KezT
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Posts posted by KezT
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Just looking for some real answers. Partly genetic is a cop out. More like we don't really have a clue what the cause is, so we'll cross our fingers and hope it's genetic. After all autism is a name given to a group of symptoms, many illnesses share similar symptoms. Lumping them all together and not doing any further investigations will mean some will be wrongly diagnosed and forgotten about, when there could be some real help out there for them. The Autistic spectrum needs to be broken up, if they really wan't to find some answers.
Not necessarily - for example "diabetes" is a diagnosis given to a group of symptoms - it an be caused by a variety of diferent things, but ultimately the symptoms and therefore the treatment is the same so why not call it the same thing? (I know this really peeves off a number of type 1 (genetic & environmental) and type 3 (co-morbidity) diabetics, who get lumped in with type 2's with their "evironmental and lifestyle causes")
Until we find a way of PREVENTING any illness/condition, the only relevant information for diagnosis IS symptoms for treatment..... obviously this does not mean we should not be researching the causes, an looking for that prevention - but treatment atm is based on symptoms
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Then again parents should be wary about exposing their children to a powerfull oscillating magnetic feild that is stronger than a small local power supply transformer .The risks outway the pluses.
in the 40 years since they started using mri scans, there has been no evidence that they are harmful to adults or children,or even foetus'. Some people have had dozens of scans and there is still no eveidence of any detrimental effects. The only harm that has ever been documented to have befallen people due to mri's is due to projectile injury when metal objects are pulled into the magnetic field.
MRI scans are probably the least risky form of technology medical science has ever come up with! Certainly safer than X-rays, vaccinations, or dental extractions, all of which we consider "safe".
I would (and have) happily put my 6 month old into the mri scanner if it came up with a definitive answer!
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Oh dear. Feel free to offload here when it all gets too much...
K x
She has now decided that my son is cured
(because I just let him play on his game-boy all day yesterday so there was no conflict!), but my daughter (who last week she was telling off for insiting on an urgent paeds appt rather than waiting my turn) is about to drop dead...And she's spent the whole time moaning that we don't have white bread/skimmed milk/blueberries, and that's what she ALWAYS buys
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Mine is visiting for a few days.
Grrrrrrrrrrrr!!!!!!!
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I'm not saying that they don't have substantially higher care needs than an NT child of the same age - we ALL know that they do -even if you just take into account the emotional stresses of parenting an ASD child! I'm saying that it is extremely difficult to hit the DLA criteria with a 4 year old with autism, because the nature of the disability does not work well with the DLA tick box criteria!
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Not wanting to sound too pessimisic - but I should point out that it is very difficult to get DLA for a 4 year old generally, because for any DLA award you have to show that they have care needs sustantially above that of a person of equivilent age, but without the disability. Therefore, as an NT 4 year old would need constant supervision, has no idea of risk analysis, can not buy or prepare their own food etc etc, it is difficult to show where the additional requirements of their disability is unless you've got some nic simplistic physical care needs....
IMO, unless the child is profoundly autistic, or has other disabilities, it is highly unlikely that you will get DLA under the current criteria until they are at least 8 years old.
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Actually Samaritans training is both long and quite intentensive - you are not allowed to miss any training sesions and you have to commit to a period of voluntary work following the training period. Most people who do it are dong it for all the right reasons (even if they are not always the right people IMO)
Having said that, I'm a bt confused by the post. Are you sure it was the Samaritans who called you and not another agency that they had referred you onto? Are you sure she was laughing - it sounds an extremely unlikely reaction to anything you might want to say to a Samaritan... Sometimes it is difficult to understand what noises mean over the phone.
If she really did laugh and say that you were "lying and manipulating people" then she will immediately lose her "job" as a Samaritan - any one of those would be uncceptable to them
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Hi Everyone,
I'm carrying out research into the cognitive development of children with autism, specifically the development of self-regulatory abilities. I am carrying out an intervention to promote the development of self-regulatory abilities through the use of language. To do this, I need high-functioning children with autism with a mental age of 6-9 years to take part, I am also looking for typically developing children to take part as controls, so any sibling interest is also welcome. There is the option of taking part in the study and not the intervention, or both and it can be based in the home or school, so you don't need to disrupt your lives traveling to a foreign place!
I am looking for children from all over the UK to take part.
This study is being carried out within the University of Cambridge and has been granted ethical approval by the University also.
If you are interested and would like to hear more about it, I would love to hear from you!
Aileen
I don' think I could define my son's "mental age" - in some ways he is 4 and in some 14.... that is the anathema of HFA/AS surely?
What exactly do you want, and what exactly are you intending your study to do?
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But we all know he's Jo Frost in drag
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Why? And helpful for who? And where does this notion of 'insider / outsider' arise from?
It is, in either event, an absolute irrelevency, as has been shown countless times previously on the forum... either answer would provide a justification for (inaccurate) gainsaying arguments; either 'you couldn't possibly know because you're not autistic' or 'you couldn't possibly know because you are autistic', or, if neither of those fit the bill 'you couldn't possibly know because everyone's different'.
And what if I am, but don't know I am and have never sought diagnosis - either because I don't realise I am or because I'm 'in denial'? Or what if I'm not but I've home diagnosed and believe I am, or have paid for a dx from an 'autism friendly' private consultant? Or maybe I have 'traits'? Maybe I'm rainman? Maybe I'm the man who put the 'typical' in neurotypical. Maybe I'm the woman who put the typical in neurotypical (that's been suggested more than once in the past, along with all the other combinations and you wouldn't believe how many secret identities!)
Perhaps I'm a kind of autism prostitute 'I'll be whatever you want me to be as long as the price is right, honeybun'
Why not start a poll - see what people think I am? Just stick to 'autie/nt' though, 'cos otherwise you could get some very offensive answers! I might even vote myself!Please don't (or do) draw any conclusions from the above, but don't forget there's no smoke without fire and whatever people say I am that's what I'm not, to quote Fireman Sam and the Arctic Monkeys. To accumulate you have to speculate, so speculate away. Let me know the result, because I'm curious now myself...
Sorry. I'm being facetious. In answer to the question 'Is you is or is you aint' I would have to put myself down as a 'don't know'. Or a 'don't care'. Or a 'not telling'. Because that is much more fun than just having a label...
L&P
BD
(aka 'Captain Autism' - mild mannered NT by day, cloak and underpants dagger autistic crusader against injustice by night (weekends by appointment only at time-and-a-half)
I arsk ya!
LOL I'm pretty certin I know what youare - shall I tell?
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adding on to what BD said:
My son is hyperlexic - he could read fluently the moment he realised that each letter represented a sound - approx age 4. We have never found a word he can not read (although his pronunciation is not always correct) so his reading age is 16+ and has been for several years.
However up until he start of this year he still only scored a 2c or 2b in litracy each year because a) he wouldn't do it under test conditions b ) his writing is atrocious and he almost always refuses to write more than a word or two and c) his comprehension does not match his reading level. In a year he has jumped straight up to a 4B because we have managd to pesuade him that sitting the exams is important!!!
The Litracy score is an aveage of reading, writing and comprehension, so in my son's case his reading pulls it up and his writing/comprehension pull it down. You should get individual scores too though. It sonds as though your son's reading would pull is overall score up too. 2c to 2b is not much of a jump - the level is 2 and the a/b/c just tells you how close to the middle of that level they are (c=just scraped in, b=spot on that level, a=almost a 3)
If you think the school is not meeting his IEP you should ask for a review meeting and discuss your concerns there really.
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I have conducted experiments where I observe a person coming into an area with a few people including myself in that person can stare at anyone but they choose me, I have conducted that experiment a lot and sometiems that person doesn't stare at anyone at all but if they do stare at someone the majority of the times its at me
Tht'll be because you are staring at them I expect
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I don't see anyone at the moment, and I know I need to learn how to cope. I am trying, it just takes time, and I'm not ready yet.
I didn't throw the first stone. They are the last people I'd go to for help.
if it's tht terrible at home - leave! It might be what all of you need, and you are old enough to do so, and you'll have toat some point! There are lots of agencies out there who can help you find your own place, and even a few assisted housing schemes for people with ASD (but I wouln't pin my hopes on that one TBH).
I suggest you start with your local council - social services and housing services, or go along to CAB or DIAL and get some advice about your local opportunities. As a "vulnerable adult" this is one of the few times your ASD can realy help you access services
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hmmm, they obviously take a whil to get put up on there - the school I work at isn't on there yet and we converted on 1st June this year.
Even as a staff member I haven't seen or been given any info about the funding arrangement
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The NUT (national union of teachers), ATL (asoc of teachers & lecturers) and PCS (Public & Commercial Services) are on strike on Thurs - that is a lot of the teachers (especially for older children), plus some civil servants, specifically in the DWP, Transport and Justice Depts (job centres, court staff, prison warders (although they are not allowed to strike), air traffic controllers etc, but NOT local authority staff, train/Bus drivers, or NHS staff.
So there wll be some disruption in some places, but it's not a general strike by any means.
The NASUWT (other teaching union), Headteachers Union and Unison (all support staff, most local authority and NHS) are all due to ballottlater in the year and may well co-ordinate further strike action....
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Tally, there is nothing to say, other than my deepest sympathies and my thoughts are with you and all your family.
I remember when my brother died, the poor policeman who came to tell my mum had to sit there and tell each one of us as we walked through the door and told him we didn't believe him - there is nothing that can lessen the shock and grief, but time does eventually help.
{{{{hugs}}}} to you and all your family.
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IYSWIM is "if you see what I mean"
if you want hot grls with no committment you'll have to pay - that's how those girls do things at your age... b hey don't care that much about who you are, just what you loook like and what they can get out of you. sad but true, cos human nature is what it is, and if you can, you might as well take what you can get... If you were looking for a bit more commitment, then I would offer different advice;)
As you said, the marines are VERY picky - even if you didn't have AS they may not have taken you for any kind of reason. If you really want a areer in the armed services, chose a different service. Otherwise, accept that you won't be a marine and move on & look at what else you would like to do. I know lots of people who were turned down for their choice of service first time, and then went on to say how lucky they had been as they had to either do something different, or taken some time out and go back to try again the following year, making their lives infinitely better in various ways than if they had got their first choice !
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why can't you join the army? if that's what you want to do, go for it - AS is not a proscribed condition. I can see some ways AS recruits would be a bonus to the arm TBH
as for "settling" for a less than perfect partner - sorry to break it to you, bt NOBODY is perfect! there is no such thing as the perfect soulmate who will adore you for what you are in every way. Or who will not annoy you in some way... In the real world you look for a relationship that you can work with and that will grow over time. Stop worrying aboiut whether you ought to be able to get all the "hot"girls, and star thinking about what you actually want from a relationship. If itis a good looking girl on your arm, then you can't complain if it is only a short term thing. If you want a long term relationship, looks are not th best thing to look for IYSWIM
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LOL
Sometimes I think BD should hire hmself out and be the new supernanny
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huh! I was also going to post about this - it makes me really angry that the AS is the headline
can you imagine a headline stating "burglar is diabetic"???
I don't really see what hi AS dx has to do wit the case at all - but even in cases whre there may be a direct effect on the person/crime,it doesn't make headlines in the same way
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In all fairness I was not suggesting that your parenting was not effective, ust that parenting is ALWAYS the thing to look at first. Both from the parents PoV and the professionals.
I was fairly confident I was parenting my chld effectively (most of the time, I slip up every now and then
) but I know that we were checked by the school & social services for signs of abuse and neglect and I attended the parenting course CAMHS insisted on before taking DS on, because at the end of the day MOst behavioural probloms in children ARE due to ineffective parenting! -
Hi,
Just a quick one, As I am just starting the diagnosis process and doing as much reserch as i can I was hoping somebody could help. After a rough week my daughter has been fine lastnight and this morning (no meltdowns.) The traits are still there just without the aggression. Dont get me wrong this is great, feel like my Daughter is back just a bit nervous over when its going to change again. Emma.
Anyone's guess really I'm afraid. Behaviour does go in peaks and troughs - as long as the general trend is upward, yo are doing well, although the trough after a peak is alwasy a bit depressing:(
Obviously there may be specific triggers, especialy if the behaviour is linked to hugh anxiety (which it probably will be if an ASD dx is made eventually). Has anything changed recently? this is always a bad time of year for my son because the schoolcuriculum is all changed...
my advice is to make the most of the good times to discuss specific issues calmly, and have fun:)
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Im concerned about the quick mood changes.Have you raised your concerns wth any professionals? ie:Teachers/school, doctor, S< (you say they have speech delay) etc?
Do they exhibit this behavour only with you, or when with others - ie: at school, grandparents etc
Have the behaviours always been in evidence or is this a relatively new phenonenom?
As Baddad said, the most lkely reason for any behavioural issues is parenting. That is not to say that you are a bad parent, just that the techniques you ae using are not suitable for the situations you are using them in! If you are looking for a forum based dx, then of course, your child exhibits the behaviours for any number of ASD diagnosis. However, they also exibhit the bahaviours of a severely abused child. Or a psychotic one. Forum diagnosis are not very practical really
I would suggest you seek professional advice - your doctor/paediatrician or your child's school can refer them for further assessments.I know my child very well, and I know their difficulties. I also know that my child's reactions can not always be 'controlled' Which I believe is the word you used.Rubbish! Almost all behaviours can be controlled to some extent. Children with neurological conditions often find it more difficult to control their emotions, but they CAN do so. By 7 years old, they should be learning that "I can't help it" is not acceptable as an excuse for bad behaviour. Your child is obviously quite capable of understanbding right from wrong, and therefore is capable of acting upon that knowledge if they wish to!
If you'd like to upbraid someone I could suggest the father of my child who has never exorcised his parental responsibility or cared for his child's welfare , behaviour or learning.I'm pleased to say that for my child's seven years I have gone above and beyond the call of duty.
I have to say that comments such as this demonstrate quite the opposite of what your were intending
Laying the "blame" for bad behaviours at an absent father's door is just proving BDs point about you looking for absolution from responsibility for that behaviour, and IMO, there is no such thing as "above and beyond" for a 7 year old - such aggressive self defence would immediately rase concerns with any professionals you deal with.My advice would be to seek professional advice & support - the school would be a good starting point. But remember, the majority of badly bahaved children act that way due to problems at home and that is the first thing any professionals will look at. Almost everyone here has had to have poor parenting/child abuse/neglect ruled out before getting an ASD DX
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OK, back to the original question then:
So, I was thinking, cuz I have to do this to function in the world too (and always have had to as far back as I can remember) is this the way it has to be?To always act and only be yourself when hidden away?
Well, yes - that is what society is all about really. Otherwise you just have a bunch of self interested individuals who do thier own thing regardless of the impact on others.
Some examples - clothes. Plenty of people wander round their own homes naked, but very few do the same when there are others around, even if it is nice and warm
This is not because we think there is a soecific reason to be wearing clothes at all tikmes - we re just conforming to the rules. In the same way I wear ridiculously high heels if going to a formal event, even though I can't walk in them, don't like them, and would NEVER wear them out of choice....Or eating. Now, I will be honst here. When alone, I eat my Kit-Kats (and my custard creams) by nibbling all the chocolae off, licking all the cream out of the wafers, then munching the wafers last. BUT when I'm a work, or in the park I just take proper bites. I like my way better, but I act in a "proper" manner just to please others
Or, TBH, work. I quite lke my job, and I feel it is useful. But if I could be exactly who I wanted to be all the time, a lot of the time I would be a very lazy me, staying in bed, watching the TV, reading my book (slapping my kids).... certainly not geting up every morning, wearing uncomfotable clothes and driving across to te next county for apittance! I act out the role of the dedicated and loyal employee because I NEED to in order o fit in with the world as it is...
Almost everything we do is an acted out role. If society/culture/religion did not exect us to do it, we probably wouldn't - although we'd all soon be knee deep in poop if we were just ourselves all the time
ways they hope to detect autism early
in General Discussion
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well good for you - doesn't change the fact that in 40 years, no detrimenal side effects of MRI scans have been documented anywhere on the world