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moira199

Assessment at CDC

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DS had assessment today at CDC and the news was that there is nothing to worry about for now. I have to admit he put on a fantastic show with imaginative play, pointing and eye contact. The therapist is coming out for a home visit later so may resolve more then. Of course I would like to believe good news but I feel it is just reluctance to make any diagnosis so young - 2 1/2 !

 

MOira

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You may be right, Moira. It's probably difficult to assess a young child accurately in an artificial clinic setting. I hope you get some clearer answers soon.

 

K x

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It does sound rather young to me too. The Boy was first identified as having probs at 2 and a half at nursery - a very small change in nursery changed him from a boy who happily skipped in no worries to a boy that clung to me and cried and didn't want to go in.

 

Initially a pre school specialist was brought into nursery to work with us. After 6 months we were put on a waiting list for CDC assessment. They then assessed him over a period of 6 one hour sessions over 6 weeks. This did not result in a dx - just highlighted that further assessment was needed. We then had 6 months of "full" assessments by various professionals, this ultimately did lead to the dx - The Boy was nearly 4 at the time (the Sept before his 4th birthday in Jan).

 

So maybe your journey could follow a similar pattern? The fact that a therapist is coming for a home visit does indicate to me that although "there is nothing to worry about for now" they do feel there COULD be something? I'd wait and see. These things are never quick. It is horrible whilst you are going through it though.

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Thanks for the advice. I was not expecting an instant DX but I was surprised at just how well it all went - as if he knew he had to put on a good show ! I would like to know whether I have to be ready to accept or whether I could hope that maybe it is just a mild case - if there is such a thing.

 

Please let me know if there is anything I can help you with as I feel that I have not contributed much so far other than asking questions!

 

Moira

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He may be too young to determine if he's on the spectrum or not (Tom was diagnosed at 2 years 8 months, but he had a lot of red flags like lack of imagination, using adults as tools, no interaction with peers) but that doesn't mean he doesn't need help with things like communicating. Could you ask to be referred to a SALT again and ask for specific strategies - including non verbal ones - of getting your ds to communicate. That will help in two ways. Firstly, he'll be getting help in that area and secondly if it does turn out that he is on the spectrum in later years the SALT etc will be already working with him and will hopefully pick it up.

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el was given a possible dx at four years of age, but they wouldnt commit themselves even tho some of her ways were screaming autism at them! so am not suprised to hear that you have not got any answers yet. hopefully tho things will become more apparent, if he does have any difficulties they will become more obvious as he gets older and starts school.

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