New Dr - accepts ASD may likely be the dx after all

[dekra]

As the title of this post suggests we have seen a new paediatrician the hospital team referred us to for on going monitoring. This Dr has said we agrees with us that yes ASD might very well be an appropriate dx after all. She has also suggested as Finn has appropriate support in school which would not change and as our DLA award is for 5 years that at the moment there is no need to look into changing labels and this can happen at a later date if appropriate when his needs change or it becomes more apparent that it definately is ASD. I think that is fair enough, he IS getting the appropriate support. We will see this Dr 2/3 times a year and at any time if we have concerns we can contact her for another appointment and if needed she will get us referred back to the hospital team. Also in the meantime she is referring us to OT for help with his fine and gross motor skills. We are unsure if he needs the OT input urgently enough to add yet another person treating him but as the Dr says lets get the referral done as it takes a number of months to be seen so when the appointment comes in we can decide then if it's too much for him.

 

Also he is still getting his 4 afternoons a week with the language unit plus the specialist SALT from the language unit will be coming into the school for 2 more sessions a week starting next week. So that will be 6 sessions of speech and language therapy a week.

[Sally44]

Glad things are moving for your son.

I have found OT input very useful for my son. He has alot of sensory issues, as well as dyspraxia, and these can all affect thought processes, and movement planning, which has a knock on effect with remaining calm, keeping focused, organising things and planning skills for both language and movement [the two are interconnected - for example a child that cannot crawl up, over, under, behind etc has no 'mental' concept of these if they cannot do them. So movement affects thinking, and affects language development as well as reasoning and problem solving.

 

My son sees alot of professionals for 1:1 therapy - and you have to get the basic skills in so many areas before they can move onto other things.

[trekster]

At last a Dr that finally knows what their talking about. Really pleased for your family and agree if you tell the DLA people you can have your award changed. Even though mine was indefinite it has been changed to 2 years less when I mentioned the EDS and fibro needs. So my needs increase and i get told my DLA will be reviewed earlier. Hows that work? (rhet)

Edited October 24, 2012 by trekster