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smiley

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Posts posted by smiley


  1. Im really pleased he came second - before you all shout at me :angry:!! - i don't think Eugene would have coped well with the pressure of being a winner - it's media hell. He is such a lovely guy, like the rest of you i sat an watched his interview with a huge grin on my face - i don't think there is a nastly bone in his body :wub: . What a sweetie.

    Regardless of if he has Aspergers or not, it's great to see someone so honest get so far. :):)


  2. thanks for the link to hants.net Katkin, i'll have a look through it. I actually am with you on the pieces of paper thing, I'm very proud of the things i have acchieved, but at the same time, i know people with my qualifications and they are clueless when you put them in a room full of kiddies :wacko: . I would hire the nicest and most able person for the job, not most qualified.... :)


  3. >:D<<'> >:D<<'>

     

    i just wanted to say - i know how you feel. My son was diagnosed with aspergers a couple of months ago. I knew it was coming, i'd been battling for years to get help for him. But once your sitting opposite someone and they say "It's xxxxx" , no matter how hard you've fought for help, the grief (if thats the right word) hits you like a slap around the face. You do get through it, and your little ones life will be so much better with the help and understanding that he needs.

     

    >:D<<'> >:D<<'>


  4. hi squshychick (love the name by the way!)

     

    i can completely relate to this one. My son hasn't been statemented. I have requested it several times (after consultant and speech therapist said he should be) but his headteacher turned me down. i have since found out that a parent can request a statement and i'm just beginning the process now (although a friend took a year of constant phoning daily to get it done - bit of an uphill struggle where we are).

     

    Mary xx


  5. I'm looking for a job working with special needs children too. It's really difficult to find one. I've worked with children all my life and am qualified up to eyeballs ('scuse my big head! :) ) but am finding it a difficult area to get into. Compounded by the fact i want to work only school hours and term time (so i can be home for my son) it's nigh-on impossible. Most places i have found tend to recrute within there current staff or just don't advertise freely - tends to be word of mouth. A friend suggested sending a c.v to every local school/care facility etc to see if that gets me anywhere. But i don't want to feel like i'm bombarding people - mind you, you never know till you try. Will let you know if i get anywhere and good luck with finding the job your after.

     

    Mary xx


  6. Yum Yum Yum !!!!!!!!!!!! :lol:

     

    Can i be in the jonny depp fanclub too......please!!

     

    'Pirates' still a firm favourite....'scuse me whilst i wander off into own little daydream...................... :wub:

     

    Still one of my favourite quotes from Pirates;

     

    Slap! "i didn't deserve that"

     

    Slap "i deserved that" lol

     

    As i was saying... Yum Yum :wub::wub:

     

    :)


  7. >:D<<'> >:D<<'> big hugs for you Blue >:D<<'> >:D<<'>

     

    I am constantly amazed that these people can get away with this, they seem to forget that real people are involved. This seems to happen throughout the medical profession - absolutely no bedside manner. The last thing you need is to feel guilty. You have done NOTHING wrong. You should contact them as bid suggested -a decent expanation is the least you deserve, and with any luck, telling them how upset it has made you will help them think about how they approach parents in the future.

     

    Mary x


  8. This subject makes me so angy. :angry:

     

    My friends child is now 13. She has been moved from school to school because a certain group of children will not leave her alone (beating her up - throwing bricks etc). It began way back in junior school. The schools all failed to help, and wouldn't even admit it was bullying. Luckily the comp she's at now take it seriously and she has a guard with her at all times (the bullys find her - although they're at the other school). Her mum has been to the police - hopeless. She has complained and written letters to education authority etc - nothing has ever been done. They are now having to move house because although she's moved school, the girls live near, so whenever she goes out her front door, they start on her (and her mum). The M.P she wrote to asking for help didn't believe that could happen in our area, the quote was "i fail to see how this could become a problem in xxxxxx as it is a peaceful and quiet comunity" :blink::angry:

    She's a lovely kid (- has no difficulties/special needs). But because of all this she is now agoraphobic, on medication for depression and has begun to cut herself. She was a cheerful, happy and outgoing little girl - now she looks exhausted, far too thin and has constant panic attacks.

     

    It makes me so cross for her and sad that this can happen.


  9. Thanks Stephanie, i'd love the number :) i'm in Hampshire, but only just! On the hampshire, Berkshire, AND Surrey borders!

    The frontal lobe thing has got all of M's drs nodding in agreement, from my very basic understanding, that is the part of the brain that 'puts the brakes' on your behaviour. M's very impulsive, very socially clumbsy etc etc so it seems to fit.

    M was born very premature so i always assumed it was because of that, i've since found out it would have developed quite early on in the pregnancy, so it's interesting to hear that the fluid was picked up in your pregnancy Lauren. (I'd be really interested to hear what Bristol Uni have found out)

     

    Mary x


  10. Just had a read through this link, sounds facinating. My son has an acnariod cyst on the right frontal lobe, it caused petite mal fits when he was younger and i've been told there is a very definate link between AS and frontal lobe development. Im due to see his consultant soon - i'll run it by her and see what her experience of it is (i'm lucky enough to have a fab consultant :D ).

     

    Thanks for the info xx


  11. just to say my msn keeps doing that too - says password incorrect, i give it too minutes then try again and it logs in no problems :wacko: (and i have man 7.0 so don't think it's because it needs upgrading)

    my addys on the my profile if anyone fancys a natter :thumbs:


  12. my little lad thinks very literally, ...........am on week two of an ongoing 'conversation' ( :wacko: ) about the meaning of the word 'goosebumps'. It's a programme on tv, which i won't let him watch, bit to spooky for him ( - and he believes everything he see's on tele!). I have explained it so many different ways, to try to help him understand. He is still of the belief that it is infact a giant goose who bumps into things - and that's why he can't watch it - "big geese are scary!"

     

    bless him! :lol:

     

    i also have to watch how i phrase things, my dad's a scott, i've picked up the lingo from him. I used to say "Do you not want to......" "Do you not think you should go to the toilet" . No wonder the poor guys confused! :wacko:


  13. I would not - and l will not give my son the MMR vacination.

    A very close friend of mine had the same experience as cee cee, her child was absoulutely 'normal' (hate that word) up until four days after her jab. Then her little world fell apart. She has since been diagnosed as severly autistic - cause being, MMR jab - by a Dr at Great Ormond Street (this is for all to see on her notes). He went onto say that there were a few children who seemed more likely to have this 'reaction'. I can't remember them all but the two i do remember are.. 1)If the child has any history of bowel problems 2)If a parent has any kind of auto-imune illness. (I will ask my friend and get back to you with the others.) The Dr said how frustrated he is with the denials from the government, to his mind (and many of the people he works with) there is a very definate link.

    There doesn't seem to be this link with the single dose jabs - so given the option i would be happy to do that. My GP refuses, and therefore my son hasn't been vaccinated.

    I think it comes down to personal choice - do abit of homework, then see how you feel.

     

    sorry for ranting.......this one gets to me :angry:


  14. :)

     

    thanks everyone for your help and kind words - you lot are keeping me sane at the mo!! it's reasuring to know that he's not the only one who has to deal with this.

     

    we went to a local park today with a little paddling pool. he was playing really well - on his own - but as soon as another child appoached him, the twitching began. i stood with him and helped him chat to the other children, this seemed to calm him down and the twitching was less noticable.

     

    on the way to the car, another child appoached him and he began to twitch, and did the open and shutting of the mouth thing (he hasn't done that before). he turned and put his face into my tum :( he got so agrevated he walked away and before i'd gotten to him he'd thumped a tree stump, making his hand bleed. this scared the life out of me :( he's such a passive child usually.

     

    why do our little one's have to go through so much cr*p :(:(

     

    sorry for whinging - just feel so sorry for him xxxxxxx


  15. my son has begun to twitch his nose and mouth and blinks repeatedly, he also makes this sound by clenching his teeth together and pushing the air through (cannot think how to describe it - hope you follow this!). it gets much worse if he's feeling out of his depth.

     

    i've always thought you should try to ignore and not point it out, but he's getting really upset by it. he will hold his hands over his face and gets really fed up with himself.

     

    has anyone experience this? if so, any advice??


  16. :) hi all,

     

    couldn't resist adding to this one..my son is six..

     

    1, transformers

    2, bionicles

    3, scooby doo

    4, water (anywhere, anyhow..)

    5, my hair - he constantly touches it

    6, my nails - same as above..

    7, puzzles

    8, drinking from a certain spot on his cup - will turn it around and around till he finds it..

     

    don't start me on Thomas the Tank! from the age of one year to three and a half that is all he would play/watch. first thing in the morning, before breakfast, before anything :wacko: i had to set up the wooden train track - and it was huge, ran through the lounge, into dinning room, into kitchen....... he had to line them up a certain way, count them etc. i was sooooo pleased when that one passed :blink:


  17. hi simon,

    i've been wondering that all day - that i have made him hyper-sensative.

    i hope not, i was so delighted last night to finally see some good results i didn't stop to wonder if it's going to cause more trouble..... :(

    my son has had a history of major bowel trouble/ops so i think he may be fairly intolerate anyway.

    i'm still please with his progress, the main problems he has are still there, it's just easier for him (and me) to find ways around them when he's calmer. x


  18. just wanted to share with you all....

     

    my son has been on a strict diet for nearly five months now. he is not allowed any artificial flavourings, colours or preservatives. his milk/gluten intake is limited and no processed food. (he's also been taking eye - q supplement for about a month)

     

    today we went out for a bike ride and stopped off at the corner shop, they had no bottled water so i brought a small bottle of 'peach with mineral water' thinking it would be ok.

     

    OH MY GOD!! chaos, within an hour he was ranting, then in tears, literally climbing everything, couldn't manage to sit still, not making much sense, shouting,....you all know the drill.

     

    he 'woke' up a few minutes ago, m sleepwalks and you have to catch him or he will wee anywhere! i sorted him out the went back downstairs. then i realised that he hasn't sleepwalked fo a couple of weeks (it used to be every night) and checked the drinks bottle - full of cr*p!

     

    AND i've just realised how fantastic he's been these last few weeks and how much the change in diet has worked for him. we went on a BIKE RIDE for goodness sake! - that would have been impossible even a montha ago. it's shocked me how quickly i've taken to this calmer version of him, without realising his improvements in behaviour.

     

    of course now i fell awful for not checking the drink before i gave it to him, but as selfish as this sounds, im pleased it has happened. it's made me realise how far he's come. :D


  19. hiya pingu,

     

    sorry to hear your little one's not feeling well.

    i'm by no means an expert, but having migraines (caused by intercranial hypertention - don't ask!) myself and looking after little one's for years (i'm a nursery nurse) you pick up lots of little hints...

     

    firstly, if your worried - take him to the dr's, that's what they are there for, please don't feel like your waisting their time.

     

    try to see if anything triggers them, could be food, soap, even washing powder - it may just be because glasses are needed.

     

    you mentioned the 'soft spot' on his head appears to dip - this is a classic sign of dehydration - and could be a reason for his headache.

     

    the 'delve' he has is fairly common, without seeing it myself i can't really give you an acurate answer to that one. i did however once look after a little girl who suffered with horrible migraines. she went to see a craniologist, who manipulated her head (sounds awful - but always put her to sleep!). her bones had fussed together incorrectly, but he was able to 'readjust them'.

     

    best bet hun is to go to your G.P, even if it's just to put your mind at rest. he/she may also be able to prescribe some painkillers for your little one.

     

    hope all my waffling helps :rolleyes:

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