skye Report post Posted January 2, 2009 I have just sent in my claim form today after reading on this very forum that you do not have to wait for the actual diagnosis to come through before applying. I am very grateful to have this forum to come to and find out these sort of things. A big issue with my daughter right now are her shortened tendons in the back of her legs from always walking on tip toes. We are waiting for her to be seen by someone. I have tried to do some exercise with her which usually results in her kicking me a lot to get off of her. She asks to be carried all the time and is getting very heavy now. I was just wondering if anyone else has mobility problems on this forum and have been successful with getting the higher rate of mobility payment? I really hope that very soon, after she is seen by a specialist that we would not require this anymore and that she will be ok to walk places but for now the extra money for public transport and taxis and things is really mounting up. Just curiosity really. I have read through some old posts about DLA and it seems to be that most people receive middle/lower rate care and lower rate mobility. Hope everyone is having a great New Year!! Hey school starts back in a few days!! Quote Share this post Link to post Share on other sites
Tally Report post Posted January 2, 2009 Your daughter's tendon problem is additional to the problems autistic people may typically have with mobility. As it is a physical disability, it will be easier to define exactly how it affects her mobility. It might be worth looking at advice for people with physical disabilities as well so that you can make a strong application. Have you thought about getting a Major Buggy. They are larger intended for older children than normal buggies. They are quite expensive to buy, but your NHS Trust may provide one in the same way they would provide a wheelchair. It is not reasonable to expect you to carry a 5-year-old. Quote Share this post Link to post Share on other sites
skye Report post Posted January 2, 2009 Tally, No I hadn't realized about the buggy. Until pretty recently it was never really a problem but she has shot up big time in the last few months so the sticking her on the shoulder thing is really starting to wear thin. I will find out about the major buggy. Thanks for the advise, Skye Quote Share this post Link to post Share on other sites
teachermum1 Report post Posted January 2, 2009 J gets high rate mobility (after a Tribunal) on the basis of severe mental impairment and severe behavioural problems. BUT that route is very hard to prove (took me over a year) and the unable to walk due to pain/ physical problems seems to be easier to prove. Good luck Quote Share this post Link to post Share on other sites
Lynden Report post Posted January 7, 2009 Logan gets higher rate mobility (and we have a major buggy) but he has hypotonia and hypermobile joints in addition to his autism. He didn't walk till he was a month off his third birthday and even now at 5 and a half wont walk on main roads, tires easily etc - though he will walk in parks. Lynne x Quote Share this post Link to post Share on other sites
