I've said hello already but just wanted to post my family's story too

[Gail66]

I live with my partner Michael and 2 children.

My daughter F is 7 and my son K is 5, he was diagnosed with AS a couple of months ago.

 

K has always had unique interests - mostly number and letter oriented - and he has always been "a handful"

We didn't think there was a specific reason behind it though.

 

He was referred to the community paediatrician by the school shortly after he started in September 2009.

We had 1 appt with K there and then another appt without him to discuss his diagnosis.

The doc said that there was a long waiting list for the local clinic she wanted to refer us to so they had asked for him to see other specialists in order to clarify his diagnosis and hopefully diagnose him without the need for a referral to the clinic which might take a while to even get an appt.

So then he saw a speech and language therapist although he doesn't have any problems with his speech she wanted to see how he used speech and how well he was able to do this.

She thought him very eloquent for his age but saw his poor attention span and particular use of language as a cause for concern.

We saw the paediatrician again to discuss the speech therapist's findings and that is when we got his diagnosis confirmed as AS.

 

I saw it as a relief in a way but my partner was knocked sideways by it.

We're still trying to find out as much as we can hence joining this forum and seeing what advice and support there is out there...

 

Our main problem was disciplining K but since the diagnosis we've got a new understanding of his behaviour and things have improved alot

Cheers Gail

Edited November 30, 2010 by Gail66

[Kathryn]

Welcome to the forum Gail.

 

Interesting to hear what the route to diagnosis has been for your son. How's he doing at school - are they supportive?

 

Plenty here for you to read about, and if you've got a specific question of your own, feel free to start a discussion.

 

K x