Annea Report post Posted August 13, 2012 Hi again everyone. Just to refresh, I have two daughters ont he spectrum one with A/S and one with ASD we have suspected my son age 10 is on the spectrum too and he was finally put on SA at school just before end of term because of his behaviour and some dyslexic type learning difficulties. he seems to be reaching puberty fast and his behaviour is becoming more bizzarre and less and less appropriate.... Lots of vocals and accents randomly coming form him.... he has always been ... quite old for his age... talks to people in very mature language etc... but he seems to be deteriorating fast. (but i think this is more he is struggling to hold in things he did before) He is also becoming very aggressive but this might be an age thing. Lastly he has had toiletting problems for years, with holding his bowle movements then soiling. this seems to be getting worse again and every night I have to brie him to sit on the toilet. I am now sure he is ont he spectrum and as he is going into year 6 I want him to be supported as much as possible. When my second daughter was diagnosed, the pyschiatrist Dr S (those local will know her) was very dissmissive not like with my first daughters diagnosis so I have decided to go down the private route for diagnosis because on the NHS locally the wait time can be a long time. Does anyone have a recommendation of a doctor who diagnosis in this area? I am happy to travel as far as bristol but not further due to my own ill health. Not sure if this is allowed to name docs on here so can people message me if necessary. Thanks x Quote Share this post Link to post Share on other sites
MelowMeldrew Report post Posted August 14, 2012 I know Dr S she diagnosed my son. I don't always agree with what she says either. We have quite different views on communication approaches, whereby Dr S prefers parents organise every facet of an autistics life to 'control' behaviours where I am doing my damnedest to make him more self reliant. She needs to appreciate our children won't always be in some institutionalist-educational surrounding, and Dr S approach can just make it impossible for parents to cope after they leave them, this is not a good approach given S Wales has next to no ASD support at all that works, especially as a child approaches puberty and beyond, there can be nothing at all. Bristol is probably your best bet, I doubt S Wales has ANY alternatives you can consult. Quote Share this post Link to post Share on other sites
Annea Report post Posted August 14, 2012 Thanks for that, I chatted with Ed advocate today, and got a name for a solicitor who might be able to help me with assessment. As I am also long term ill I am on benefits so this would be much better if I could get some help toward the cost of diagnosis. It's funny how people change, this consultant is totally different now than when I first met her, she was very against my eldest daughter going into private AS schooling, but this schooling saved her life literally and she is now an amazing young woman nearing end of college and getting ready for uni. South wales is totally dire for support, and the welsh assembley apparently pours lots and lots of money into ASD provision! Quote Share this post Link to post Share on other sites
MelowMeldrew Report post Posted August 15, 2012 Thanks for that, I chatted with Ed advocate today, and got a name for a solicitor who might be able to help me with assessment. As I am also long term ill I am on benefits so this would be much better if I could get some help toward the cost of diagnosis. It's funny how people change, this consultant is totally different now than when I first met her, she was very against my eldest daughter going into private AS schooling, but this schooling saved her life literally and she is now an amazing young woman nearing end of college and getting ready for uni. South wales is totally dire for support, and the welsh assembley apparently pours lots and lots of money into ASD provision! You were lucky ! My child was diagnosed at 3-4yrs of age, in all the dealings I had with this Dr,not once did she tell me there was a special school he could have gone to. I was under the impression for many years there was no spscialist education here. I was very angry about that, I tell my child had lost 6 years of proper support at the most vital period of learning, in fact only when I pulled my child out of mainstream and refused to go any further, did a teacher tell me an special school existed. She was thanked by almost losing her job for telling me. I take no-one's word for anything now and offer up alternatives to medical opinion and education, they are NOT always right, most, work on the basis of cost not right. Quote Share this post Link to post Share on other sites
Annea Report post Posted August 15, 2012 ah let me clarify there is no specialist primary or secondary specialist A/s provision in wales. An advocate form education advocacy put me on touch with a priory school in frome, my daighter visited and then we fought harder than we have ever fought anyone to combat our local LEA at tribunal to get her into this school.... as said the specialist was against her going and told me it would potentially harm her! My daughter lost 9 months of school when she had a near break down in year 9, she became a school refuser. Everyone tried to egt my daighter into special schools that were generic and filled with children who had severe learning or behavioural problems.... neither of which my daughter had, they then tried to get her into A/S untis attached to local schools but for me (just a personal opinion) ihave heard a lot of horror stories about them and i knew in my heart they would make matters worse. My daughter is now almost 18 and has just decided to take an extra year to do her remaining A2's at college... she is still within the priory group of schools and will go to uni next year. it sickens me that during my journey with my childrens autism which has so far lasted over 15yrs that all of us are stll fighting the same issues.... How can so many who make decisions on our children have such a gross misunderstanding about what is truly needed. The Welsh Assembley are very good at words but nothing worthwhile ever comes to fruition and our children suffer every day. (sorry for the rant... its been a tough day) Quote Share this post Link to post Share on other sites
trekster Report post Posted August 16, 2012 http://www.autism.org.uk/our-services/find-nas-services-in-your-area/area-development-teams/area-development-team-in-wales.aspx 02920 629 301 southwales.services@nas.org.uk Quote Share this post Link to post Share on other sites
