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single autie mum

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Posts posted by single autie mum

  1. Posted · Report reply

    how awful for you have you looked at special schools mines been in a unit and now at specail school and the difference is amazing all the staff understand autism they have the proper facilities quiet areas etc and the staff in these schools want to be there to help our kids, the kids dont have to fi tin with the rules of the school, lots of adjustments can be made to suit the child

    not the staff i didnt want to see mine in a special school but im glad he is now its took his anxiety levels right down and if some things not right i can write in book or go up there and they, ll do there best to make things easier for him good luck in whatever you decide

  2. Posted · Report reply

    Its so hard isn't it. I can only tell you what I am feeling about my son at the moment. Ive rambled a bit!! :rolleyes:

     

    My son was diagnosed with ASD and ADHD last month, at our last meeting 2 weeks ago the consultant said that he needs to be told soon. I have thought this over and feel that he doesn't need to be told yet - he's 9 next month. He is feeling very confident and good about himself in all areas of his life for the past few weeks and school are happy with how he has settled in his new class etc. The school are great and doing a lot of work to ensure he is happy though so he is lucky.

     

    I feel that telling him now will make him start thinking of himself as very different to his peers (which he has felt before but not at the moment) and because he feels that he is fitting in really well it would make him single himself out and move away from the group again.

     

    I also know that he will say something along the lines of "I threw her off the trampoline because I have asd or adhd and I couldn't help it" he will manipulate every situation if he thinks he can get away with it so if I give him a get out of jail free card he will use it at every opportunity.

     

    Autism Outreach came to school this morning and I had a chat with her about this and she was happy for him not to be told yet, he is feeling good about himself and is settled so now is not the right time. She said I will know when the time is right.

     

    Personally I would start inviting his new freinds for tea and see how they interact and if they really do think your son is different and whether they see that difference as a good thing or not. DS's freinds accept his differences and they do make him quite an interesting freind to have and make him quite entertaining, for the moment a least. They get to set up the wooden train set so that it runs all over the house, they can't do that usually because theirs was given away when they were 5 and they tell me that they wished it wasn't because they still like playing with trains really. They get to make things out of wood using real saws at his little worshop, they talk about the inventions they are going to make when they get older and spend hours discussing who will do what. They ask to do Hama beads and learn that they are not just for girls etc etc the thing is you can introduce things to their freinds that they would never dream of doing and as long as you make it interesting they will leave your house feeling like your son is different but in such a great way. DS has boundless energy and can't turn his brain off at all ever so his freinds are never bored when they are with him, they don't get a chance to think about whether he is different or not because he doesn't allow then a chance to think about anything other than what is happening there and then!!

     

    I know that it will change as they get older though and I think the parents will probably be the ones who point it out to their children rather than the kids noticing!

     

    We do talk a lot about his thoughts and feelings about things and he is aware about being different but he feels there are a lot of possitives that go with it. I have bought books to read to him written for asd kids and I will get them out soon and see if the questions come and go from there. Everything is lead by my kids, if they ask I answer so I will go will the flow the same goes for everything including the "where do babies come from and how do they get in there" question :o

     

    Not much help am I really but I thought I would add a few possitives to being different.

    what a lovely positive message great to hear he has friends who accept him for who he is thats fantastic my son's been in autistic unit since 4years old and about 3 years ago when he was 8 he asked me why my friends children were in the mainstream and he could see them in their yard and asked me why he was in a seperate yard class to them i told him he was special and that he had something called autism and it just made him act in in a bit different way and it just made up who he was a lovely little boy i ve slowly told him bits as hes got older

  3. Posted · Report reply

    hi bike mad does he have a statment what does ed phyc paed psych think is right setting for him if you have their support for asd unit or sen school he should be allowed to go there not have to be singled out and humiliated this way standing in a corner :angry::angry: didnt know they be allowed to do this any more especially to sen child couldnt they give him some support at break lunch times ,trying to fit in to mainstream dont they think they are humiliating him and damaging his self esteem could you insist on review asap and insist on more approp setting or more support agree with js advice above good luck hope you get some help its like trying to walk up a down escalator to get help for our kids all the best :star: oh how did you get on with blue badge

  5. Posted · Report reply

    hi julie dont know if it will be any use to you but the charity cerebra do a free home learning course for parents of asd kids and other disorders im thinking of doing it myself you can pick the units you are interested in so you can help your asd child it looks ideal for parents who need to arm themselves with knowledge about their child, their rights etc. Hope this of some use to you best of luck take care >:D<<'> >:D<<'> >:D<<'>

  8. Posted · Edited by single autie mum · Report reply

    hi im no expert but speaking from my own experience with my son hes 11 i think the two disorders are intertwined my son seems to get more obsessed about "germs"the higher his anxiety levels are he has to constantley go back and forth to the sink to wash his hands and then carefully drying his hands he has to have a clean towel each time ive minimised washing a little by buying him a stack of flannels he also keeps going back and forth to the toilet for a wee when his stress levels are very high would a tick chart help reassure him computer etc is off i find my son reponds more to visuals when hes anxious my sons been on a mild beta blocker for a while now which has the side effect of lowering anxiety levels and i think its helped him a lot id ask doctor for advice could he have some support therapy with someone my son sees a learning difficuties nurse(whose linked to his paed phyc) every week at home who helps work through his anxieties wih him hope this helps pm me if i can be any futher help take care lots of luck >:D<<'> >:D<<'> oh hes obseessed with every perfect in his bedroom as well

  10. Posted · Report reply

    HI JUST WOUNDERING IF EVERYONE KNEW THAT THE CHARITY CEREBRA SUPPORT CHILDREN WITH AUTISM AND HAVE LOTS OF USEFUL ADVICE ON THEIR SITE THEY ALSO RUN A FREE LENDING LIBRARY FOR BOOKS ON AUTISM AND OTHER BRAIN INJURIES, MENTAL HEALTH CONDITIONS AS WELL AS LENDING YOU OUT A RANGE OF SENSORY EQUIPMENT THEY PAY ALL THE POST AND PACKAGING COSTS AND LEND THE ITEMS TO YOU FOR A MONTH AT A TIME THEY JUST ASK THAT YOU REGISTER WITH THEM .THEY SENT ME A REALLY USEFULL BOOK (FOR FREE) WHEN I REGISTERED ABOUT COPING WITH STRESS IF YOUR A CARER ITS REALLY USEFULL. HOPE THIS IS SOME USE TO SOME ONE :thumbs::thumbs:

  11. Posted · Report reply

    they should definetley give home school book its only takes teacher 5 mins a day my son has one hes in special needs school though but its invaliable when r is anxious and dosent feel able to tell teacher his self also they can tell you any probs and good things cant the senco arrange home schoo book for you or ed pysch if your child has statment could you get it ammended at review to include home school book they have to provide the contents of the statement by law good luck >:D<<'>

  12. Posted · Report reply

    oh you could be talking about r (hes 11)ive been in similar situations with r but they have thankfully lessened in last year or two its awful for you because you cant get through to him that he can have new one better one but to them all thats in ther head is its gone forever and then its a full blown meltdown its so stressfull for both of you have you thought of any medication prehaps just in short term r takes a mild betablocker in liquid form every morning and it just takes the edge of his anxiety so that i have a chance of getting though to him before theres a full scale meltdown could you have word with paed pych for advice if this something your thinking of hope this some help take care let me know if you want name of beta blocker pm me all the best

  13. Posted · Report reply

    my r is like this what i do is get him to lie on the sofa we shut blinds and i put on some calm music i then let him chill there for a while and encourage him to tell me what the probs have been at school and try to help him with them its taken me a long time to get to this stage though hes 11 now only managed to do it in last year when he realised for himself that he needed to calm down after school agree with warren need opportunity to go to calm quiet place at school when stressed could you have word with teacher senco get them to adapt a small area of class for chill oUt space prehaps by using wall board cushions calm music with headphones so your child can use thissmall corner when senses are over loaded ,is there a nursery nurse or t a who could help get your child used to using such an area when thing get to much good luck let me know if i can offer any other advice take care S. A. M.

  14. Posted · Report reply

    :rolleyes: he now put Trubo roulette on the planner :unsure: he watches the ball go around and around and then announces the table has closed , :rolleyes: i am trying to figure out what he sees so attracive about it, he know s he has to be 18 to actually play it, so as the wheel spins i say to him pick a number for the ball to drop into it,and he does and the number he picks is completely different to the one he picks,so i say, if you had put real money on that you would have lost it :unsure: is he understanding i am thinking :unsure: live roulette.com,. :unsure:

    hi selsey my friend's son whose also autistic loves roulette he get a buzz from the spinning of the wheel and the ball isnt interesed in who wins and betting prehaps its the same for your son take care s .a. m . :)

  18. Posted · Edited by single autie mum · Report reply

    NO LEISURE ACTIVITIES FOR OUR KIDS :angry::angry::angry::angry::angry:

    NOSEY NEIGHBOURS

    SPEED CAMERAS

    STORES NEVER HAVING MY SIZE LEFT

    PEOPLE PUSHING IN FRONT IN QUEUES

    ENDLESS RAIN SAYS ON ADVERT WE LOVE A BIT RAIN I WALES WEEEEEEEEEEEEEE DOOOOOOONT

    ALARM CLOCKS

    RELATIVES THAT THINK THEY CAN TELL YOU HOW TO RAISE YOUR CHILD :fight::fight:

     

    I COULD GO ON AND ON AND ON AND ON

  20. Posted · Edited by single autie mum · Report reply

    hi was just woundering if theres someone involved with your son away from the school that may be able to offer some advice on schools prehaps ed phyc or learning dificulties nurse,any mums you may know with child similar needs to yours id ask to visit all possible suitable schools next wk get someone to come with you so you can see for yourself class sizes support provision support at meal times break times dont worry about offending anyone with choosing which you think s appropriate, tell them your childs education and well being are the most important thing and they have a duty to provide the correct environment for your child as well as the correct level of support hope you find somewhere to suit its really stressful isnt it but once their in the riht place it will all be worth it >:D<<'> >:D<<'> good luck how can lea argue with change of school if head teacher thinks child isnt suited where he is, has your child got statement if they have lea have legal duty to provide appropriate schooling even if out of area all the best

  22. Posted · Report reply

    have managed to get w-i f-t package for r he knows his cousin going to get one and so will be disappointed if he dosent can relax now as know the closer get to christmas the harder ,more expensive they will be at least thats one stress i dont have to worry about up to christmas :dance::dance:

  24. Posted · Edited by single autie mum · Report reply

    hi have you spoken to teacher/headteacher and asked that your child be assessed by the educational pychologist(excuse my spelling ) i had problem when my son was at nursery before his dx i had to insist they get ed phyc to assess him once they did he had one to one support then yr later when he hd dx he went to asd unit stayed there 7 years hed never have coped in main steam good luck insist on ed phyc at least you should help for her at school good luck stay strong >:D<<'> >:D<<'>

    just remembered a lot of r assessment for autism was based on me answering questions with the paediaric physcologist r didnt pass his 2 year assessment (expected time to meet mile stones when they should crawl walk speak etc with the hv and was diagnosed with global development delay which lead to him being put on waiting list for paed phsyc and speech therapist etc did your daughter meet her milestones?

  25. Posted · Report reply

    i use vitamin e oil on my daughters hair as hers gets real dry and peely i get it from the health shops this works really well 4 my daughter but she does keep it in her hair over nite which mite b a prob for him

     

    goodluck

     

    love donnaxxxxx

    thanks i,ll give it a try thinking of buying a shower cap and putting vit e oil on hair and see if i can persuade him to wear s cap for a bit wish me luck :bounce:

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