call me jaded
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Posts posted by call me jaded
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Very interesting. I shall certainly be feeding back to the WCA. We have a medical the day after we come back from holiday and I have a couple of comments on how the process is and they haven't even seen us yet.
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Glad we sorted you out! It's been a bit fragmented today, but normal service will be resumed shortly.
The NAS website has good advice for adults seeking diagnosis. Also is there another GP in the practice who may be more sympathetic?
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Delete My Cookies at the bottom seems to work.
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If you use the Delete Cookies option at the very bottom of the page it resolves the posting error. You will have to sign in again.
I like it, just need to get used to it.
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although I can now find the PMs I can't seem to send one - same blank page.
Can you PM me your email Lufty and I'll send the capture.
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Also having difficulty with the PM function - where is it?
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Will try and do a screen capture.
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Anybody else getting a blank page after posting?
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Anything on the V website?
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Thanks Lufty!
Just to say that to see all the latest posts it's now callewd View New Content and is located top right just below the search facility.
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Something like this?
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Sounds lovely. Welcome back!
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There are opportunities for youth volunteering at V.
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I'm sorry to hear this. I'm sure this is a difficult time for you but things can get better. I'm also sure that it's not all to do with your diagnosis, or you. People don't stay frozen in time and sometimes the changes mean you have nothing in common with each other any more. You have two beautiful children and that's worth remembering and something to be proud of.
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That's enough! Welcome to the forum.
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Well I'll just do the short answer.
The very first stage of diagnosis is a general development assessment (GDA) which (I'm sure you know) looks at the developmental history. If your child wasn't showing symptoms of another neurological condition there would be no need to eliminate it, would there?
I don't think I said MRIs were used routinely, but that if there were other conditions to be ruled out then MRIs were one of the diagnostic tools that for complex cases are used and have been for some time. I suspect that Charlotte Moore's and many another's child[ren] will undergo GA, with its inherent risks, to access MRI as the benefits of having a diagnosis validated (in a scientific sense) are many.
Though if there is a snittiness test to be gone through first, perhaps you should publish your definitive guide. Otherwise I might be thinking Charlotte Moore was merely expressing reservations about the practicalities based on a prior experience and that would never do.
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Hope you're having a good one!
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Baddad the diagnostic process for autism is that you eliminate everything else first, so MRIs have been part of that process where appropriate for a very long time. It's used to eliminate tuberous sclerosis, etc.
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My solution is dirt cheap and you don't need anyone to write a report!
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As for what I'm 'trying' to say, it's quite simply that MRI scanning has been part of the diagnostic process for some time, and that the way it is achieved is to knock them out cold, not entirely safe and emotionally traumatic, speaking from experience.
To call my account Top Trumps surpasses any snittiness.
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The 'journo' as you call her is author of 'George and Sam' and it's one of the very many opinion pieces that the Guardian commission. If you're familiar with Comment if Free the pieces are designed to promote a response. Cif is like that.
Secondly I'd say the difference between the two ends of the spectrum are starkly revealed in this thread. I see the MRI as one of the many tests that are offered low functioning children to find out the extent of their difficulties - it's still an option offered now and, yes, I would expect the neurologist to outline what they expect to find. So for the low end a simple MRI can be expected to reveal anything.
It's not all behaviourist at this end. There are some real physical and learning difficulties too.
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Performing or watching? lol
Have fun. Always meant to go but make do with local pub/club (where quite a few come and try out stuff).
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I even jumped in the swimming pool with all my clothes on, but it's OK because I shouted "incoming" first
I've just promised myself I'm going to do this before my next landmark birthday. So much easier than jumping out of an airplane, but satisfying none-the-less.
Well done for participating so fully.
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Baddad I am talking about the diagnostic process that we went through for autism, as it was in the late 90s, early 2000s. We had to go through a series of NHS waiting lists, starting with hearing tests and culminating in EEGs and MRIs. We had a child who couldn't walk and couldn't talk at three and a half. The neurologist warned us that it was a case of finding something but he couldn't say what, but not to rule out a tumour. He was just walking by the time he had the MRI and the scan showed up a cyst ( a Dandy Walker cyst) that was part of the reason he had problems but absolutely not the end of it. They couldn't tell what the prognosis was because they didn't know what his condition was. By this time he was in his special school and we had no reason to seek a further label and besides the next diagnostic step offered was three days at what's now the Lorna Wing Centre but we were all diagnosed-out by then and said we couldn't take any more.
Roll on a few more years and a transfer to secondary was beginning to worry me so we went back and asked for an ASD assessment. By this time things had moved to multi-disciplinary assessment and everybody had had their training so it was a simple CARS with the clinical psych and a chat with the paed and a confirmation by letter.
That is a fairly common diagnostic route for children of my son's age who are on the severe end of the spectrum. Some got there quicker than us, some didn't get there at all and stopped at the 'global developmental delay' stage.
At my wits end
in Beyond Adolescence
Posted · Report reply
What if he pays you for a couple of hours each week to sort him out? Keeps on top of it and ensures it's done and mentally you're not giving up free time. And you wouldn't be nagging him to do it. Over time you could recruit someone else.