Loui

Hi all just a update. Gone back to Meme's doctor. Told her the Melatonin is not touching Meme and not really getting her to sleep any earlier but most of all she is not staying asleep. I feel like i have had a newborn baby for 8 years. She also is concerned regarding meme's stills. She has now referred Meme to a sleep clininc in Oxford. She thinks there maybe a underlined prpblem as Meme's sleep is so affected. They have done some Brain scans and a Digital Ambulatory. Waves on the brain scan when Meme was in rest period was iffy. So hopefully we will find out why her brain is sooooo active all day and night. She has also referred Meme regarding her food . As she is food sensitive and its causing some problems as she only eats few foods. So keep ya fingers crossed we get somewhere/ Until then 9mg of Melotonin is to be continued its the slow release capsule and we have been told now to try it as 3 mg before bed then 6mg if she wakes up; Lol its not working . I feel like i shouldn't keep giving them her as they dont seem to be working. But i do trust Meme's doctor so until next time...............

Hi Donna, Mia is 8 so this as been going on for ever now. They dx her very late and she does have major issues with sleep and possible seizures. I have had the garlic bread fad with mia also.lol I can only hope that it will pass, but somehow i don't feel it will. It's been going on since she could eat.

Hi Mia, has no interest in any foods other then pasta, noodles, chocolate,onions, she does seem to have fads where she wlll eat nothing but noodles for days. I am aware that Mia food issues are more to do with the texture of her foods. I wouldn't have said all children with ASD are pale and gaunt looking. I do feel however that Mia looks the way she does cause she isn't getting the protein she needs hence the hospital appointment. I have started to not give her a choice of what she eats. I still give her , her much loved noodles, but i put a little bit of everything on her plate 1 fish finger some beans one sausage a nugget. Just to see wether or not whe will try any of them. No making much of a issue when she does or doesn't. lou

Hi, i understand what you are saying. Mia never sees or hears any of my worries. Funny you should say about anorexia., my neice has dyspraxia is 16 and has just been dx with anorexia. I will keep a eye out for sure as Mia is very thin, she looks gaunt and very pale. I get tired of people asking me if she is sick. Thanks again i have taken what you said on board.

Hi all thanks so much for all your comments. I havebeen in touch with Mia's doctor. We have shared our concerns regarding her eating habits, her very poor sleep even with the max dose Melotonin 9mg. She is also concerned and has no arrange for Mia to have some more blood tests. Told me in the mean time to get her multi vits. She is going to get her checked out at the local hospital. Regarding her sleep she feels there mabe more going on and is arranging for her to go to the sleep clinic. She has had digital ambukatory done, so not sure if they are going to go down that route again. Keep your fingers crossed. Hoping they finally find out whats going on. Mia's sleep patteren is sooooooo bad i feel like i have 2 babies in the house and not one. I will keep you informed. Thanks again i find your comments very helpful. Lou

Thanks again for all your comments i have taken them all on board. Contacted Mia's doctor who dx her today. Told her that we needed to see her ASAp. We explain about Mia's diet, the "stills" and the melatonin not working. Also the fact every follow up with language and speech so forth, we have had no appointments after 9 months and she wasn't happy. So hopefully we will be in next week getting this sorted out once and for all. Keep your fingers crossed Keep u all updated

Hi , Thanks so much for your comments. I noticed tonight that i'm not sure if it is the texture of the food wiith Mia or the fact everything she eats is the same colour nearly. We have been to the doctor who has recommended a build up drink. Got to give it ago. Trying to explain to Mia, that she should try other things is very difficult as she just doesn't understand. So keep yr fingers crossed that she drinks the build up drinks, least they will give her the nutreints she isn't getting at the moment. Protein is so important and she isn't getting her daily amount. It makes me so sad when i see my other children enjoying the pleasure of different foods.

Hi Suze, no i haven't look into the search engine but will do now. I'm new to the site . Still finding my feet. Thanks Loui

Hi , thanks for your comments. I will certainly try some out. Don't think there is anyway that she will eat meat or fish thou. lol. I just find everything that i offer she turns her nose up at. Mia is 8 now and it's getting worse as she gets older. In fact i think i notice more as she gets older. As she was a late dx (as no one was taking us seriously) I feel that we are so behind on a lot of things. Even thou it's normal for us now. I feel if we had earlier imput that we might be dealing with things like the food issues a lot better. Sometimes i feel i'm letting her down . It was such a battle to get her dx and then when we did they just tossed us into a ocean and left us there to sink or swim. We are swimming but gee it can be so hard sometimes.