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      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team
LifeMeh

Incurable cancer diagnosis, uncertainty is unbearable

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LifeMeh   

Hello, 

Recently diagnosed HFA at age 41.had stage 4 cancer for nearly 2 years and always found the uncertainty of the diagnosis (not been given a time frame) the absolute worst part of it, worse than the thought of dying itself, with this HFA diagnosis I guess I know why. 

It's actually driving me insane, I can't cope with not knowing, scans every 3 months and the wait times, it's all too much, can hardly deal with a change of daily plans, this waiting around to know when I'll next need treatment or going to die is unbearable. I depressed and having meltdowns more than ever, i wish the cancer would do its job a lot of the time. This isn't an intervention or cry for help, just stating facts. 

If anyone has any experience with this please can you give me advice, thank you. 

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trekster   

I'm a few years younger than yourself.

My niece is 5 and has a terminal illness. I think about her on a daily basis even though I can't see her as often as I would prefer. This causes really extreme anxiety. 

Are you in contact with any cancer charities? 

I know the national autistic society has a section on bereavement etc but that's aimed at people who know someone is dying or has died. 

http://www.autism.org.uk/about/family-life/bereavement.aspx

Do you have family and friends to support you? 

Hope you find this forum supportive and helpful in reducing your meltdowns etc. 

I find the 'Stickman communications' cards to be invaluable in explaining to people what I'm feeling and thinking and my needs at the time. 

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