurdle. From now on there will be other battles, but ones which will more than likely be a lot easier with a diagnosis.

     

    Best wishes

     

    Caroline.

     

     

    Caroline, I read your post and it totally mirrored our experience!!! >:D<<'>

     

    I did the 'great news' calls too, and then had a mini breakdown! :crying:

     

    All you can do is release whatever needs to be cryed, screamed, shouted, thrown out!

     

    Our Diag was just 14 months ago (El was 3 and a half) and every now and then it justs creeps up and bites me on the bum.....and I bite it back harder!! :D

     

    LIFE IS A ROLLERCOASTER!!!!!!!!!!

     

    Lisa xx

  5. Posted · Report reply

    Hi all

    Over the last few weeks I have made some miserable posts regarding my sons behaviour and I have felt at a loss over what to do!! Well.......!

    We booked a skiing holiday yesterday(of course the same resort, child care ,chalet etc etc! 4th year now!) and we go on Saturday. Overnight my son turned into some one else! At 6.30am I was woken by this smiling boy in his school uniform! Teeth brushed! face washed! At 8pm he is in the kitchen practising his skiing moves and deciding what colour helmet he would wear at ski school!!!!!

    yesterday I was begging my son to get out of bed and he was begging me to go away and he hates school and wont get dressed with out a BIG fight!!!

    He has even been a delight after school, of course there is a bit of the usual'he's looking at me"etc etc but WOW Long may it last!!

    :D:dance:

     

    Just enjoy it......and long may the good times last! :D

  7. Posted · Report reply

    Take time for yourself. We've just had part of our assessment today and also feeling "raw" Have it outa good cry. As everyone says it doesnt matter how much you are expecting it it is still a shock and you will "grieve"Take care.

     

    madme and shamu,

     

     

    It is still a shock, you hope your child will the one they made a wrong judgment on. Please cry if you have to, It'll do you good!

     

    We had El's Diagnosis 14 months ago and I knew in my heart a year prior to that, that he was Austistic and it was still a shock. I was crying all over the place, couldn't look at people for the fear that if they were nice to me I would cry! Just do what comes naturally, let it out.

     

    It will take time to adjust, but you will get there!

     

    Big Hugs Lisa xx

     

    >:D<<'>

  8. Posted · Report reply

    Have just applied for ff forms for first time, so fingers crossed!

     

    Would love to apply for Holiday, and some other bits...maybe a touch screen pc!

     

    Have just bought a new Condenser dryer on 23rd Dec and a new washer earlier in the year, so they aren't needed!

     

    Maybe a tv for El!

     

    Oh well, lets see eh?

  9. Posted · Edited by ellisisamazing · Report reply

    It's so easy for those who aren't involved on a daily basis to make their ridiculous statements, isn't it?

     

    Thing is they never see the child at their very worst, mum and dad at the end of their tether, and the family in crisis.

     

    So easy for others who don't have direct contact to make their 'helpful little comments'.......

     

    But they don't offer to spend a day in your shoes either! :rolleyes:

  10. Posted · Report reply

    Hi Ellisisamazing.I think nursery provision is very differerent in different parts of the country.In our area the marority of children get a place at 3.Your health visitor is probably the best person to ask.The other place to enquire is your sure start office if you live in an area that has sure start.I think the Government provide low cost nursery or playgroup places in some Sure Start Areas for families in need of additional help.I know that lone parents wanting to return to work are a priority however it is woth asking whether there is provision for those in your situation.Regards Karen.

     

     

    Thanks Karen A,

     

    I have spoken to my HV this morning and she is going to see what my options are. I think it is totally down to individual cases and how you are coping basically, if all else fails....we will have to pay until September!

  11. Posted · Edited by ellisisamazing · Report reply

    Unfortunately with some blokes once they do that, they have difficulty keeping it together afterwards. women cry and accept it as a release and way of coping, that's not how men see it, their image they feel has to be maintained, regardless how inaccurate it is in reality. Women cry, men as a rule don't (At least NOT in view of others). I was brought up that way too.... (I'd be plain embrarrassed if my mates started blubbing and would head for the door, I'd think they lost it). I'll probably keep going myself until I fall over, silly, that's how it is. I think if you do your job right and research there aren't too many surprises. We have different ways of coping, my child is my first and only one, so to me what followed was normal. I just got into it.

     

    I agree totally with what you're saying, but I still believe it's ok to cry.

     

    Our son was our first child and developed fine and fast until age of 15 months then he started to change, But

    we had family saying stuff like, 'Little boys are lazy, so don't worry!'.

     

    So to us it was kinda normal too, I think we buried our heads in the sand about it, and it was a Singing teacher at a play group sesh who picked up on ' his ways'. We just got on with it too, by then we had another child to care for as well. So we had to just deal with whatever hit us!

  12. Posted · Edited by ellisisamazing · Report reply

    I don't want OFFEND anybody here, but I do think that men on the whole do have more difficulty with accepting the diagnosis and facing the future with an AS/ASD Child.

     

    Sorry If any of the lovely men here disagree!

     

    From my Hubbys point of view, he said that as a typical sport loving man, he had so many dreams of taking his boy to football matches and doing rough boy stuff and he feels that the rug has been pulled from under him. I see him sometimes watching other father/son relationships when we are out and you can see the sadness of what he thought life would be. I always tell him that with time these dreams may become reality. I have really high hopes for our boy, but as long as he is happy that more important than anything else.

     

    My Hubby will ask, 'why is he doing that?', and sadly I don't have the answers either. Wish I did!

     

     

    What I should have added is that I think men are so conditioned to be strong and BE A MAN as they are growing up so they find it hard to get upset in a crying way, so will sometimes ease their anger or frustrations by verbally lashing out. I totally encourage my DH to show his feelings, but sadly he was brought up in a non hugging, non loving family so finds it quite hard to cry, but I applaud it when does cry, it's good way to release all that pent up emotion. No shame in at all!

  13. Posted · Report reply

    I don't want OFFEND anybody here, but I do think that men on the whole do have more difficulty with accepting the diagnosis and facing the future with an AS/ASD Child.

     

    Sorry If any of the lovely men here disagree!

     

    From my Hubbys point of view, he said that as a typical sport loving man, he had so many dreams of taking his boy to football matches and doing rough boy stuff and he feels that the rug has been pulled from under him. I see him sometimes watching other father/son relationships when we are out and you can see the sadness of what he thought life would be. I always tell him that with time these dreams may become reality. I have really high hopes for our boy, but as long as he is happy that more important than anything else.

     

    My Hubby will ask, 'why is he doing that?', and sadly I don't have the answers either. Wish I did!

  14. Posted · Report reply

    Perhaps your Husband isn't coping as well as you think. I think maybe he thinks by making comments like he is, that your boy will be encouraged to make changes. Your Hubby sounds confused and upset and maybe doesn't know to admit this. Maybe he thinks in doing so, you'll think he's weak. My Hubby took seven months after our sons diagnosis to accept what was happening. We went to the beach and our son 'didn't get' how to make a sandcastle and my Hubby ended up in tears and admotted he'd felt inferior wanting to admit his upset and fears.

  16. Posted · Edited by ellisisamazing · Report reply

    I thought this was a great portrayal of Autism, the actors all did justice to the roles and the little boy was just fantastic. Both me and DH sat slacked jawed at some of the similarities and we both shed a tear or two!

     

    When the little boy said, "Kyle loves his Mummy", I fell apart. Hopefully one day I will hear those words too!

     

    Overall my favourite Autism drama ever. Loved the scenes filmed in a genuine special school too.

  17. Posted · Report reply

    Where i am there is a social services run nursery(there might be where you are) both my kids went there 2 full days a week free (but only if your on some kind of benefit e.g. family tax credit etc.).

    you could look into it :D

    Clare

     

    Thanks madmooch, We are on Child Tax Credit?? So we may not apply!

     

    I will look into it though.

     

    Lisa xx

  19. Posted · Report reply

    My son is at special school and my daughter who is two and a half will be attending 5 free nursery sessions from September 07. I really want to try and get her in to Nursery beforehand for one or two sessions per week to give her time to adjust and give me back some time for myself!

     

    Anyway I know I can pay for this to happen, but I have heard that in certain circumstances that places are given free of charge, a girl I used to know had PND and was awarded free sessions for 2 of her 4 children. She was only 21, single and had 4 kids in 4 years. Maybe because she was a lone parent it was awarded?

     

    Does anybody know if this is true? My Husband works full time. We recieve DLA middle rate and Carers Allowance.

  20. Posted · Report reply

    Yes, respite is a very difficult avenue. I was offered this several times but declined due to my sons age, I just feel it would be too much disruption to a routine we have worked hard to achieve, Also the thought of 'my' boy becoming attached to another set of 'parents' is unbearable to me! As a consequence my Boy's consultant has said that if we don't accept a social worker and respite now, there is basically no chance of us qualifying as he gets older!

     

    What annoys me is that we may need this at a later date, but because we are currently doing good and coping well, we may have to suffer in the future!

×
×
  • Create New...