Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team

Search the Community

Showing results for tags 'undiagnosed adult'.

More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


  • Autistic Spectrum Disorders
    • Meet & Greet
    • General Discussion
    • Education
    • Help and Advice
    • Medication/Diet/Vitamins/Supplements/Remedies
    • Resources
    • Beyond Adolescence
    • ASD Related Conditions
    • Off Topic
    • Techie Corner


  • Calendar

Found 1 result

  1. i would appreciate any advice...help...support for my son because so much has happened in the last month... the situation has escalated so quickly ... i think it may be easiest to state dates and events to clarify what has happened my son ... and his girlfriend.. live with me. i have tried to get help for him for ?? years... he lost his job 5-6 years ago ,,, treated very badly .. second son of four... spends all day every day in his bedroom.. smoking.. drinking and gradually restricted his eating to almost nothing friday may 1st i was staying with my son in essex for the bank holiday weekend ... i live on the isle of wight...and i was speaking with my friend on the telephone... her teenage son is awaiting assessment on the autistic spectrum and things she told me about him started alarm bells ringing in my head ... i couldn't speak...she knew i was worried about my son and i managed to say ??/ oh my goodness ...sounds like tom....and she said but he is a fully functioning adult isn't he? and for maybe the first time i blurted out... no.. he's not... i spent the day on the internet and telephone trying to find out more and many of the symptoms...characteristics of aspergers describe tom to a tee...i have made notes on articles etc but haven't had chance to go back to them as events took over... highly intelligent..... terrible handwriting... not a sporty bone in his body ... socially ?? awkward...always wanted to be included in the adult company and conversations not the children ... knew every flag of the world... lots of things that i need to re read now... i felt sooo positive and spoke to a lovely lady on an advice line and she recommended a book called Asperger Syndrome and Alcohol... i had been desperate to help him ....downloaded the kindle edition and it is possibly what saved his life... sunday may 3rd / monday 4th i drove back from essex got home in the evening ...decided i would broach the subject when i could because he is smart and has made no secret that he is a bit OCD ...mentions it often ... again not diagnosed....so he is open and aware of things that affect people..i didn't see him on the monday tuesday may 5th deliberately sat in my study so that i would be able to hear him as his bedroom is next door... when i heard him moving around i went in and asked can we talk ?l he wanted to sleep on but i said ok but lets talk later ... tried again later ...laid on his bed with him and started explaining but could tell he wasn't well... i pretty much begged him to let me get help but he said no...cut to the chase.. when his partner arrived i said we HAD to do something ... she said he would hate us if we did and i said ..well he'll have to hate me and i dialled 999.. paramedics arrived while i was still on the phone... checked bp etc and they looked ?? gravely concerned said options were .. hospital or...and i just blurted yes..hospital... actually felt relieved that he was going to get some help... thursday may 7th by thursday he was in intensive care ... all happened so quickly .. he deteriorated and was sedated and put on life support... because his lungs failed...his was in heart failure...they had the kidney filtration machine on stand by... he was diagnosed with sepsis ... life threatening ...total body septic shock... some infection ...treated for chest infection / pneumonia and the consultant warned us that in his 25 years experience no one in tom's state had ever recovered... but they would do EVERYTHING they could for him ... and oh my goodness they did... they pumped him full of so many things ...a list as long as your arm....blood transfusion ... platelets ...the lot friday may 8th just got worse and worse ... the sepsis was "raging" through him.. his temperature went above 40 degrees ... and the consultant told us "he will die" his brother came from essex... his youngest brother who lives in texas flew home... and family came to see him... it was totally hideous ... that is the only word i can use to describe it.. i was in absolute terror of my phone ringing during the night... then dreaded what thy would tell us the next morning.. he had to have his chest drained as his right lung had collapsed ... a routine procedure but on a high risk patient as he was ?? an empty shell... his platelet count ... which is what makes the blood clot had been 14 when he was admitted ... normal is 140 + ..it fell to 3 and then to 1 .... so the doctor told us there was a real risk of him just bleeding .... sometime after that ... can't remember what day he had to have another chest drain the other side which was in a more difficult position .... but the critical 24 -48 hour period passed and he was still alive... temperature kept spiking and infection markers raised ... but gradually... very gradually we started getting good news... might lose the tips of some toes because the circulation had been sending everything to try and protect his organs.... they dragged him back ..... overwhelmed and in awe of the ICU nurses and the NHS.... sunday may 17th he had been moved from a separate room to the ICU ward i think the day before and we walked in that morning and he was off the ventilalor !!!!!!!! wonderful wonderful surprise ... the dates after this are blurred but he then spent about a week on the cardiac unit ... diagnosed with dilated cardiomyopathy... his heart is damaged from alcohol ... so he is on medication... he was discharged last friday ... so now i can resume and revisit my thoughts on aspergers.... don't now where to start yet ...still reeling ... but he is back to spending the day in his room... although he is still poorly he is soooooo much better than he was... he has started eating three times a day... on special high nourishment milkshakes and takes vitamins ... but he is alive... not living.. the irony is that his partner is a learning support assistant and works with children who have aspergers... she doesn't agree with me ...she says she can tell by looking at her groups and recognises who has aspergers... wasn't happy when i talked about it at the hospital... yesterday she ordered a tesco home delivery of apple juice etc but there was a computer game for him also... which will keep him in his room ... she says we don't need advice..i disagree... any info ..suggestions..anything ...greatly appreciated.... thanks if you've managed to plough through this .....at a bit of a loss at the moment what to do / what not do for the best... thanks ..jan apologies .. just realised i didn't even say hello...hello !