So tired of navigating the system.

[Guineapigged]

I saw the consultant psych of my area at the beginning of December and he said he was going to refer me to a specialist to be assessed for Asperger's. I trusted he would do it and felt happy that things were moving ahead. Today, since we've still not heard anything regarding my referral, my parents said I should call the CMHT and check that the referral has actually been made. I rang up and they checked my notes and said that they had no record of any referral.

I am gutted because I have been waiting so long, have seen so many doctors, and I am so tired of being promised over and over again that certain things will be done that actually never end up being done. I am sick of being the patient who is constantly ringing up, pestering, asking things over and over again. Each time it gets more humiliating.

I have just about had it. I really thought I was going to be referred this time but, yet again, I've been let down. I can't be bothered with it anymore. At the beginning of this whole charade, "Asperger's" was like a ray of hope, an explanation for all that's gone wrong in my life, but now it's got to the point where I don't even want to think about it anymore because it's caused me nothing but stress. I wish nobody had ever brought it up.

[trekster]

My gran had to pester our GP for 18 months before we finally got a diagnosis. You have come so far with trying to get a diagnosis, a letter to PALS should shed some light on the subject. Good luck.

[Mandapanda]

Hi

 

Have they said they will do the referral now, or are they saying that a referral was never even mentioned?

 

Are you due to have a follow up appointment with the CMHT or have they discharged you?

 

If you are not getting anywhere I agree you should contact PALS (the CMHT should be able to give you the contact details for their PALS dept). PALS will liaise with the CMHT and help you complain if appropriate.

 

I don't know where you live but in our area (Hampshire) the CMHTs are undergoing a major restructuring and are extremely stressed, overwork and understaffed at the moment.