But You Don't Look Sick!

[Tally]

ButYouDon'tLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and hopes to provide answers to the endless questions of: But you don't look sick?

 

It is US-based, but any general principles may well be useful.

[smiley]

I like this website Tally

[Mumble]

Normally I don't like stuff like this (and when I started to see some of their 'dreams' pillows I was thinking, nope, not for me), but then, out of curiosity, I read their 'spoons story' - or theory of spoons as an explanation of what it's like to live everyday with illness/disability. This is based more on illness (Lupus in this case) but I could actually really identify with what it was trying to do - and the idea of borrowing spoons from different days really works as an illustration of my coping mechanisms:

 

The Spoon Theory

[ScienceGeek]

I quite like that site

[pearl]

I like the Sick Jokes pages

[Diane]

I like this site. I have jut read the spoon theory and yes I can relate to this. I care for the spoons that belong to my son when he can't get it right or is just struggling in some way. For very different reasons it is exhauting.

 

I am going to tell my family about this story and although it is about Lupus may be it will help understand what a day can be like for our son and also my brother.

 

I am not trying to belittle what the author has to go through each day. My brother has an auto iommune disorder and I do understand, it was seeing it written in the way that it has been really touch me.