allsetuk Report post Posted May 8, 2007 i sent a query to the everychild matters campaign i thought you may like to read the reply as it features some helpful points for all of us and something of interest Dear Dionne, Many thanks for your email. You set out exactly why our campaign is needed - to get a better deal for families with disabled children. Please do ask all the parents you are in touch with to sign up to the campaign at http://www.edcm.org.uk - together we can really begin to change things. The focus of the campaign so far has been on issues like short breaks, childcare and other services that families tell us they need. We have been working on a major government review of services for disabled children which is due to report later this month, and we are hoping there will be substantial new funding announced. Watch this space! We have also highlighted benefits issues like Disability Living Allowance, and are lobbying Ministers and officials in the Department for Work and Pensions to increase the payments at all rate for both Care and Mobility component. We have also supported parents who have been lobbying on the Blue Badge issue - see http://www.edcm.org.uk/Page.asp?originx_96...0k_20072275342a Once the government review has reported, we will be looking again at our campaign priorities in September, and we will be asking our supporters what they think we should prioritise - I'm sure benefits, mobility and transport issues will be high on the agenda. If you and all the parents you know sign up as supporters, and tick the box allowing us to email you, we'll be in touch about this in the next couple of months. In the meantime, the Contact a Family helpline has a range of information sheets that tells parents what they are entitled to - because in fact, families should be getting support from a range of sources, not just the Family Fund. The Helpline contact details and factsheets are at http://www.cafamily.org.uk/helpline.html - do spread the word. Contact a Family Helpline can also put you in touch with parent groups who are campaigning to improve services locally. Thanks again for your email and your interest in our campaign. All best wishes, Steve Steve Broach Campaign Manager - Every Disabled Child Matters Council for Disabled Children National Children's Bureau Quote Share this post Link to post Share on other sites
gladysmay Report post Posted May 13, 2007 allsetuck, thanks for sharing the reply and contacting them also!:) Quote Share this post Link to post Share on other sites
